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  4. Genetic disorder organizations

Genetic disorder and birth defect organizations

There are 792 genetic disorder organizations in the United States. Combined, these genetic disorder organizations employ 50,868 people, earn more than $2 billion in revenue each year, and have assets of $2 billion.
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Job trends for Genetic disorder organizations

Employees per organizationNumber of organizations
0
 
51
1-10
 
105
11-25
 
38
26-100
 
51
101 to 1,000
 
77
1,000+
 
9
Key takeaways for employment stats:

Sizes of genetic disorder organizations

Revenues per organizationNumber of organizations
< $250k
 
199
$250k to $1M
 
89
$1M to $5M
 
77
$5M to $25M
 
56
$25M to $100M
 
20
$100M+
 
2
Key takeaways for revenue stats:

Directory of genetic disorder organizations

Search within these nonprofits
1-10 of 792

GiGi's Playhouse

To change the way the world views Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community.
Revenue
$4.0m
Assets
$3.0m
Employees
44
EIN
20-0058563
IRS type
501(c)(3)

Adapt Community Network

United cerebral palsy of new york city, Inc. (the "agency") is a not-for-profit organization, formed under the not-for-profit corporation law of the state of new york, founded in 1946 by parents of children with disabilities. The mission of the agency i...
Revenue
$216.3m
Assets
$150.8m
Employees
3,102
EIN
13-5654532
IRS type
501(c)(3)

National Down Syndrome Society (NDSS)

The mission of the National Down Syndrome Society (NDSS) is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. They have over 350 affiliate groups across the country.
Revenue
$3.1m
Assets
$12.4m
Employees
25
EIN
13-2992567
IRS type
501(c)(3)

Hemophilia of Georgia (HoG)

Dedicated to providing services and support for people who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders.
Revenue
$12.9m
Assets
$59.0m
Employees
53
EIN
58-1175625
IRS type
501(c)(3)

Cerebral Palsy Transport

To provide motor vehicle transportation to persons with disabilities served by United Cerebral Palsy Association of New York state.
Revenue
$10.1m
Assets
$686.3k
Employees
148
EIN
13-3409801
IRS type
501(c)(3)

Casa Colina

Casa Colina will provide individuals the opportunity to maximize their medical recovery and rehabilitation potential efficiently in an environment that recognizes their uniqueness, dignity and self-esteem.
Revenue
$71.6m
Assets
$9.6m
Employees
1,253
EIN
95-3655256
IRS type
501(c)(3)

Cerebral Palsy Association of Nassau County

The Cerebral Palsy Association of Nassau County (CP Nassau) is an independent, not-for-profit health agency serving over 1,800 children and adults with cerebral palsy, developmental and other disabilities.
Revenue
$41.4m
Assets
$26.8m
Employees
987
EIN
11-1723782
IRS type
501(c)(3)

Family Housing and Adult Resources (FHAR)

FHAR's continuum of program services includes sixteen homes, an apartment complex, two vocational day program facilities and an extensive supported and independent living service outreach program.
Revenue
$8.0m
Assets
$12.5m
Employees
141
EIN
23-7062027
IRS type
501(c)(3)

Disabled Sports USA (DSUSA)

The mission of Disabled Sports USA is to provide national leadership and opportunities for individuals with disabilities to develop independence, confidence, and fitness through participation in community sports, recreation and educational programs.
Revenue
$5.8m
Assets
$5.8m
Employees
17
EIN
94-6174016
IRS type
501(c)(3)

Full Life Care

Full Life Care is dedicated to enhancing the quality of Life for frail elders with chronic or terminal illnesses and disabilities. Full Life Care respects the dignity of participants and provides for them with Care and compassion. Full Life Care is comm...
Revenue
$19.4m
Assets
$9.5m
Employees
777
EIN
91-1095588
IRS type
501(c)(3)
Want more insights on genetic disorder organizations?
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990 or 990PF with the IRS. We exclude Form 990EZ and Postcard filers, which are high in number but very small in size. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
Cause IQ is a website that helps companies grow, maintain, and serve their nonprofit clients, and helps nonprofits find additional foundation funding. Our data and tools help professionals prospect for nonprofits, research opportunities, benchmark their clients, and enrich existing information.
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