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Genetic disorder and birth defect organizations

There are 807genetic disorder organizations in the United States. Combined, these genetic disorder organizationsemploy 48,406 people, earn more than $2 billion in revenue each year, and have assets of $2 billion.
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Job trends for Genetic disorder organizations

Employees per organizationNumber of organizations
0
51
1-10
102
11-25
43
26-100
48
101 to 1,000
73
1,000+
10
Key takeaways for employment stats:

Sizes of genetic disorder organizations

Revenues per organizationNumber of organizations
< $250k
186
$250k to $1M
86
$1M to $5M
83
$5M to $25M
53
$25M to $100M
18
$100M+
3
Key takeaways for revenue stats:

Directory of genetic disorder organizations

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1-20 of 807

GiGi's Playhouse

To change the way the world views Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community.
Revenue
$3.9m
Assets
$3.0m
Employees
47
EIN
20-0058563
IRS type
501(c)(3)

Adapt Community Network

United cerebral palsy of new york city, Inc. (the "agency") is a not-for-profit organization, formed under the not-for-profit corporation law of the state of new york, founded in 1946 by parents of children with disabilities. The mission of the agency i...
Revenue
$216.3m
Assets
$150.8m
Employees
3,102
EIN
13-5654532
IRS type
501(c)(3)

National Down Syndrome Society (NDSS)

The mission of the National Down Syndrome Society (NDSS) is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. They have over 350 affiliate groups across the country.
Revenue
$3.5m
Assets
$15.3m
Employees
25
EIN
13-2992567
IRS type
501(c)(3)

Nysha

To operate an Article 16 clinic licensed by the New York State Office of People With Developmental Disabilities.To operate day programs including day habilitation, day treatment and vocational programs; residential programs; respite care programs; and f...
Revenue
$8.8m
Assets
$14.1m
Employees
39
EIN
26-4085718
IRS type
501(c)(3)

Cerebral Palsy Transport

To provide motor vehicle transportation to persons with disabilities served by United Cerebral Palsy Association of New York state.
Revenue
$10.1m
Assets
$686.3k
Employees
148
EIN
13-3409801
IRS type
501(c)(3)

Cerebral Palsy Association of Nassau County

The Cerebral Palsy Association of Nassau County (CP Nassau) is an independent, not-for-profit health agency serving over 1,800 children and adults with cerebral palsy, developmental and other disabilities.
Revenue
$38.4m
Assets
$31.8m
Employees
800
EIN
11-1723782
IRS type
501(c)(3)

Full Life Care

Full Life Care is dedicated to enhancing the quality of Life for frail elders with chronic or terminal illnesses and disabilities. Full Life Care respects the dignity of participants and provides for them with Care and compassion. Full Life Care is commit...
Revenue
$19.4m
Assets
$9.5m
Employees
777
EIN
91-1095588
IRS type
501(c)(3)

LADACIN Network

LADACIN Network is a non-profit agency whose mission is to provide education, therapeutic, social, residential and support services for people with cerebral palsy and other physical and developmental disabilities in Monmouth and Ocean Counties.
Revenue
$28.7m
Assets
$18.6m
Employees
616
EIN
21-0674715
IRS type
501(c)(3)

Family Housing and Adult Resources (FHAR)

FHAR's continuum of program services includes sixteen homes, an apartment complex, two vocational day program facilities and an extensive supported and independent living service outreach program.
Revenue
$8.0m
Assets
$12.5m
Employees
141
EIN
23-7062027
IRS type
501(c)(3)

Casa Colina

Casa Colina will provide individuals the opportunity to maximize their medical recovery and rehabilitation potential efficiently in an environment that recognizes their uniqueness, dignity and self-esteem.
Revenue
$71.6m
Assets
$9.6m
Employees
1,253
EIN
95-3655256
IRS type
501(c)(3)

Disabled Sports USA (DSUSA)

The mission of Disabled Sports USA is to provide national leadership and opportunities for individuals with disabilities to develop independence, confidence, and fitness through participation in community sports, recreation and educational programs.
Revenue
$5.8m
Assets
$5.8m
Employees
17
EIN
94-6174016
IRS type
501(c)(3)

United Cerebral Palsy Seguin of Greater Chicago

UCP Seguin of Greater Chicago, with its rich heritage spanning over 60 years, currently serves over 650 children and adults with developmental disabilities and other special needs in 65 Chicagoland communities.
Revenue
$45.1m
Assets
$31.5m
Employees
963
EIN
36-2894174
IRS type
501(c)(3)

Hemophilia of Georgia (HoG)

Dedicated to providing services and support for people who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders.
Revenue
$12.9m
Assets
$59.0m
Employees
53
EIN
58-1175625
IRS type
501(c)(3)

Queens CENTERS FOR PROGRESS (QCP)

Queens Centers for Progress is committed to providing person-centered services and supports to children and adults who have developmental disabilities.
Revenue
$35.8m
Assets
$21.8m
Employees
684
EIN
11-1665821
IRS type
501(c)(3)

Chesed 247

Chesed 24/7 provides extensive and innovative services to the sick, the elderly, the developmentally disabled, and any individual or family facing a life challenge.
Revenue
$10.6m
Assets
$7.2m
Employees
361
EIN
13-3475062
IRS type
501(c)(3)

New Jersey Institute for Disabilities

New Jersey Institute for Disabilities, Inc. is dedicated to the provision of comprehensive, superior, multi-faceted programs of service to individuals with developmental and related Disabilities and their families regardless of race, gender, creed, econom...
Revenue
$38.4m
Assets
$26.7m
Employees
713
EIN
22-1554528
IRS type
501(c)(3)

Cerebral Palsy League (CPL)

The Cerebral Palsy League will be recognized as the highest quality provider of programs and services addressing the needs of individuals with disabilities and their families through all stages of life.
Revenue
$10.0m
Assets
$10.4m
Employees
231
EIN
22-1532195
IRS type
501(c)(3)

The Hemophilia Alliance

The Hemophilia Alliance provides member Hemophilia Treatment Center with resources and services to sustain the Comprehensive Care Model for individuals with bleeding and clotting disorders.
Revenue
$6.0m
Assets
$4.2m
Employees
7
EIN
20-2529619
IRS type
501(c)(3)

United Cerebral Palsy of Los Angeles Ventura and Santa Barbara Counties (UCPLA)

To advance the independence, productivity and full citizenship of children and adults with developmental disabilities and those with similar service needs.
Revenue
$39.7m
Assets
$11.3m
Employees
824
EIN
95-1648203
IRS type
501(c)(3)

Paxton Campus

To advocate for and provide. To advocate for and provide services to persons with disabilities in Loudoun county. To advocate for, educate, serve, and support people with disabilities and their families.
Revenue
$6.3m
Assets
$2.9m
Employees
121
EIN
54-0835314
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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