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  4. Genetic disorder organizations

Genetic disorder and birth defect organizations

There are 739 genetic disorder organizations in the United States. Combined, these genetic disorder organizations employ 44,625 people, earn more than $2 billion in revenue each year, and have assets of $2 billion.
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Job trends for Genetic disorder organizations

Employees per organizationNumber of organizations
0
 
58
1-10
 
100
11-25
 
44
26-100
 
48
101 to 1,000
 
64
1,000+
 
9
Key takeaways for employment stats:

Sizes of genetic disorder organizations

Revenues per organizationNumber of organizations
< $250k
 
193
$250k to $1M
 
92
$1M to $5M
 
75
$5M to $25M
 
47
$25M to $100M
 
20
$100M+
 
2
Key takeaways for revenue stats:

Directory of genetic disorder organizations

Search within these nonprofits
1-10 of 739

Gigi's Playhouse

To change the way the world views Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community.
Revenue
$3.6m
Assets
$3.3m
Employees
54
EIN
20-0058563
IRS type
501(c)(3)

Adapt Community Network

United cerebral palsy of new york city, inc. (the "agency") is a not-for-profit organization, formed under the not-for-profit corporation law of the state of new york, founded in 1946 by parents of children with disabilities. The mission of the agency i...
Revenue
$163.2m
Assets
$140.2m
Employees
2,494
EIN
13-5654532
IRS type
501(c)(3)

National Down Syndrome Society (NDSS)

The mission of the National Down Syndrome Society (NDSS) is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. They have over 350 affiliate groups across the country.
Revenue
$3.3m
Assets
$12.3m
Employees
0
EIN
13-2992567
IRS type
501(c)(3)

Cerebral Palsy Transport

To provide motor vehicle transportation to persons with disabilities served by United Cerebral Palsy Association of New York state.
Revenue
$10.3m
Assets
$1.1m
Employees
134
EIN
13-3409801
IRS type
501(c)(3)

Cerebral Palsy Association of Nassau County

The Cerebral Palsy Association of Nassau County (CP Nassau) is an independent, not-for-profit health agency serving over 1,800 children and adults with cerebral palsy, developmental and other disabilities.
Revenue
$40.8m
Assets
$28.6m
Employees
942
EIN
11-1723782
IRS type
501(c)(3)

United Cerebral Palsy Seguin of Greater Chicago

UCP Seguin of Greater Chicago, with its rich heritage spanning over 60 years, currently serves over 650 children and adults with developmental disabilities and other special needs in 65 Chicagoland communities.
Revenue
$40.1m
Assets
$31.4m
Employees
1,039
EIN
36-2894174
IRS type
501(c)(3)

LADACIN Network

LADACIN Network is a non-profit agency whose mission is to provide education, therapeutic, social, residential and support services for people with cerebral palsy and other physical and developmental disabilities in Monmouth and Ocean Counties.
Revenue
$25.8m
Assets
$12.4m
Employees
738
EIN
21-0674715
IRS type
501(c)(3)

Casa Colina

Casa Colina will provide individuals the opportunity to maximize their medical recovery and rehabilitation potential efficiently in an environment that recognizes their uniqueness, dignity and self-esteem.
Revenue
$67.5m
Assets
$8.7m
Employees
1,244
EIN
95-3655256
IRS type
501(c)(3)

Family Housing and Adult Resources (FHAR)

FHAR's continuum of program services includes sixteen homes, an apartment complex, two vocational day program facilities and an extensive supported and independent living service outreach program.
Revenue
$7.4m
Assets
$10.1m
Employees
148
EIN
23-7062027
IRS type
501(c)(3)

Hemophilia of Georgia (HoG)

Dedicated to providing services and support for people who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders.
Revenue
$24.9m
Assets
$63.4m
Employees
53
EIN
58-1175625
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990 or 990PF with the IRS. We exclude Form 990EZ and Postcard filers, which are high in number but very small in size. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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