EIN 26-3160079

Foundation for Angelman Syndrome Therapeutics

IRS 501(c) type
Num. employees
Year formed
Most recent tax filings
Angelman Syndrome (as) is a neurodevelopmental disorder characterized by global development delays and severe speech impairment. A few individuals with as develop functional speech, but most communicate through a mixture of gestures, eye gaze, adapted...
Also known as...
Total revenues
Total expenses
Total assets
Num. employees

Program areas at Foundation for Angelman Syndrome Therapeutics

Fast's primary goal is to advance research leading to a cure for as in the form of providing grants to universities to perform research and testing.
As is a rare disorder. The community of parents and caregivers of individuals with as rely heavily on social networking to become informed and seek advice and guidance on the challenges which the disorder presents. It is one of fast's objectives to educate, support, and strengthen this community.

Grants made by Foundation for Angelman Syndrome Therapeutics

GranteeGrant descriptionAmount
Yale UniversityGeneration and Characterization of A New As Mouse Model That Recapitulates the Large Deletion of Human 15q11-q13 and A Control Line That Carries A Deletion of All Genes in 15q11-q13 But Ube3a$1,726,398
North Carolina State University / Trailblazers 4-H ClubA Human Platform To Efficiently Study Class 1 Deleted Genes$299,321
Regents of the University of California / University of CaliforniaTranslational Analysis of Gait As A Primary Outcome Measure in Angelman Syndrome$296,592
...and 1 more grant made

Who funds Foundation for Angelman Syndrome Therapeutics

Grants from foundations and other nonprofits
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$33,189
United Way WorldwideGeneral Charitable Operation$32,470
The Boston Foundation (TBF)Operating Support/annual Fund$31,000
...and 20 more grants received totalling $234,417

Personnel at Foundation for Angelman Syndrome Therapeutics

Kena RichertChief Financial Officer and TR$104,167
Allyson BerentChief Science Officer / Science Officer$0
Paula M. EvansChairperson$0
John SchlueterChairperson / Director$0
Kristy DixonSecretary$0
...and 2 more key personnel

Financials for Foundation for Angelman Syndrome Therapeutics

RevenuesFYE 12/2020
Total grants, contributions, etc.$3,391,715
Program services$8,096
Investment income and dividends$65,615
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-502,312
Net income from fundraising events$198,162
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$6,196,378
Total revenues$9,357,654

Form 990s for Foundation for Angelman Syndrome Therapeutics

Fiscal year endingDate received by IRSFormPDF link
2020-122021-10-15990View PDF
2019-122021-02-17990View PDF
2018-122020-01-28990View PDF
2017-122019-02-21990View PDF
2016-122018-03-14990View PDF
...and 8 more Form 990s
Data update history
August 4, 2022
Posted financials
Added Form 990 for fiscal year 2020
August 2, 2022
Received grants
Identified 2 new grant, including a grant for $10,000 from American Endowment Foundation
September 23, 2021
Received grants
Identified 8 new grant, including a grant for $32,470 from United Way Worldwide
August 22, 2021
Posted financials
Added Form 990 for fiscal year 2019
April 30, 2021
Posted financials
Added Form 990 for fiscal year 2018
Nonprofit Types
Grantmaking organizationsDisease research fundraisersClinicsHealth organizations
Social sciencesHealthPublic policy
Provides grantsConducts researchFundraising eventsNational levelCommunity engagement / volunteeringGala fundraisersTax deductible donations
General information
PO Box 608
Downers Grove, IL 60515
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
DuPage County, IL
Website URL
(866) 783-0078
IRS details
Fiscal year end
Taxreturn type
Form 990
Year formed
Eligible to receive tax-deductible contributions (Pub 78)
NTEE code, primary
E50: Rehabilitative Medical Services
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
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