Grants for genetic disorder organizations

314 genetic disorder and birth defect organizations received at least $7.4 million in grants for the most recent fiscal year. This includes 517 grants made from 368 grantmaking organizations, with a median grant amount of $1,000. Of these 368 foundations, 88% made just a single grant to birth disorder orgs, and 4% made grants to four or more birth disorder orgs. This analysis is based on grantmakers that e-file their Form 990s, and likely is an undercount of grants.
$7,371,597
Total grant dollars given to genetic disorder organizations
517
Number of grants made annually to genetic disorder organizations
368
Number of grantmakers funding genetic disorder organizations
$1,000
Median grant size to genetic disorder organizations

Foundations that support genetic disorder and birth defect organizations

Out of all grants made to genetic disorder organizations, 76% came from small foundations with less than $10 million in assets. The top 10 grantmakers accounted for 88% of the dollar-value of grants to birth disorder orgs. Foundations funding birth disorder orgs also made grants to multiservice human service organizations, developmentally disabled centers, food banks, rehabilitation centers, and youth development programs.

Foundation size

Foundation sizeNumber of grantmakers
Small
 
283
Medium
 
44
Large
 
41
Small foundations have <$10M in assets. Medium foundations have $10M to $50M in assets. Large foundations have >$50M in assets.

Foundation type

Foundation typeNumber of grantmakers
Community
 
12
Private
 
292
Corporate
 
30
Other
 
34

Grants made

Grants made to birth disorder orgsNumber of grantmakers
1
 
327
2-3
 
23
4-10
 
15
11+
 
3

Top 10 foundations supporting genetic disorder and birth defect organizations

GrantmakerStateGeographic focusPercent of grant dollars to birth disorder orgsNumber of grants made to birth disorder orgsMedian grant size
Abbvie FoundationILNational0.0%20$203
Community Foundation of Middle Tennessee (CFMT)TNMetro0.0%16$277
Colburn-Keenan FoundationCTNational6.3%13$1,000
Seattle FoundationWAState0.0%10$2,000
Shell Oil Company FoundationTXNational0.0%8$375
Baird FoundationWINational0.2%7$500
JP Morgan Chase FoundationNYNational0.0%7$430
Arthur J Gallagher FoundationILNational0.2%7$135
Dollar General Literacy FoundationTNNational0.1%6$2,500
Synchrony FoundationCTNational0.0%6$260

Genetic disorder and birth defect organizations grantees

Genetic disorder organizations with more than $5 million in total revenues received 91% of all grant dollars. These larger organizations accounted for 29% of all birth disorder orgs.

Grant amounts

Size of grantNumber of grants
<$10k
 
516
$10k-$25k
 
0
$25k-$100k
 
0
$100k+
 
1

Grant amount by grantee size

Grantee annual revenueMedian grant size
<$100k
 
$1,000
$100k-$500k
 
$1,000
$500k-$1M
 
$1,500
$1M-$5M
 
$1,000
>$5M
 
$1,800

Grantee states

State of granteeNumber of grants
New York
 
61
Texas
 
57
California
 
36
Ohio
 
34
Other
 
329

Grantee metros

Metro area of granteeNumber of grants
New York City
 
60
Chicago
 
28
Denver
 
25
Dallas
 
19
Other
 
335

Top 25 grants made to genetic disorder organizations

GranteeGrant sizePurposeGrantmaker
United Cerebral Palsy of Los Angeles Ventura and Santa Barbara Counties (UCPLA)$6,410,000To Support the Cost of Momentum's Various Program Activities.Spastic Children's Endowment Foundation
Capper Foundation$5,000General OperatingElise M Malley Tua
Down Syndrome Association of Greater St Louis$5,000Exempt PurposeMassMutual Foundation
The Mcmains Children's Developmental Center$5,000General AssistanceZurich Classic of New Orleans
Easter Seals Greater Houston$5,000Support Non-Profit Healthcare OrgTexas Children's Hospital (TCS)
HMS School for Children with Cerebral Palsy$5,000Educational GrantWilliam T Vogt and Lorine E Vogt Charitable Foundation
Spina Bifida Kansas Club$5,000Charity AllianceGlobal Impact
Easter Seals Greater Houston$5,000Community QB AwardHouston Texans Foundation
The Center for Discovery$5,000General Operating PurposeMutual of America Foundation
Cerebral Palsy Foundation (CPF)$5,000Community LifeBarbara Bradley Baekgaard Family Foundation
Down Syndrome Association of Central Ohio$5,000Program SupportWestern Reserve Health Foundation
AccessCNY$5,000Donation To Support Organization's Daily OperationJim and Juli Boeheim Foundation
GiGi's Playhouse$5,000Grant Would Be To Provide One on One Literacy Tutoring To Those Who Attend Gigi's Play House. the Literacy Program Builds Upon Each of the Five Components Reading Instruction.Jim and Juli Boeheim Foundation
Down Syndrome Association of Greater Cincinnati$5,000Given To the Charity's General Fund To Be Used As They See FitMarge & Charles J Schott Foundation
National Sports Center for the Disabled$5,000DonationHorejsi Charitable Foundation
GiGi's Playhouse$5,000Disease/disorderGreater Houston Community Foundation
United Cerebral Palsy Seguin of Greater Chicago$5,000General PurposeWilliam and Rosemary Pacella Family Foundation
Special Equestrians$5,000General SupportThe Olsten Family C Foundation
Down Syndrome Association of Wisconsin$5,000To Support Programs and Services in Central WisconsinJudd S. Alexander Foundation
GiGi's Playhouse$5,000Support for General OperationsJ. W. and Ida M. Jameson Foundation
United Cerebral Palsy Association of OC$5,000General OperatingMckenzie Memorial Fund Eva L Tua
Down Syndrome Association of Houston$5,000Human Rightsorganizationfor Downs SyndromeAnya and Aarav Bhojwani Foundation
Down Syndrome Association of Central Ohio$5,000General Support of OrganizationCooper Family Foundation
Hemophilia Federation of America (HFA)$5,000Support Activities That Benefit the Bleeding Disorders and Chronic Illness CommunitieColburn-Keenan Foundation
United Hemophilia Foundation$5,000Support Activities That Benefit the Bleeding Disorders and Chronic Illness CommunitieColburn-Keenan Foundation
Methodology: To determine grants and grantees, Cause IQ analyzes electronically-filed Form 990, Form 990-EZ, and Form 990-PF financial disclosure documents, matching grantees to specific organizations using EINs and fuzzy matching logic. The "Genetic disorder organizations" category for this page is determined by the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.