| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Emory University | Research and for the Care and Treatment of People With Bleeding Disorders | 2022-06 | $3,169,399 |
| Augusta University | Research and for the Care and Treatment of People With Bleeding Disorders | 2022-06 | $1,484,111 |
| WFH Usa | For the Care and Treatment of People With Bleeding Disorders | 2022-06 | $635,000 |
| ...and 11 more grants made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| American Thrombosis and Hemostasis Network (ATHN) | 2021-12 | Data Management Capacity Research | $294,905 |
| Fidelity Investments Charitable Gift Fund | 2022-06 | For Grant Recipient's Exempt Purposes | $11,000 |
| American Online Giving Foundation | 2022-03 | General Support | $10,087 |
| ...and 3 more grants received | |||
| Federal agency | CFDA code | Program name | Amount |
|---|---|---|---|
| Department of Health and Human Services | 93.110 | MATERNAL AND CHILD HEALTH FEDERAL CONSOLIDATED PROGRAMS | $495,540 |
| Department of Health and Human Services | 93.080 | BLOOD DISORDER PROGRAM: PREVENTION SURVEILLANCE AND RESEARCH | $208,349 |
| Department of Health and Human Services | 93.080 | BLOOD DISORDER PROGRAM: PREVENTION SURVEILLANCE AND RESEARCH | $101,052 |
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Edith Rosato | Chief Executive Officer | $534,632 | 2023-05-12 |
| Robert Gillespie | Chief Operating Officer | $167,596 | 2023-01-23 |
| Paul Perrotti | Chief Financial Officer | $342,088 | 2023-01-23 |
| David Burns | Vice Chief Governance Officer | $0 | 2022-06-30 |
| Tom Brand | Chief Governance Officer | $0 | 2022-06-30 |
| ...and 37 more key personnel | |||
| Revenues | FYE 06/2022 |
|---|---|
| Total grants, contributions, etc. | $1,617,173 |
| Program services | $363,158 |
| Investment income and dividends | $913,591 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $1,384,871 |
| Net income from fundraising events | $-109,579 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $22,514,306 |
| Miscellaneous revenues | $43,691 |
| Total revenues | $26,727,211 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-06 | 2023-05-12 | 990 | View PDF |
| 2021-06 | 2022-05-16 | 990 | View PDF |
| 2020-06 | 2021-05-18 | 990 | View PDF |
| 2019-06 | 2021-02-09 | 990 | View PDF |
| 2018-06 | 2019-08-17 | 990 | View PDF |
| ...and 8 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| National Hemophilia Foundation | 501(c)(3) | New York, NY | $26,439,522 |
| Cerebral Palsy Incorporated (CP) | 501(c)(3) | Green Bay, WI | $7,081,622 |
| Cerebral Palsy of Westchester | 501(c)(3) | Rye Brook, NY | $26,619,533 |
| National Kidney Foundation (NKF) | 501(c)(3) | New York, NY | $49,574,913 |
| Cerebral Palsy Research Foundation of Kansas | 501(c)(3) | Wichita, KS | $7,008,129 |
| United Cerebral Palsy Seguin of Greater Chicago | 501(c)(3) | Cicero, IL | $46,527,213 |
| Cerebral Palsy Association of Nassau County | 501(c)(3) | Roosevelt, NY | $39,914,178 |
| UCP of Greater Cleveland | 501(c)(3) | Cleveland, OH | $13,371,888 |
| United Cerebral Palsy of Georgia (UCP) | 501(c)(3) | Atlanta, GA | $36,457,327 |
| Huntington's Disease Society of America (HDSA) | 501(c)(3) | New York, NY | $10,709,965 |
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