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EIN 11-1971539

Cooley's Anemia Foundation

IRS 501(c) type
501(c)(3)
Num. employees
10
City
New York
State
New York
Year formed
1954
Most recent tax filings
2022-06-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The Cooley’s Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s anemia/thalassemia major.
Total revenues
$3,029,482
2022
Total expenses
$1,903,459
2022
Total assets
$5,144,098
2022
Num. employees
10
2022

Program areas at Cooley's Anemia Foundation

Resarch grants - payments for medical research to enhance knowledge in treatment and eventual cure.
Patient services - blood for patients and direct patient aid.
Public information - general information for the general public: films, brochures, and legislative symposium for the medical profession.
To enhance the quality of patients lives while taking the necessary steps towards finding a cure.

Grants made by Cooley's Anemia Foundation

GranteeAmount
Regents University of California Los Angeles$50,000
General Hospital Corporation$50,000
University of California San Francisco / Ucsf Payroll Office$50,000
...and 1 more grant made

Who funds Cooley's Anemia Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Invest in Others Charitable FoundationAward Winner$75,000
American Online Giving FoundationGeneral Support$67,081
Association of University Centers on DisabilitiesResearch, Education, Service Subaward$45,475
...and 11 more grants received

Personnel at Cooley's Anemia Foundation

NameTitleCompensation
Craig ButlerExecutive Director$165,004
Mary WoldegiorgisNational Communications Director
Sandy GilbertSenior Director of Medical Affairs / Patient Outreach Director
Steve HemrajPatient Outreach Director
Zofia BuczynskiFinance Manager
...and 37 more key personnel

Financials for Cooley's Anemia Foundation

RevenuesFYE 06/2022
Total grants, contributions, etc.$2,908,371
Program services$0
Investment income and dividends$-20,203
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$141,314
Total revenues$3,029,482

Form 990s for Cooley's Anemia Foundation

Fiscal year endingDate received by IRSFormPDF link
2021-062022-07-11990View PDF
2020-062021-05-11990View PDF
2019-062020-09-25990View PDF
2018-062019-06-19990View PDF
2017-062018-10-16990View PDF
...and 7 more Form 990s
Data update history
July 3, 2023
Updated personnel
Identified 4 new personnel
May 7, 2023
Received grants
Identified 2 new grant, including a grant for $75,000 from Invest in Others Charitable Foundation
February 3, 2023
Posted financials
Added Form 990 for fiscal year 2021
August 3, 2022
Received grants
Identified 3 new grant, including a grant for $50,000 from 5P Foundation
December 21, 2021
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchLobbyingNational levelReceives government fundingTax deductible donations
General information
Address
330 Seventh Ave
New York, NY 10001
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
thalassemia.org/ 
Phone
(212) 279-8090
Twitter profile
@cooleysanemia 
IRS details
EIN
11-1971539
Fiscal year end
June
Taxreturn type
Form 990
Year formed
1954
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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