Medical disease and disorder focused nonprofits

Name: Top 10 Disease-focused nonprofits
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

There are 16,327 disease-focused nonprofits in the United States. Combined, these disease-focused nonprofits employ 201,061 people, earn more than $25 billion in revenue each year, and have assets of $40 billion.

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List of disease-focused nonprofits
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Employment
Revenues

Subcategories within medical disease and disorder focused nonprofits:

Organ disease organizations(1,959)
- Heart disease organizations (402)
- Kidney disease organizations (133)
Nerve, muscle, and bone disease organizations(613)
Specific disease focused organizations(3,363)
- HIV / AIDS organizations (900)
- Alzheimer's organizations (244)
- Autism organizations (1,318)
Medical discipline organizations(1,695)

Types of disease-focused nonprofits

Nonprofit type	Number	Employees	Revenues	Assets
Organizations focused on specific diseases	3,363	85,190	$8,733,880,999	$6,106,071,397
Cancer nonprofits	3,071	21,586	$5,444,365,419	$7,902,830,273
Organizations supporting multiple disease or disorder focused nonprofits	2,859	3,699	$2,331,341,875	$6,326,771,354
Organ disease nonprofits	1,960	30,316	$3,191,150,338	$6,923,579,929
Medical specialty organizations	1,696	4,632	$1,052,838,462	$1,363,742,789
Autism awareness organizations	1,318	43,786	$1,924,239,174	$1,665,500,931
HIV / AIDS focused organizations	900	32,990	$5,700,707,886	$3,288,197,492
Genetic disorder and birth defect organizations	784	48,527	$2,058,097,896	$2,071,321,869
Organizations supporting a single disease or disorder focused nonprofit	643	1,168	$1,466,556,625	$8,727,640,697
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations	613	5,457	$742,225,053	$925,191,140

Showing 10 of 17 categories

Job trends for Disease-focused nonprofits

Employees per organization	Number of organizations
0	2,482
1-10	1,793
11-25	683
26-100	597
101 to 1,000	322
1,000+	31

Key takeaways for employment stats:

Employment in Disease-focused nonprofits is driven by large organizations like Dana-Farber Cancer Institute, American Cancer Society (ACS), Merakey Pennsylvania (NHS), Public Health Managment Corporation, and May Institute.
The largest employers tend to be genetic disorder organizations, autism organizations, hiv / aids organizations, organ disease organizations, and cancer organizations.

Sizes of disease-focused nonprofits

Revenues per organization	Number of organizations
< $250k	5,183
$250k to $1M	1,850
$1M to $5M	1,236
$5M to $25M	442
$25M to $100M	126
$100M+	36

Key takeaways for revenue stats:

Large organizations like Dana-Farber Cancer Institute, Aids Healthcare Foundation (AHF), American Cancer Society (ACS), The Leukemia and Lymphoma Society, and Alzheimer's Association earn the majority of revenues among nonprofits in Disease-focused nonprofits.
Organizations with less than $1 million in revenue account for 5.3% of combined nonprofit revenues, whereas organizations in Disease-focused nonprofits with more than $100 million account for 41.2% of nonprofit earnings.
The highest earning organizations tend to be hiv / aids organizations, cancer organizations, organ disease organizations, organizations supporting multiple disease-focused nonprofits, and genetic disorder organizations.

Directory of disease-focused nonprofits

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1-10 of 16,327

Worldwide Orphans (WWO)

Worldwide Orphans (WWO) was established in 1997 by Dr. Jane Aronson, a global pediatric specialist. WWO is a New York/New Jersey based 501(c)(3) international nongovernmental organization (INGO) headquartered in Maplewood, New Jersey.

Revenue

$1.6m

Assets

$661.3k

Employees

EIN

13-3968225

IRS type

501(c)(3)

Gigi's Playhouse

To change the way the world views Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community.

Revenue

$4.0m

Assets

$3.0m

Employees

EIN

20-0058563

IRS type

501(c)(3)

Seva Foundation

Since 1978, Seva Foundation has been a leading innovator in the delivery of vital eye care services to the world's most vulnerable.

Revenue

$6.9m

Assets

$37.9m

Employees

EIN

38-2231279

IRS type

501(c)(3)

International Partnership for Microbicides (IPM)

IPM's mission is to prevent HIV transmission by accelerating the development and availability of safe and effective microbicides for use by women in developing countries.

Revenue

$25.2m

Assets

$24.8m

Employees

EIN

01-0741733

IRS type

501(c)(3)

Orbis International

Orbis International is a nonprofit organization that works to prevent and treat blindness through hands-on training, public health education, and improved access to quality eye care, advocacy and partnerships with local health care organizations.

Revenue

$245.2m

Assets

$65.5m

Employees

EIN

23-7297651

IRS type

501(c)(3)

Colorectal Cancer Alliance (CCA)

While colorectal cancer affects the lives of more than 140,000 Americans every year, it is preventable. With this in mind we have made it our mission to end the disease within our lifetime.

Revenue

$10.9m

Assets

$9.1m

Employees

EIN

86-0947831

IRS type

501(c)(3)

24 Foundation

24 Foundation aims to inspire and engage communities to make an immediate impact on the lives of people affected by cancer, with an ultimate vision of providing cancer navigation and survivorship for all.

Revenue

$2.3m

Assets

$1.1m

Employees

EIN

20-3768277

IRS type

501(c)(3)

Livestrong Foundation

The Livestrong Foundation fights to improve the lives of people affected by cancer now. Created in 1997, the Foundation is known for providing free cancer support services and advocating for policies that improve access to care and quality of life.

Revenue

$-1,120,415

Assets

$48.8m

Employees

EIN

74-2806618

IRS type

501(c)(3)

AIDS United

AIDS United's mission is to end the AIDS epidemic in the United States. We seek to fulfill our mission through strategic grantmaking, capacity building, policy/advocacy, technical assistance and formative research. AU's mission is to end the AIDS epidem...

Revenue

$16.4m

Assets

$11.3m

Employees

EIN

52-1706646

IRS type

501(c)(3)

May Institute

May Institute is committed to excellence in specialized services through training, research, and the highest level of professional expertise to meet the broad range of needs in individuals, families, schools, and communities.

Revenue

$125.0m

Assets

$57.0m

Employees

2,627

EIN

04-2197449

IRS type

501(c)(3)

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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990 or 990PF with the IRS. We exclude Form 990EZ and Postcard filers, which are high in number but very small in size. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.

This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.

Medical disease and disorder focused nonprofits

Types of disease-focused nonprofits

Job trends for Disease-focused nonprofits

Sizes of disease-focused nonprofits

Directory of disease-focused nonprofits

Worldwide Orphans (WWO)

Gigi's Playhouse

Seva Foundation

International Partnership for Microbicides (IPM)

Orbis International

Colorectal Cancer Alliance (CCA)

24 Foundation

Livestrong Foundation

AIDS United

May Institute

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