Medical disease and disorder focused nonprofits

Name: Top 10 Disease-focused nonprofits
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

There are 16,249 disease-focused nonprofits in the United States. Combined, these disease-focused nonprofits employ 210,389 people, earn more than $26 billion in revenue each year, and have assets of $42 billion.

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List of disease-focused nonprofits
Categories
Employment
Revenues

Subcategories within medical disease and disorder focused nonprofits:

Organ disease organizations(1,931)
- Heart disease organizations (372)
- Kidney disease organizations (131)
Nerve, muscle, and bone disease organizations(619)
Specific disease focused organizations(3,341)
- HIV / AIDS organizations (893)
- Alzheimer's organizations (247)
- Autism organizations (1,320)
Medical discipline organizations(1,668)

Types of disease-focused nonprofits

Nonprofit type	Number	Employees	Revenues	Assets
Organizations focused on specific diseases	3,341	85,962	$9,037,181,284	$6,624,589,573
Cancer nonprofits	3,055	21,215	$5,227,739,603	$7,958,615,276
Organizations supporting multiple disease or disorder focused nonprofits	2,905	3,961	$2,466,851,353	$6,599,090,595
Organ disease nonprofits	1,931	30,483	$3,202,496,495	$7,118,890,212
Medical specialty organizations	1,669	12,340	$2,179,128,120	$1,831,079,977
Autism awareness organizations	1,320	44,827	$2,018,944,208	$1,801,398,824
HIV / AIDS focused organizations	893	32,813	$5,926,460,354	$3,588,106,060
Genetic disorder and birth defect organizations	792	50,359	$2,021,574,149	$2,075,961,543
Organizations supporting a single disease or disorder focused nonprofit	619	1,083	$1,282,154,924	$8,908,293,335
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations	619	4,509	$660,050,613	$886,190,183

Showing 10 of 17 categories

Job trends for Disease-focused nonprofits

Employees per organization	Number of organizations
0	2,501
1-10	1,766
11-25	679
26-100	622
101 to 1,000	323
1,000+	30

Key takeaways for employment stats:

Employment in Disease-focused nonprofits is driven by large organizations like Dana-Farber Cancer Institute, Baylor Scott & White HealthTexas Provider Network, Merakey Pennsylvania (NHS), American Cancer Society (ACS), and Public Health Managment Corporation.
The largest employers tend to be genetic disorder organizations, autism organizations, hiv / aids organizations, organ disease organizations, and cancer organizations.

Sizes of disease-focused nonprofits

Revenues per organization	Number of organizations
< $250k	5,072
$250k to $1M	1,773
$1M to $5M	1,250
$5M to $25M	438
$25M to $100M	126
$100M+	34

Key takeaways for revenue stats:

Large organizations like Dana-Farber Cancer Institute, Aids Healthcare Foundation (AHF), Baylor Scott & White HealthTexas Provider Network, American Cancer Society (ACS), and Cystic Fibrosis Foundation earn the majority of revenues among nonprofits in Disease-focused nonprofits.
Organizations with less than $1 million in revenue account for 4.9% of combined nonprofit revenues, whereas organizations in Disease-focused nonprofits with more than $100 million account for 43.9% of nonprofit earnings.
The highest earning organizations tend to be hiv / aids organizations, cancer organizations, organizations supporting multiple disease-focused nonprofits, organ disease organizations, and medical discipline organizations.

Directory of disease-focused nonprofits

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1-10 of 16,249

Seva Foundation

Since 1978, Seva Foundation has been a leading innovator in the delivery of vital eye care services to the world's most vulnerable.

Revenue

$7.4m

Assets

$38.2m

Employees

EIN

38-2231279

IRS type

501(c)(3)

GiGi's Playhouse

To change the way the world views Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community.

Revenue

$4.0m

Assets

$3.0m

Employees

EIN

20-0058563

IRS type

501(c)(3)

Worldwide Orphans (WWO)

Worldwide Orphans (WWO) was established in 1997 by Dr. Jane Aronson, a global pediatric specialist. WWO is a New York/New Jersey based 501(c)(3) international nongovernmental organization (INGO) headquartered in Maplewood, New Jersey.

Revenue

$1.6m

Assets

$438.7k

Employees

EIN

13-3968225

IRS type

501(c)(3)

International Partnership for Microbicides (IPM)

IPM's mission is to prevent HIV transmission by accelerating the development and availability of safe and effective microbicides for use by women in developing countries.

Revenue

$25.2m

Assets

$28.1m

Employees

EIN

01-0741733

IRS type

501(c)(3)

Avon

Avon Foundation for Women's mission is to improve the lives of women globally. In their core cause areas of Breast Cancer and Violence Against Women, they aim to accelerate progress, accountability and discovery, while also reducing the social stigma.

Revenue

$465.8k

Assets

$5.9m

Employees

EIN

13-6128447

IRS type

501(c)(3)

Adapt Community Network

United cerebral palsy of new york city, Inc. (the "agency") is a not-for-profit organization, formed under the not-for-profit corporation law of the state of new york, founded in 1946 by parents of children with disabilities. The mission of the agency i...

Revenue

$184.4m

Assets

$144.7m

Employees

2,407

EIN

13-5654532

IRS type

501(c)(3)

AIDS United

AIDS United's mission is to end the AIDS epidemic in the United States. We seek to fulfill our mission through strategic grantmaking, capacity building, policy/advocacy, technical assistance and formative research. AU's mission is to end the AIDS epidem...

Revenue

$19.9m

Assets

$12.1m

Employees

EIN

52-1706646

IRS type

501(c)(3)

Lupus Foundation of America

The Lupus Foundation of America is dedicated to improving the quality of life for all people affected by lupus through a comprehensive program of research, education, and advocacy.

Revenue

$12.0m

Assets

$8.3m

Employees

EIN

43-1131436

IRS type

501(c)(3)

St Baldrick's Foundation (SBF)

The St. Baldrick's Foundation is a volunteer and donor powered charity committed to supporting the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

Revenue

$26.3m

Assets

$32.0m

Employees

EIN

20-1173824

IRS type

501(c)(3)

Livestrong Foundation

The Livestrong Foundation fights to improve the lives of people affected by cancer now. Created in 1997, the Foundation is known for providing free cancer support services and advocating for policies that improve access to care and quality of life.

Revenue

$10.5m

Assets

$47.4m

Employees

EIN

74-2806618

IRS type

501(c)(3)

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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990 or 990PF with the IRS. We exclude Form 990EZ and Postcard filers, which are high in number but very small in size. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.

This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.

Medical disease and disorder focused nonprofits

Types of disease-focused nonprofits

Job trends for Disease-focused nonprofits

Sizes of disease-focused nonprofits

Directory of disease-focused nonprofits

Seva Foundation

GiGi's Playhouse

Worldwide Orphans (WWO)

International Partnership for Microbicides (IPM)

Avon

Adapt Community Network

AIDS United

Lupus Foundation of America

St Baldrick's Foundation (SBF)

Livestrong Foundation

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