Medical disease and disorder focused nonprofits

There are 15,421 disease-focused nonprofits in the United States. Combined, these disease-focused nonprofits employ 189,102 people, earn more than $24 billion in revenue each year, and have assets of $40 billion.

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List of disease-focused nonprofits
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Employment
Revenues

Subcategories within medical disease and disorder focused nonprofits:

Organ disease organizations(1,893)
- Heart disease organizations (398)
- Kidney disease organizations (131)
Nerve, muscle, and bone disease organizations(532)
Specific disease focused organizations(3,217)
- HIV / AIDS organizations (932)
- Alzheimer's organizations (210)
- Autism organizations (1,210)
Medical discipline organizations(1,683)

Types of disease-focused nonprofits

Nonprofit type	Number	Employees	Revenues	Assets
Organizations focused on specific diseases	3,218	72,967	$7,322,909,121	$5,013,422,974
Cancer nonprofits	2,817	20,166	$4,800,717,026	$7,187,094,509
Organizations supporting multiple disease or disorder focused nonprofits	2,626	2,733	$1,751,919,699	$1,965,040,233
Organ disease nonprofits	1,896	32,809	$3,505,865,210	$8,027,176,928
Medical specialty organizations	1,684	5,851	$1,354,898,148	$1,421,790,052
Autism awareness organizations	1,210	36,981	$1,643,397,373	$1,309,510,279
HIV / AIDS focused organizations	932	27,967	$4,860,474,351	$2,819,457,328
Genetic disorder and birth defect organizations	739	44,625	$1,887,408,943	$1,891,785,127
Organizations supporting a single disease or disorder focused nonprofit	645	1,186	$1,686,389,449	$8,791,654,669
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations	532	8,202	$1,542,644,451	$5,363,399,778

Showing 10 of 17 categories

Job trends for Disease-focused nonprofits

Employees per organization	Number of organizations
0	2,370
1-10	1,769
11-25	678
26-100	594
101 to 1,000	308
1,000+	25

Key takeaways for employment stats:

Employment in Disease-focused nonprofits is driven by large organizations like Dana-Farber Cancer Institute, American Cancer Society (ACS), Merakey Pennsylvania (NHS), May Institute, and Alzheimer's Association.
The largest employers tend to be genetic disorder organizations, autism organizations, organ disease organizations, hiv / aids organizations, and cancer organizations.

Sizes of disease-focused nonprofits

Revenues per organization	Number of organizations
< $250k	4,872
$250k to $1M	1,833
$1M to $5M	1,238
$5M to $25M	437
$25M to $100M	119
$100M+	34

Key takeaways for revenue stats:

Large organizations like Dana-Farber Cancer Institute, Aids Healthcare Foundation (AHF), American Cancer Society (ACS), The Leukemia and Lymphoma Society, and World Federation of Hemophilia USA earn the majority of revenues among nonprofits in Disease-focused nonprofits.
Organizations with less than $1 million in revenue account for 5.5% of combined nonprofit revenues, whereas organizations in Disease-focused nonprofits with more than $100 million account for 40.4% of nonprofit earnings.
The highest earning organizations tend to be hiv / aids organizations, cancer organizations, organ disease organizations, genetic disorder organizations, and organizations supporting multiple disease-focused nonprofits.

Directory of disease-focused nonprofits

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1-10 of 15,421

Guide Dog Foundation for the Blind

The Guide Dog Foundation's mission is to improve the quality of life for people who are blind or visually impaired.

Revenue

$9.9m

Assets

$26.7m

Employees

170

EIN

11-1687477

IRS type

501(c)(3)

Seva Foundation

Since 1978, Seva Foundation has been a leading innovator in the delivery of vital eye care services to the world's most vulnerable.

Revenue

$7.4m

Assets

$37.8m

Employees

EIN

38-2231279

IRS type

501(c)(3)

National Kidney Foundation of Illinois (NKF)

The National Kidney Foundation of Illinois improves the health and well-being of people at risk for or affected by kidney disease through prevention, education and empowerment.

Revenue

$2.1m

Assets

$6.7m

Employees

EIN

36-6009226

IRS type

501(c)(3)

Gigi's Playhouse

To change the way the world views Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community.

Revenue

$3.6m

Assets

$3.3m

Employees

EIN

20-0058563

IRS type

501(c)(3)

Worldwide Orphans (WWO)

Worldwide Orphans (WWO) was established in 1997 by Dr. Jane Aronson, a global pediatric specialist. WWO is a New York/New Jersey based 501(c)(3) international nongovernmental organization (INGO) headquartered in Maplewood, New Jersey.

Revenue

$1.6m

Assets

$661.3k

Employees

EIN

13-3968225

IRS type

501(c)(3)

National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD), organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.

Revenue

$48.1m

Assets

$38.3m

Employees

EIN

13-3223946

IRS type

501(c)(3)

Adapt Community Network

United cerebral palsy of new york city, inc. (the "agency") is a not-for-profit organization, formed under the not-for-profit corporation law of the state of new york, founded in 1946 by parents of children with disabilities. The mission of the agency i...

Revenue

$163.2m

Assets

$140.2m

Employees

2,494

EIN

13-5654532

IRS type

501(c)(3)

AIDS United

AIDS United's mission is to end the AIDS epidemic in the United States. We seek to fulfill our mission through strategic grantmaking, capacity building, policy/advocacy, technical assistance and formative research. AU's mission is to end the AIDS epidem...

Revenue

$16.4m

Assets

$11.3m

Employees

EIN

52-1706646

IRS type

501(c)(3)

May Institute

May Institute is committed to excellence in specialized services through training, research, and the highest level of professional expertise to meet the broad range of needs in individuals, families, schools, and communities.

Revenue

$121.4m

Assets

$57.4m

Employees

2,652

EIN

04-2197449

IRS type

501(c)(3)

Avon

Avon Foundation for Women's mission is to improve the lives of women globally. In their core cause areas of Breast Cancer and Violence Against Women, they aim to accelerate progress, accountability and discovery, while also reducing the social stigma.

Revenue

$906.8k

Assets

$6.6m

Employees

EIN

13-6128447

IRS type

501(c)(3)

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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990 or 990PF with the IRS. We exclude Form 990EZ and Postcard filers, which are high in number but very small in size. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.

This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.

Medical disease and disorder focused nonprofits

Types of disease-focused nonprofits

Job trends for Disease-focused nonprofits

Sizes of disease-focused nonprofits

Directory of disease-focused nonprofits

Guide Dog Foundation for the Blind

Seva Foundation

National Kidney Foundation of Illinois (NKF)

Gigi's Playhouse

Worldwide Orphans (WWO)

National Organization for Rare Disorders (NORD)

Adapt Community Network

AIDS United

May Institute

Avon

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