Medical disease and disorder focused nonprofits

There are 5,586 disease-focused nonprofits in the United States. Combined, these disease-focused nonprofits employ 185,753 people, earn more than $25 billion in revenue each year, and have assets of $43 billion.

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List of disease-focused nonprofits
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Employment
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Subcategories within medical disease and disorder focused nonprofits:

Organ disease organizations(802)
- Heart disease organizations (94)
- Kidney disease organizations (54)
Nerve, muscle, and bone disease organizations(193)
Specific disease focused organizations(1,225)
- HIV / AIDS organizations (537)
- Alzheimer's organizations (69)
- Autism organizations (402)
Medical discipline organizations(606)

Types of disease-focused nonprofits

Nonprofit type	Number	Employees	Revenues	Assets
Organizations focused on specific diseases	1,235	68,373	$6,680,950,887	$4,602,696,794
Cancer nonprofits	938	22,476	$7,005,835,156	$8,736,244,959
Organ disease nonprofits	868	32,406	$3,311,940,636	$7,886,034,573
Organizations supporting multiple disease or disorder focused nonprofits	760	1,925	$1,700,630,403	$1,934,942,005
Medical specialty organizations	664	8,046	$2,007,210,676	$2,316,595,698
HIV / AIDS focused organizations	537	26,184	$4,437,660,837	$2,605,235,926
Autism awareness organizations	402	33,014	$1,413,864,792	$1,046,461,918
Organizations supporting a single disease or disorder focused nonprofit	402	1,026	$1,629,503,287	$10,598,951,382
Genetic disorder and birth defect organizations	327	45,026	$1,835,337,998	$1,716,172,169
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations	205	5,794	$947,959,036	$5,256,917,568

Showing 10 of 17 categories

Job trends for Disease-focused nonprofits

Employees per organization	Number of organizations
0	2,001
1-10	1,715
11-25	680
26-100	602
101 to 1,000	300
1,000+	23

Key takeaways for employment stats:

Employment in Disease-focused nonprofits is driven by large organizations like American Cancer Society / National Home Office, Dana-Farber Cancer Institute / Steven Connolly, Merakey Pennsylvania (NHS), May Institute, and Alzheimer's Association - Alzheimer's Association.
The largest employers tend to be genetic disorder organizations, autism organizations, organ disease organizations, hiv / aids organizations, and cancer organizations.

Sizes of disease-focused nonprofits

Revenues per organization	Number of organizations
< $250k	1,890
$250k to $1M	1,908
$1M to $5M	1,198
$5M to $25M	433
$25M to $100M	120
$100M+	34

Key takeaways for revenue stats:

Large organizations like Dana-Farber Cancer Institute / Steven Connolly, HealthPartners, Aids Healthcare Foundation (AHF), American Cancer Society / National Home Office, and The Leukemia and Lymphoma Society earn the majority of revenues among nonprofits in Disease-focused nonprofits.
Organizations with less than $1 million in revenue account for 4.7% of combined nonprofit revenues, whereas organizations in Disease-focused nonprofits with more than $100 million account for 44.6% of nonprofit earnings.
The highest earning organizations tend to be cancer organizations, hiv / aids organizations, organ disease organizations, medical discipline organizations, and genetic disorder organizations.

Directory of disease-focused nonprofits

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1-10 of 5,586

Pan Massachusetts Challenge (PMC)

To raise funds to be contributed to the jimmy fund at the dana-farber cancer institute for its use in connection with the research, treatment, cure of and education about cancer. Annual bike-a-thon - approximately 5,700 cyclists ride and raise money for...

Revenue

$55.0m

Assets

$3.1m

Employees

EIN

04-2746912

IRS type

501(c)(3)

National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD), organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.

Revenue

$48.1m

Assets

$38.3m

Employees

EIN

13-3223946

IRS type

501(c)(3)

St Baldrick's Foundation (SBF)

The St. Baldrick's Foundation is a volunteer and donor powered charity committed to supporting the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

Revenue

$35.9m

Assets

$38.6m

Employees

EIN

20-1173824

IRS type

501(c)(3)

Association of Community Cancer Centers (ACCC)

ACCC promotes the entire continuum of quality cancer care for our patients and our communities. Since 1974, ACCC has been helping oncology professionals adapt to the complex changes of delivering quality cancer care.

Revenue

$11.1m

Assets

$10.2m

Employees

EIN

51-0137807

IRS type

501(c)(3)

Seva Foundation

Since 1978, Seva Foundation has been a leading innovator in the delivery of vital eye care services to the world's most vulnerable.

Revenue

$40.6m

Assets

$38.2m

Employees

EIN

38-2231279

IRS type

501(c)(3)

Fulbright Association

To engage current and former Fulbright exchange participants in lifelong experiences that advance international understanding through volunteer service to communities, people-to-people diplomacy and dialogue on global issues.

Revenue

$1.3m

Assets

$4.0m

Employees

EIN

52-1821935

IRS type

501(c)(3)

Personal Care Products Council Foundation

The Personal Care Products Council Foundation is a charitable organization of the Personal Care Products Council, the national representative of the personal care products industry, which provides services to support the industry's interests.

Revenue

$20.0m

Assets

$3.0m

Employees

EIN

52-1523017

IRS type

501(c)(3)

The Bonnie J Addario A Breath Away From the Cure Foundation (ALCF)

The Bonnie J. Addario Lung Cancer Foundation (ALCF) is one of the largest philanthropies (patient-founded, patient-focused, and patient-driven) devoted exclusively to eradicating Lung Cancer through research, early detection, education, and treatment.

Revenue

$4.4m

Assets

$3.5m

Employees

EIN

20-4417327

IRS type

501(c)(3)

GiGi's Playhouse

To change the way the world views Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community.

Revenue

$3.6m

Assets

$3.3m

Employees

EIN

20-0058563

IRS type

501(c)(3)

Osteoporosis Foundation (OF)

Osteoporosis Foundation's mission is to prevent osteoporosis and improve the lives of those affected by the disease.

Revenue

$4.5m

Assets

$7.0m

Employees

EIN

36-3350532

IRS type

501(c)(3)

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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990 or 990PF with the IRS. We exclude Form 990EZ and Postcard filers, which are high in number but very small in size. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.

This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.

Medical disease and disorder focused nonprofits

Types of disease-focused nonprofits

Job trends for Disease-focused nonprofits

Sizes of disease-focused nonprofits

Directory of disease-focused nonprofits

Pan Massachusetts Challenge (PMC)

National Organization for Rare Disorders (NORD)

St Baldrick's Foundation (SBF)

Association of Community Cancer Centers (ACCC)

Seva Foundation

Fulbright Association

Personal Care Products Council Foundation

The Bonnie J Addario A Breath Away From the Cure Foundation (ALCF)

GiGi's Playhouse

Osteoporosis Foundation (OF)

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