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Medical disease and disorder focused nonprofits

There are 24,052 disease-focused nonprofits in the United States. Combined, these disease-focused nonprofits employ 377,214 people, earn more than $47 billion in revenue each year, and have assets of $66 billion.
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Types of disease-focused nonprofits

Nonprofit typeNumberRevenues
Organizations focused on specific diseases
 
5,651
 
$16,732,052,475
Cancer nonprofits
 
5,347
 
$3,947,746,228
Organ disease nonprofits
 
2,797
 
$5,561,300,378
Medical specialty organizations
 
2,495
 
$14,304,736,318
Disease and disorder focused professional societies
 
2,097
 
$2,070,450,158
Autism awareness organizations
 
1,835
 
$2,086,764,677
Organizations supporting multiple disease or disorder focused nonprofits
 
1,443
 
$103,996,757
Genetic disorder and birth defect organizations
 
1,249
 
$1,193,144,057
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations
 
1,107
 
$2,085,403,380
HIV / AIDS focused organizations
 
872
 
$10,443,475,152
Showing 10 of 17 categories

Job trends for Disease-focused nonprofits

Employees per organizationNumber of organizations
0
 
4,203
1-10
 
2,468
11-25
 
798
26-100
 
637
101 to 1,000
 
259
1,000+
 
26
Key takeaways for employment stats:

Sizes of disease-focused nonprofits

Revenues per organizationNumber of organizations
< $250k
 
7,027
$250k to $1M
 
2,746
$1M to $5M
 
1,734
$5M to $25M
 
590
$25M to $100M
 
162
$100M+
 
69
Key takeaways for revenue stats:

Directory of disease-focused nonprofits

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1-20 of 24,052

TSC Alliance

TSC Alliance drives research toward a cure, catalyzes new treatments, improves care and access, and advocates lifelong support for everyone affected by TSC.
Revenue
$9.8m
Assets
$18.0m
Employees
26
EIN
95-3018799
IRS type
501(c)(3)

National Kidney Foundation of Illinois

The National Kidney Foundation of Illinois improves the health and well-being of people at risk for or affected by Kidney disease through prevention, education, and empowerment.
Revenue
$3.2m
Assets
$7.5m
Employees
17
EIN
36-6009226
IRS type
501(c)(3)

American Brain Tumor Association (ABTA)

The American Brain Tumor Association supports research, education, and advocacy, aiming to improve the lives of those affected by brain tumors through free patient services.
Revenue
$7.4m
Assets
$9.4m
Employees
42
EIN
23-7286648
IRS type
501(c)(3)

Vince Lombardi Cancer Foundation (VLCF)

VLCF raises funds for cancer research and care at Lombardi Cancer Clinics, located in Aurora Health Care facilities throughout eastern Wisconsin.
Revenue
$708.1k
Assets
$864.5k
Employees
0
EIN
23-7120909
IRS type
501(c)(3)

American College of Gastroenterology (ACG)

American College of Gastroenterology empowers members to deliver top digestive care and advances gastroenterology through education, research, advocacy, and professional innovation.
Revenue
$29.0m
Assets
$316.9m
Employees
43
EIN
13-1883814
IRS type
501(c)(3)

American Association of Blood Banks (AABB)

American Association of Blood Banks (AABB) advances transfusion medicine and biotherapies by setting standards, accrediting programs, educating professionals, and supporting research to improve safety.
Revenue
$19.6m
Assets
$23.3m
Employees
69
EIN
36-2384118
IRS type
501(c)(3)

Seva Foundation

Since 1978, Seva Foundation has been a leading innovator in the delivery of vital eye care services to the world's most vulnerable.
Revenue
$11.0m
Assets
$31.5m
Employees
27
EIN
38-2231279
IRS type
501(c)(3)

Connecticut Children's Specialty Group (CCMC)

CCMC provides primary and specialty healthcare services to children in Connecticut and the surrounding area through its tax-exempt integrated healthcare delivery system.
Revenue
$190.3m
Assets
$56.8m
Employees
1,144
EIN
06-1446900
IRS type
501(c)(3)

National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD), organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
Revenue
$34.6m
Assets
$66.9m
Employees
116
EIN
13-3223946
IRS type
501(c)(3)

American Academy of Dermatology

American Academy of Dermatology advances dermatologic care through education, research, advocacy, and community engagement while supporting over 20,500 board-certified dermatologists in the U.S.
Revenue
$53.6m
Assets
$128.5m
Employees
228
EIN
41-0793046
IRS type
501(c)(3)

American Society of Anesthesiologists (ASA)

The American Society of Anesthesiologists (ASA) is an educational, research and scientific society with more than 50,000 members organized to raise and maintain the standards of the medical practice of anesthesiology.
Revenue
$58.5m
Assets
$114.7m
Employees
186
EIN
36-2181944
IRS type
501(c)(6)

Radiological Society of North America (RSNA)

RSNA promotes excellence in patient care and health care delivery through education, research and technologic innovation. Promoting and developing the highest standards of radiology and related science through education and research.
Revenue
$68.5m
Assets
$218.3m
Employees
294
EIN
15-0539115
IRS type
501(c)(3)

The American Geriatrics Society

The American Geriatrics Society improves the health and quality of life for older people through education, grants, and special projects.
Revenue
$9.9m
Assets
$14.7m
Employees
24
EIN
13-1950856
IRS type
501(c)(3)

American Academy of Child and Adolescent Psychiatry

American Academy of Child and Adolescent Psychiatry advocates for youth mental health, provides resources, supports clinicians, and promotes research in child psychiatry.
Revenue
$14.1m
Assets
$32.7m
Employees
42
EIN
13-1958990
IRS type
501(c)(3)

Pediatric Brain Tumor Foundation of the United States

The Pediatric Brain Tumor Foundation is the world's largest nonprofit solely dedicated to the pediatric brain tumor community. We serve the more than 28,000 children and teens in the United States who are living with a brain tumor diagnosis.
Revenue
$5.8m
Assets
$2.9m
Employees
28
EIN
58-1966822
IRS type
501(c)(3)

American Association of Orthopaedic Surgeons (AAOS)

American Association of Orthopaedic Surgeons' mission is to serve our profession to provide the highest quality musculoskeletal care and its vision is to keep the world in motion through the prevention and treatment of musculoskeletal conditions.
Revenue
$25.9m
Assets
$21.4m
Employees
0
EIN
36-4241052
IRS type
501(c)(6)

American Society of Hematology (ASH)

To further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology.
Revenue
$112.4m
Assets
$392.3m
Employees
162
EIN
23-7080568
IRS type
501(c)(3)

The American Academy of Allergy Asthma (AAAAI)

The American Academy of Allergy, Asthma & Immunology is dedicated to the advancement of the knowledge and practice of allergy, asthma and immunology for optimal patient care.
Revenue
$17.6m
Assets
$41.5m
Employees
0
EIN
39-6061326
IRS type
501(c)(3)

Foundation Fighting Blindness (FFB)

Foundation Fighting Blindness drives research and education to prevent, treat, and cure retinitis pigmentosa, macular degeneration, Usher syndrome, and retinal degenerative diseases.
Revenue
$36.6m
Assets
$110.9m
Employees
96
EIN
23-7135845
IRS type
501(c)(3)

International Association for the Study of Lung Cancer

International Association for the Study of Lung Cancer advocates for lung cancer through education, research, and collaboration to enhance prevention and patient care.
Revenue
$28.6m
Assets
$35.6m
Employees
43
EIN
20-0499338
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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