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Medical disease and disorder focused nonprofits

There are 23,689 disease-focused nonprofits in the United States. Combined, these disease-focused nonprofits employ 420,282 people, earn more than $50 billion in revenue each year, and have assets of $75 billion.
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Types of disease-focused nonprofits

Nonprofit typeNumberRevenues
Organizations focused on specific diseases
 
5,219
 
$16,906,343,215
Cancer nonprofits
 
5,146
 
$8,386,107,911
Organ disease nonprofits
 
2,998
 
$5,561,747,655
Medical specialty organizations
 
2,467
 
$10,633,223,157
Disease and disorder focused professional societies
 
1,845
 
$2,026,288,057
Autism awareness organizations
 
1,811
 
$3,404,041,817
Organizations supporting multiple disease or disorder focused nonprofits
 
1,543
 
$164,974,615
Genetic disorder and birth defect organizations
 
1,360
 
$3,699,004,856
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations
 
1,138
 
$1,586,704,016
HIV / AIDS focused organizations
 
896
 
$11,298,701,635
Showing 10 of 17 categories

Job trends for Disease-focused nonprofits

Employees per organizationNumber of organizations
0
 
4,205
1-10
 
2,475
11-25
 
849
26-100
 
691
101 to 1,000
 
327
1,000+
 
32
Key takeaways for employment stats:

Sizes of disease-focused nonprofits

Revenues per organizationNumber of organizations
< $250k
 
7,035
$250k to $1M
 
2,764
$1M to $5M
 
1,833
$5M to $25M
 
647
$25M to $100M
 
167
$100M+
 
67
Key takeaways for revenue stats:

Directory of disease-focused nonprofits

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1-20 of 23,689

National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD), organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
Revenue
$34.6m
Assets
$66.9m
Employees
116
EIN
13-3223946
IRS type
501(c)(3)

American Academy of Dermatology

American Academy of Dermatology advances dermatologic care through education, research, advocacy, and community engagement while supporting over 20,500 board-certified dermatologists in the U.S.
Revenue
$53.6m
Assets
$128.5m
Employees
228
EIN
41-0793046
IRS type
501(c)(3)

American Academy of Implant Dentistry (AAID)

American Academy of Implant Dentistry (AAID) provides bonafide credentials and comprehensive oral implant education.
Revenue
$5.2m
Assets
$14.2m
Employees
15
EIN
41-6044864
IRS type
501(c)(6)

American Society of Anesthesiologists (ASA)

The American Society of Anesthesiologists (ASA) is an educational, research and scientific society with more than 50,000 members organized to raise and maintain the standards of the medical practice of anesthesiology.
Revenue
$58.5m
Assets
$114.7m
Employees
186
EIN
36-2181944
IRS type
501(c)(6)

The American Geriatrics Society

The American Geriatrics Society improves the health and quality of life for older people through education, grants, and special projects.
Revenue
$9.9m
Assets
$14.7m
Employees
24
EIN
13-1950856
IRS type
501(c)(3)

National Kidney Foundation of Illinois

The National Kidney Foundation of Illinois improves the health and well-being of people at risk for or affected by kidney disease through prevention, education and empowerment.
Revenue
$3.2m
Assets
$7.5m
Employees
17
EIN
36-6009226
IRS type
501(c)(3)

American College of Gastroenterology (ACG)

The mission of the College is to serve the evolving needs of physicians in the delivery of high quality, scientifically sound, humanistic, ethical, and cost-effective health care to gastroenterology patients.
Revenue
$29.0m
Assets
$316.9m
Employees
43
EIN
13-1883814
IRS type
501(c)(3)

American Association of Blood Banks (AABB)

American Association of Blood Banks (AABB) advances transfusion medicine and biotherapies by setting standards, accrediting programs, educating professionals, and supporting research to improve safety.
Revenue
$19.6m
Assets
$23.3m
Employees
69
EIN
36-2384118
IRS type
501(c)(3)

Radiological Society of North America (RSNA)

RSNA promotes excellence in patient care and health care delivery through education, research and technologic innovation. Promoting and developing the highest standards of radiology and related science through education and research.
Revenue
$68.5m
Assets
$218.3m
Employees
294
EIN
15-0539115
IRS type
501(c)(3)

American Brain Tumor Association

The American Brain Tumor Association supports research, education, and advocacy, aiming to improve the lives of those affected by brain tumors through free patient services.
Revenue
$6.8m
Assets
$9.8m
Employees
42
EIN
23-7286648
IRS type
501(c)(3)

Vince Lombardi Cancer Foundation (VLCF)

VLCF raises funds for cancer research and care at Lombardi Cancer Clinics, located in Aurora Health Care facilities throughout eastern Wisconsin.
Revenue
$708.1k
Assets
$864.5k
Employees
0
EIN
23-7120909
IRS type
501(c)(3)

TSC Alliance

Founded in 1974, Tuberous Sclerosis Alliance (TS Alliance) provides information, access to resources and a place for hope for those affected by tuberous sclerosis complex.
Revenue
$9.8m
Assets
$18.0m
Employees
26
EIN
95-3018799
IRS type
501(c)(3)

Lupus Foundation of America

The Lupus Foundation of America is dedicated to improving the quality of life for all people affected by lupus through a comprehensive program of research, education, and advocacy.
Revenue
$15.0m
Assets
$11.4m
Employees
76
EIN
43-1131436
IRS type
501(c)(3)

American Society of Hematology (ASH)

To further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology.
Revenue
$112.4m
Assets
$392.3m
Employees
162
EIN
23-7080568
IRS type
501(c)(3)

American College of Physicians (ACP)

American College of Physicians advocates for internists and patients, strengthens care access, delivers CME/MOC education, publishes influential journals, and supports quality improvement worldwide.
Revenue
$72.5m
Assets
$209.6m
Employees
342
EIN
23-1520302
IRS type
501(c)(3)

24 Foundation

24 Foundation aims to inspire and engage communities to make an immediate impact on the lives of people affected by cancer, with an ultimate vision of providing cancer navigation and survivorship for all.
Revenue
$2.5m
Assets
$1.9m
Employees
3
EIN
20-3768277
IRS type
501(c)(3)

Foundation Fighting Blindness (FFB)

The Foundation Fighting Blindness is dedicated to funding innovative research to find preventions, treatments, and cures for inherited retinal degenerative diseases that lead to blindness and affect more than 10 million people in the United States.
Revenue
$36.6m
Assets
$110.9m
Employees
96
EIN
23-7135845
IRS type
501(c)(3)

International Association for the Study of Lung Cancer

International Association for the Study of Lung Cancer advocates for lung cancer through education, research, and collaboration to enhance prevention and patient care.
Revenue
$28.6m
Assets
$35.6m
Employees
43
EIN
20-0499338
IRS type
501(c)(3)

Society of Interventional Radiology (SIR)

Society of Interventional Radiology is a national organization of physicians, scientists and allied health professionals dedicated to improving public health through disease management and minimally invasive, image-guided therapeutic interventions.
Revenue
$15.1m
Assets
$16.1m
Employees
67
EIN
39-1345331
IRS type
501(c)(6)

American Academy of Otolarngic Allergy Foundation

The American Academy of Otolarngic Allergy Foundation seeks to advance allergy research and knowledge for the treatment of otolaryngic conditions.
Revenue
$545.4k
Assets
$9.6m
Employees
0
EIN
22-2480270
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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