Grantee | Grant description | Grant year | Amount |
---|---|---|---|
Psychogenic Research | CMT Research | 2022-12 | $1,893,720 |
University of Miami (UM) | CMT Research | 2022-12 | $183,493 |
Regents of the University of California / Office of the President | CMT Research | 2022-12 | $138,852 |
...and 4 more grants made |
Grantmaker | Grantmaker tax period | Description | Amount |
---|---|---|---|
Fidelity Investments Charitable Gift Fund | 2022-06 | For Grant Recipient's Exempt Purposes | $539,650 |
Skylight Charitable Trust | 2022-12 | General Support | $500,000 |
Vanguard Charitable Endowment Program | 2022-06 | For Recipient's Exempt Purpose | $114,000 |
...and 43 more grants received totalling $1,500,920 |
Name | Title | Compensation | Date of data |
---|---|---|---|
Jon pastor | Interim Chief Executive Officer | 2023-04-14 | |
Jeana Sweeney | Chief Engagement and Gift Officer | $125,538 | 2022-12-31 |
Kimberly Magee | Director of Finance and Administration | $94,769 | 2023-08-21 |
Sarah Kaider | Digital Marketing Manager | 2023-04-14 | |
Jonah Berger | National Youth Programs Manager | 2023-04-14 | |
...and 6 more key personnel |
Revenues | FYE 12/2022 |
---|---|
Total grants, contributions, etc. | $8,795,013 |
Program services | $1,581,813 |
Investment income and dividends | $16,571 |
Tax-exempt bond proceeds | $0 |
Royalty revenue | $0 |
Net rental income | $0 |
Net gain from sale of non-inventory assets | $-673 |
Net income from fundraising events | $0 |
Net income from gaming activities | $0 |
Net income from sales of inventory | $0 |
Miscellaneous revenues | $6,216 |
Total revenues | $10,398,940 |
Fiscal year ending | Date received by IRS | Form | PDF link |
---|---|---|---|
2022-12 | 2023-08-21 | 990 | View PDF |
2021-12 | 2022-08-04 | 990 | View PDF |
2020-12 | 2021-06-23 | 990 | View PDF |
2019-12 | 2021-01-21 | 990 | View PDF |
2018-12 | 2019-10-12 | 990 | View PDF |
...and 9 more Form 990s |
Organization | Type | Location | Revenue |
---|---|---|---|
Parent Project Muscular Dystrophy (PPMD) | 501(c)(3) | Washington, DC | $10,753,014 |
LiveLikeLou Foundation | 501(c)(3) | Oxford, OH | $2,796,333 |
The Cure Starts Now | 501(c)(3) | Cincinnati, OH | $5,231,630 |
Project Als | 501(c)(3) | New York, NY | $3,596,233 |
Alpha-1 Foundation Alpha One Foundation | 501(c)(3) | Miami, FL | $10,890,084 |
The Als Association - Amyotrophic Lateral Sclerosis Association | 501(c)(3) | Tampa, FL | $3,983,976 |
Lymphoma Research Foundation (LRF) | 501(c)(3) | New York, NY | $14,709,927 |
Women's International Zionist Organization (WIZO) | 501(c)(3) | New York, NY | $8,135,442 |
Lupus Research Alliance (ALR) | 501(c)(3) | New York, NY | $22,699,491 |
Creutzfeldt-Jakob Disease Foundation | 501(c)(3) | Akron, OH | $2,861,917 |
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