EIN 22-2480896

Charcot-Marie-Tooth Association (CMTA)

IRS 501(c) type
501(c)(3)
Num. employees
12
Year formed
1983
Most recent tax filings
2022-12-01
Description
The mission of Charcot-Marie-Tooth Association is to support the development of new drugs to treat CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure.
Total revenues
$10,398,940
2022
Total expenses
$6,545,390
2022
Total assets
$9,861,023
2022
Num. employees
12
2022

Program areas at CMTA

Cmta awards research fellowships and grants for research on Charcot-Marie-Tooth disease. It also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy. It uses the services of a medical research consultant to oversee the selection of the recipients of the research funding and to write the grants and contracts with these researchers.
Cmta organizes and conducts support groups, conferences and educational webinars for patients, their families and medical practitioners to share knowledge and promote awareness of Charcot-Marie-Tooth disease. Cmta also publishes a bi-monthly newsletter and other educational publications which are available to the public. Cmta also maintains a website for patients, their families and medical practitioners to assist in understanding and treating Charcot-Marie-Tooth disease.

Grants made by CMTA

GranteeGrant descriptionAmount
Psychogenic ResearchCMT Research$1,893,720
University of Miami (UM)CMT Research$183,493
Regents of the University of California / Office of the PresidentCMT Research$138,852
...and 4 more grants made

Who funds Charcot-Marie-Tooth Association (CMTA)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$539,650
Skylight Charitable TrustGeneral Support$500,000
Vanguard Charitable Endowment ProgramFor Recipient's Exempt Purpose$114,000
...and 43 more grants received totalling $1,500,920

Personnel at CMTA

NameTitleCompensation
Jon pastorInterim Chief Executive Officer
Jeana SweeneyChief Engagement and Gift Officer$125,538
Kimberly MageeDirector of Finance and Administration$94,769
Sarah KaiderDigital Marketing Manager
Jonah BergerNational Youth Programs Manager
...and 6 more key personnel

Financials for CMTA

RevenuesFYE 12/2022
Total grants, contributions, etc.$8,795,013
Program services$1,581,813
Investment income and dividends$16,571
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-673
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$6,216
Total revenues$10,398,940

Form 990s for CMTA

Fiscal year endingDate received by IRSFormPDF link
2022-122023-08-21990View PDF
2021-122022-08-04990View PDF
2020-122021-06-23990View PDF
2019-122021-01-21990View PDF
2018-122019-10-12990View PDF
...and 9 more Form 990s
Data update history
October 25, 2023
Received grants
Identified 2 new grant, including a grant for $12,265 from American Endowment Foundation
October 5, 2023
Updated personnel
Identified 1 new personnel
October 4, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 19, 2023
Received grants
Identified 21 new grant, including a grant for $41,202 from American Online Giving Foundation
August 17, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelReceives government fundingTax deductible donations
General information
Address
8 S Garfield Ave
Glenolden, PA 19036
Metro area
Philadelphia-Camden-Wilmington, PA-NJ-DE-MD
Website URL
cmtausa.org/ 
Phone
(610) 499-9264
Facebook page
CMTAssociation 
Twitter profile
@cmtastar 
IRS details
EIN
22-2480896
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1983
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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