Organizations focused on specific diseases

Name: Top 20 Specific disease focused organizations
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

There are 5,119 specific disease focused organizations in the United States. Combined, these specific disease focused organizations employ 72,456 people, earn more than $16 billion in revenue each year, and have assets of $18 billion.

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List of specific disease focused organizations
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Types of specific disease focused organizations

Nonprofit type	Number	Employees	Revenues	Assets
Organizations focused on specific diseases	5,119	72,456	$16,132,592,286	$18,095,900,988
Autism awareness organizations	1,803	35,052	$3,223,200,775	$2,529,381,378
HIV / AIDS focused organizations	889	25,879	$11,159,063,394	$13,081,415,732
Alzheimer's disease organizations	349	3,997	$667,901,066	$884,858,446

Showing 4 of 4 categories

Job trends for Specific disease focused organizations

Employees per organization	Number of organizations
0	726
1-10	541
11-25	260
26-100	283
101 to 1,000	130
1,000+	8

Key takeaways for employment stats:

Employment in Specific disease focused organizations is driven by large organizations like Aids Healthcare Foundation (AHF), Developmental Disabilities Institute (DDI), Alzheimer's Association, Quality Services for the Autism Community (QSAC), and New England Center for Children (NECC).
The largest employers tend to be autism organizations, hiv / aids organizations, specific disease focused organizations, and alzheimer's organizations.

Sizes of specific disease focused organizations

Revenues per organization	Number of organizations
< $250k	1,543
$250k to $1M	572
$1M to $5M	467
$5M to $25M	205
$25M to $100M	52
$100M+	17

Key takeaways for revenue stats:

Large organizations like The Global Fund, Aids Healthcare Foundation (AHF), North Los Angeles County Regional Center (NLACRC), Pharmacy4humanity, and CAN Community Health earn the majority of revenues among nonprofits in Specific disease focused organizations.
Organizations with less than $1 million in revenue account for 2.5% of combined nonprofit revenues, whereas organizations in Specific disease focused organizations with more than $100 million account for 63.1% of nonprofit earnings.
The highest earning organizations tend to be hiv / aids organizations, autism organizations, specific disease focused organizations, and alzheimer's organizations.

Directory of specific disease focused organizations

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1-20 of 5,119

TSC Alliance

Founded in 1974, Tuberous Sclerosis Alliance (TS Alliance) provides information, access to resources and a place for hope for those affected by tuberous sclerosis complex.

Revenue

$9.8m

Assets

$18.0m

Employees

EIN

95-3018799

IRS type

501(c)(3)

AIDS United

AU's mission is to end the AIDS epidemic within the US. We seek to achieve our mission through strategic grantmaking initiatives that cover a broad range of areas including access to care, advocacy, and syringe access.

Revenue

$13.9m

Assets

$9.5m

Employees

EIN

52-1706646

IRS type

501(c)(3)

Lupus Foundation of America

The Lupus Foundation of America is dedicated to improving the quality of life for all people affected by lupus through a comprehensive program of research, education, and advocacy.

Revenue

$15.0m

Assets

$11.4m

Employees

EIN

43-1131436

IRS type

501(c)(3)

Gay Men's Health Crisis

Gay Men's Health Crisis combats the AIDS epidemic, providing vital services like advocacy, testing, mental health support, housing assistance, and workforce development.

Revenue

$38.7m

Assets

$113.6m

Employees

239

EIN

13-3130146

IRS type

501(c)(3)

Aids Foundation of Chicago

Aids Foundation of Chicago (AFC) mobilizes communities to create equity and justice for people living with and vulnerable to HIV and related chronic diseases.

Revenue

$41.0m

Assets

$21.7m

Employees

194

EIN

36-3412054

IRS type

501(c)(3)

Association of Diabetes Care and Education Specialists

Adces empowers Diabetes Care & Education Specialists with innovative education & management. Liaises with non-profits, provides tools and training for best practices.

Revenue

$16.9m

Assets

$22.1m

Employees

EIN

51-0161670

IRS type

501(c)(6)

Quality Services for the Autism Community (QSAC)

Quality Services for the Autism Community (QSAC) provides person-centered services for children and adults with autism throughout New York City and Long Island.

Revenue

$120.9m

Assets

$100.6m

Employees

1,962

EIN

11-2482974

IRS type

501(c)(3)

New England Center for Children (NECC)

The New England Center for Children is a private, nonprofit autism research and education center dedicated to their mission: to transform the lives of children with autism worldwide through education, research, and technology.

Revenue

$134.9m

Assets

$94.1m

Employees

1,235

EIN

04-2708762

IRS type

501(c)(3)

San Francisco Aids Foundation (SFAF)

The San Francisco Aids Foundation's mission is the radical reduction of new infections in San Francisco because we refuse to accept HIV as inevitable.

Revenue

$44.3m

Assets

$43.8m

Employees

267

EIN

94-2927405

IRS type

501(c)(3)

Aid Atlanta

AID Atlanta has been providing HIV/AIDS-related services, care, and education since its inception in 1982. The agency was established in response to the devastating impact that HIV/AIDS was having on gay men in Atlanta.

Revenue

$9.0m

Assets

$3.5m

Employees

106

EIN

58-1537967

IRS type

501(c)(3)

Aids Research Foundation amfAR

Aids Research Foundation amfAR advances AIDS research, prevention, and advocacy, raising nearly $900 million and awarding over 3,800 grants to combat the epidemic.

Revenue

$24.8m

Assets

$53.4m

Employees

EIN

13-3163817

IRS type

501(c)(3)

Community Services for Autistic Adults (CSAAC)

CSAAC is a nationally recognized leader in developing state-of-the-art services for people with autism and serves as a model for other agencies developing community-based housing, employment, educational and early intervention services.

Revenue

$95.7m

Assets

$93.6m

Employees

1,051

EIN

52-1263443

IRS type

501(c)(3)

Autism Speaks

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families through advocacy and support.

Revenue

$28.8m

Assets

$29.7m

Employees

168

EIN

20-2329938

IRS type

501(c)(3)

Alzheimer's Association

The Alzheimer's Association's mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.

Revenue

$457.2m

Assets

$523.7m

Employees

2,141

EIN

13-3039601

IRS type

501(c)(3)

American Diabetes Association (ADA)

The American Diabetes Association (ADA) is a United States-based nonprofit that seeks to educate the public about diabetes and to help those affected by it by funding research to manage, cure and prevent diabetes.

Revenue

$152.2m

Assets

$253.9m

Employees

773

EIN

13-1623888

IRS type

501(c)(3)

Shout-It-Now

Shout-it-Now educates teenagers about HIV/AIDS through its HIV/AIDS-focused organization located in Seattle, WA.

Revenue

$13.6m

Assets

$3.4m

Employees

EIN

26-0597175

IRS type

501(c)(3)

Alamo Area Resource Center (AARC)

The Alamo Area Resource Center (AARC) was founded in 1990 to assist in meeting the needs of individuals who are homeless, disabled or facing life challenging illnesses, including but not limited to HIV/AIDS in Bexar County and surrounding areas.

Revenue

$26.7m

Assets

$18.2m

Employees

EIN

74-2583211

IRS type

501(c)(3)

HIV Education & Prevention Project of Alameda County

Alameda County-based HIV prevention and education for those at increased risk of infectious diseases. Services include harm reduction and youth mentorship.

Revenue

$5.2m

Assets

$3.2m

Employees

EIN

94-3205535

IRS type

501(c)(3)

New Horizons in Autism

New Horizons in Autism and Applied Behavioral Concepts have a united mission which is to provide community based services to individuals with autism.

Revenue

$23.5m

Assets

$12.1m

Employees

506

EIN

22-2304075

IRS type

501(c)(3)

AIDS Services of Austin (ASA)

Founded in 1987, AIDS Services of Austin is the region's oldest and largest community-based organization addressing the local AIDS crisis. Annually, they provide direct care services to over 1,500 people and HIV prevention education to over 10,000 people.

Revenue

$13.8m

Assets

$59.2m

Employees

EIN

74-2440845

IRS type

501(c)(3)

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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.

This category corresponds to the "G80: Specifically Named Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.

Organizations focused on specific diseases

Types of specific disease focused organizations

Job trends for Specific disease focused organizations

Sizes of specific disease focused organizations

Directory of specific disease focused organizations

TSC Alliance

AIDS United

Lupus Foundation of America

Gay Men's Health Crisis

Aids Foundation of Chicago

Association of Diabetes Care and Education Specialists

Quality Services for the Autism Community (QSAC)

New England Center for Children (NECC)

San Francisco Aids Foundation (SFAF)

Aid Atlanta

Aids Research Foundation amfAR

Community Services for Autistic Adults (CSAAC)

Autism Speaks

Alzheimer's Association

American Diabetes Association (ADA)

Shout-It-Now

Alamo Area Resource Center (AARC)

HIV Education & Prevention Project of Alameda County

New Horizons in Autism

AIDS Services of Austin (ASA)

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