EIN 20-2329938

Autism Speaks

IRS 501(c) type
501(c)(3)
Num. employees
181
Year formed
2005
Most recent tax filings
2022-03-01
NTEE code, primary
Description
Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families through advocacy and support.
Related structure
Autism Speaks is a parent organization to a group of 2 other organizations.
Also known as...
Autism Speaks Incorporated
Total revenues
$46,771,653
2022
Total expenses
$44,122,642
2022
Total assets
$47,834,408
2022
Num. employees
181
2022

Program areas at Autism Speaks

We increase knowledge through research to deepen our understanding of Autism and lead to advancements in Autism diagnosis and personalized healthcare. Connected families in 50 states and 37 countries with resources and access to Autism experts. Launched two research studies to improve precision Autism care and early identification. Hosted a thought leadership summit on challenging behaviors to develop programs and policies for better systems of care for autistic people with severe and harmful behaviors. Released the very first covid-19 and Autism health report supporting successful public health efforts for greater funding for covid-19 relief and vaccine education.
Aided more than 1.6 million people. Autism response team provided individualized support to over 87,000 people. Provided 17 new translated resources, downloaded 25,000 times by spanish-speaking community. Led regulatory charge for access to all evidenced based Autism therapies for medicaid enrolled children. Our workplace inclusion now (win) initiative engaged over 5000 autistic job seekers and employers at events. Over 6000 jobseekers accessed the new navigating differences in the workplace course. Funded $1.6 million in grants to support next gen Autism science leaders working to develop models of care.
WE ARE STEADFAST IN OUR COMMITMENT TO IMPROVE LIFELONG OUTCOMES AND INCREASE UNDERSTANDING AND ACCEPTANCE OF PEOPLE WITH AUTISM. LAUNCHED e-CAREGIVERS SKILLS TRAINING ENABLING UNDERSERVED FAMILIES TO BUILD THEIR AUTISTIC CHILD'S COMMUNICATION AND BEHAVIOR SKILLS. SUCCESSFULLY ADVOCATED FOR STATE LICENCING LAWS TO PROVIDE PEOPLE WITH AUTISM GREATER ACCESS TO MEDICALLY NECESSARY INTERVENTIONS. ENGAGED 2.8 MILLION PEOPLE ON SOCIAL MEDIA PLATFORMS WHERE WE PROVIDED RESOURCES AND A SUPPORTIVE ENVIRONMENT FOR AUTISTIC PEOPLE TO SHARE THEIR STORIES. EDUCATED OVER 2100 PEOPLE ON FEDERAL AND STATE POLICY CHANGES AND ACCESSING RESOURCES.

Grants made by Autism Speaks

GranteeGrant descriptionAmount
Stanford University / The Board of Trustees of the Leland Stanford Junior UniversityScience & Research$265,809
Emory UniversityScience & Research$246,906
United States Fund for Unicef$210,000
...and 28 more grants made totalling $2,930,884

Who funds Autism Speaks

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Solomon R and Rebecca D Baker FoundationFunding for Recreation and Research$2,565,850
American Online Giving FoundationGeneral Support$601,854
Vanguard Charitable Endowment ProgramFor Recipient's Exempt Purpose$519,000
...and 289 more grants received totalling $8,734,409
Federal funding details
Federal agencyProgram nameAmount
Department of Health and Human ServicesTHE AUTISM GENETIC RESOURCE EXCHANGE PROGRAM$519,546
Department of Health and Human ServicesTHE AUTISM TREATMENT NETWORK$328,199
Department of Health and Human ServicesTHE AUTISM TREATMENT NETWORK$283,422
...and 2 more federal grants / contracts

Personnel at Autism Speaks

NameTitleCompensation
Angela GeigerPresident and Chief Executive Officer / Chief Executive Officer / President$651,101
Keith WargoPresident and Chief Executive Officer$108,672
Joseph T VanyoChief Operating Officer$293,326
Lisa GoringChief Strategic Initiatives and Innovation Officer$278,519
Andy ShihChief Science Officer / Senior Vice President Public Health and Inclusion / Senior Vice President , Public Health and Inclusion / Senior Vice President Public Health Research / St Public Health Research / Vice President Scientific Affairs$269,184
...and 16 more key personnel

Financials for Autism Speaks

RevenuesFYE 03/2022
Total grants, contributions, etc.$46,662,343
Program services$0
Investment income and dividends$5,064
Tax-exempt bond proceeds$0
Royalty revenue$62,299
Net rental income$0
Net gain from sale of non-inventory assets$894
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$41,053
Total revenues$46,771,653

Form 990s for Autism Speaks

Fiscal year endingDate received by IRSFormPDF link
2022-032023-01-05990View PDF
2021-032021-12-16990View PDF
2020-032021-04-15990View PDF
2020-032021-04-12990View PDF
2019-032019-11-04990View PDF
...and 10 more Form 990s

Organizations like Autism Speaks

OrganizationLocationRevenue
Autism Society of North CarolinaRaleigh, NC$24,000,165
National Multiple Sclerosis SocietyNew York, NY$171,945,464
The Faison CenterRichmond, VA$21,070,606
Epilepsy FoundationBowie, MD$21,897,167
Susan G KomenDallas, TX$111,261,456
ALS Association (ALS)Arlington, VA$39,792,803
Gay Men's Health CrisisNew York, NY$21,058,080
Lupus Foundation of AmericaWashington, DC$15,023,543
National Kidney Foundation (NKF)New York, NY$49,574,913
Parkinsons Disease Foundation Incorporated (PDF)Miami, FL$50,273,391
Data update history
June 20, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 17, 2023
Updated personnel
Identified 2 new personnel
June 13, 2023
Used new vendors
Identified 1 new vendor, including
May 6, 2023
Received grants
Identified 1 new grant, including a grant for $1,000 from The Mitchell and Louis Shulman Charitable Trust
April 18, 2023
Used new vendors
Identified 2 new vendors, including , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disordersAutism
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelReceives government fundingEndowed supportCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
1060 State Rd
Princeton, NJ 08540
Metro area
Trenton-Princeton, NJ
Website URL
autismspeaks.org/ 
Phone
(888) 288-4762
Facebook page
autismspeaks 
Twitter profile
@autismspeaks 
IRS details
EIN
20-2329938
Fiscal year end
March
Taxreturn type
Form 990
Year formed
2005
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G84: Autism
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Parent of group exemption
Central organization
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