EIN 13-6193105

Crohn's and Colitis Foundation (CCFA)

IRS 501(c) type
Num. employees
Year formed
Most recent tax filings
NTEE code, primary
CCFA's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases.
Also known as...
Crohns and Colitis Foundation of America
Total revenues
Total expenses
Total assets
Num. employees

Program areas at CCFA

Since its inception, the Crohn's & Colitis Foundation has provided more than $475 million for research on the treatment and cures of ibd. The Foundation funds a set of priority research initiatives: multi-institutional, multi-disciplinary, collaborative research projects targeting areas of science with a high probability of advancing treatment. The Foundation has defined itself by sponsoring the best and brightest researchers resulting in groundbreaking studies and research initiatives to advance the understanding and treatment of inflammatory bowel diseases ("ibd"). (continued in schedule o)the Foundation's research portfolio is a combination of basic, translational, and clinical research. Designed to cut years off the research process, ibd plexus, the Foundation's innovative research platform, is the single largest ibd database in the us. It currently provides researchers with data from over 25,000 patients, including 250,000 biosamples (blood, stool, and intestinal tissue).the Foundation leads the way in new, critically important areas of ibd research, and accelerating novel therapies and innovative products that address unmet patient needs. In 2020, the Foundation launched the most extensive ibd-focused precision nutrition effort, to better understand the direct impact that food may have in the management of ibd and on patient quality of life. The Foundation also launched the surgical research network, our first-ever coordinated-funding effort to study surgical outcomes in ibd, with over 50 centers participating.
The Crohn's & Colitis Foundation provides information and education for the millions of ibd patients and their loved ones through a variety of channels at the national and local level. Webcasts, support groups, ibd help center, and printed materials provide accurate and up-to-date information. The Foundation also offers professional education through our two scientific journals, inflammatory bowel diseases and Crohn's & Colitis 360, as well as through health professional workshops, and its annual Crohn's & Colitis congress conference. In a recent impact study, over 85% of patients connected with the Foundation stated that the Foundation has had a positive impact on their ibd journey. These patients also reported better symptom control than non-foundation connected (cotinued in schedule o) patients. In the past year, the Foundation launched a public service awareness campaign to increase familiarity with ibd, and educate people experiencing symptoms about the importance of seeing a specialist to get diagnosed faster and reduce suffering.

Grants made by CCFA

GranteeGrant descriptionAmount
Vanderbilt University Medical CenterResearch$1,017,114
Regents University of California Los AngelesResearch$692,063
Dartmouth-Hitchcock ClinicResearch$675,241
...and 41 more grants made totalling $9,796,915

Who funds Crohn's and Colitis Foundation (CCFA)

Grants from foundations and other nonprofits
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$1,700,954
The Leona M and Harry B Helmsley Charitable TrustSupport Junior Scientists To Establish Careers in Ibd Research.$1,067,400
Seattle FoundationTo Support Ibd Ventures Incubator$1,000,000
...and 484 more grants received totalling $13,404,347

Personnel at CCFA

Michael OssoPresident and Chief Executive Officer$653,016
Robert TerritoChief Financial Officer and Chief Operating Officer$237,843
Sharon LungrinChief Operating Officer$118,178
Judy HoffsteinChief Marketing and Communications Officer$253,433
Rohit SuriChief Technology Officer$298,668
...and 23 more key personnel

Financials for CCFA

RevenuesFYE 12/2022
Total grants, contributions, etc.$73,149,330
Program services$7,296,231
Investment income and dividends$384,080
Tax-exempt bond proceeds$0
Royalty revenue$795,569
Net rental income$0
Net gain from sale of non-inventory assets$-414,914
Net income from fundraising events$-402,785
Net income from gaming activities$402,785
Net income from sales of inventory$0
Miscellaneous revenues$280,927
Total revenues$81,491,223

Form 990s for CCFA

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-13990View PDF
2021-122022-11-14990View PDF
2020-122021-11-12990View PDF
2019-122021-04-05990View PDF
2018-122020-02-10990View PDF
...and 11 more Form 990s
Data update history
February 3, 2024
Received grants
Identified 158 new grant, including a grant for $1,000,000 from Seattle Foundation
December 24, 2023
Posted financials
Added Form 990 for fiscal year 2022
December 24, 2023
Updated personnel
Identified 6 new personnel
December 23, 2023
Used new vendors
Identified 3 new vendors, including , , and
October 26, 2023
Received grants
Identified 36 new grant, including a grant for $486,770 from The Blackbaud Giving Fund
Nonprofit Types
Grantmaking organizationsDisease research fundraisersProfessional associationsDisease-focused nonprofitsHeadquarter / parent organizationsCharities
HealthEducationDiseases and disordersMedical disciplines
Political advocacyConducts researchLobbyingFundraising eventsOperates internationallyNational levelReceives government fundingCommunity engagement / volunteeringTax deductible donations
General information
733 Third Ave 510
New York, NY 10017
Metro area
New York-Newark-Jersey City, NY-NJ-PA
Website URL
(800) 932-2423
Facebook page
Twitter profile
IRS details
Fiscal year end
Taxreturn type
Form 990
Year formed
Eligible to receive tax-deductible contributions (Pub 78)
NTEE code, primary
G90: Medical Disciplines
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
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