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Durham disease-focused nonprofits

There are 68 medical disease and disorder focused nonprofits in the greater Durham metro area, including the cities of Durham and Chapel Hill. Combined, these Durham metro disease-focused nonprofits employ 275 people, earn more than $63 million in revenue each year, and have assets of $134 million.
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Types of disease-focused nonprofits in Durham

Nonprofit typeNumberRevenues
Organizations focused on specific diseases
 
18
 
$11,437,297
Cancer nonprofits
 
14
 
$10,502,074
Medical specialty organizations
 
9
 
$453,948
Organ disease nonprofits
 
8
 
$434,565
Disease and disorder focused professional societies
 
4
 
$24,112,584
Heart and circulatory disease organizations
 
4
 
$417,024
Genetic disorder and birth defect organizations
 
4
 
$5,478,864
Autism awareness organizations
 
4
 
$7,148,487
Organizations supporting multiple disease or disorder focused nonprofits
 
3
 
$0
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations
 
3
 
$8,924,095
Showing 10 of 14 categories

Job trends for Durham disease-focused nonprofits

Employees per organizationNumber of organizations
0
 
14
1-10
 
7
11-25
 
8
26-100
 
2
101 to 1,000
 
0
1,000+
 
0
Key takeaways for employment stats:

Sizes of disease-focused nonprofits in Durham

Revenues per organizationNumber of organizations
< $250k
 
23
$250k to $1M
 
11
$1M to $5M
 
7
$5M to $25M
 
5
$25M to $100M
 
0
$100M+
 
0
Key takeaways for revenue stats:

Directory of disease-focused nonprofits in Durham

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1-20 of 68

American Board of Orthopaedic Surgery (ABOS)

ABOS's vision is to improve the quality of care and outcomes for patients, the ABOS will establish and maintain high standards for competence and lifelong education of board certified orthopaedic surgeons.
Revenue
$11.7m
Assets
$57.3m
Employees
15
EIN
36-6000057
IRS type
501(c)(6)

Chordoma Foundation

The Chordoma Foundation drives chordoma cure research, improves care, and supports patients and families through education, navigation, peer support, and healthcare improvement.
Revenue
$5.4m
Assets
$11.4m
Employees
16
EIN
20-8423943
IRS type
501(c)(3)

MiracleFeet

MiracleFeet expands access to low-cost clubfoot treatment by supporting local partners and health systems, preventing disability and transforming children's futures worldwide.
Revenue
$8.7m
Assets
$16.8m
Employees
22
EIN
27-3764203
IRS type
501(c)(3)

American Society of Echocardiography Incorporated

American Society of Echocardiography Incorporated leads cardiovascular ultrasound professionals, sets practice standards, advances education and research, advocates for members, and publishes a monthly journal.
Revenue
$10.5m
Assets
$13.5m
Employees
50
EIN
31-0899106
IRS type
501(c)(6)

Voices Together

Our mission is to empower individuals who are autistic or otherwise neurodivergent to transform their own lives, through a greater ability to express and advocate for themselves, enabling increased communication, social/emotional learning and previously u....
Revenue
$6.9m
Assets
$5.2m
Employees
71
EIN
20-4612388
IRS type
501(c)(3)

First In Families of North Carolina

First In Families of North Carolina assists individuals with disabilities and their families in achieving self-defined goals through support, resources, and community engagement.
Revenue
$2.2m
Assets
$1.2m
Employees
23
EIN
46-0471896
IRS type
501(c)(3)

National MPS Society

National MPS Society supports curing and advocating for MPS and ML, providing family support, educational resources, and advocacy efforts.
Revenue
$2.1m
Assets
$3.9m
Employees
12
EIN
11-2734849
IRS type
501(c)(3)

Kay Yow Cancer Foundation

The Kay Yow Cancer fund is a 501(c)(3) charitable organization committed to finding an answer in the fight against women's cancers through raising money for scientific research and related programs, assisting the underserved, and unifying people for a com....
Revenue
$2.8m
Assets
$6.7m
Employees
13
EIN
26-1789695
IRS type
501(c)(3)

Healing with CAARE

Healing with CAARE promotes education and transitional housing, offering HIV awareness, peer support, substance abuse counseling, and COVID-19 training for community health workers.
Revenue
$832.0k
Assets
$568.9k
Employees
13
EIN
56-1963988
IRS type
501(c)(3)

American Cleft Palate - Craniofacial Association

ACPA partners with families, patients, and professionals to improve the care, education, research, and support of those living with craniofacial conditions.
Revenue
$1.7m
Assets
$4.9m
Employees
6
EIN
43-0793521
IRS type
501(c)(3)

American Sexually Transmitted Diseases Association

The American Sexually Transmitted Diseases Association promotes STI research, fosters leadership, recognizes contributors, and connects professionals through conferences and a peer-reviewed journal.
Revenue
$1.8m
Assets
$3.3m
Employees
0
EIN
23-7403520
IRS type
501(c)(3)

Gildin-Segar Family Foundation

Private foundation in Chapel Hill, NC funding general donations to support Durham Academy and pediatric cancer research. Made two grants last year.
Revenue
$1.5m
Assets
$1.7m
Employees
0
EIN
87-3919811
IRS type
501(c)(3)

Be Loud Sophie Foundation

The Be Loud Sophie Foundation supports adolescent and young adult cancer patients by enhancing their dignity, identity, and independence through programs at UNC Hospitals.
Revenue
$984.3k
Assets
$621.2k
Employees
0
EIN
46-4891415
IRS type
501(c)(3)

Fore Batten Foundation

Fore Batten Foundation funds research to cure rare diseases, including juvenile Batten disease and compassionately supports the Batten community.
Revenue
$1.1m
Assets
$383.1k
Employees
1
EIN
82-2661656
IRS type
501(c)(3)

Als Together

Als Together is an organizations supporting multiple disease or disorder focused nonprofit in Durham, NC that was founded in 2016.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
81-1459876
IRS type
501(c)(3)

Foundation for Effective Communication

Foundation for Effective Communication is a medical specialty organization in Chapel Hill, NC that was founded in 2016.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
46-3218055
IRS type
501(c)(3)

Better Blood Project

Better Blood Project is an organizations supporting multiple disease or disorder focused nonprofit in Durham, NC that was founded in 2023.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
93-1719776
IRS type
501(c)(3)

The Carolina Headache Foundation

The Carolina Headache Foundation strives to enhance the well-being of individuals with headaches through promoting research, educating, and providing excellent clinical care.
Revenue
$9,334
Assets
$53.1k
Employees
N/A
EIN
27-0549557
IRS type
501(c)(3)

Heart 2 Heart Collaborative

Heart 2 Heart Collaborative is a heart or circulatory disease organization in Durham, NC that was founded in 2015.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-5190471
IRS type
501(c)(3)

See Rare Run

See Rare Run is an organizations supporting a single disease or disorder focused nonprofit in Chapel Hill, NC that was founded in 2019.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
84-2548254
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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