EIN 82-2661656

Fore Batten Foundation

IRS 501(c) type
Num. employees
Year formed
Most recent tax filings
The Fore Batten Foundation aims to educate the public and raise funding for research towards curing rare diseases, including juvenile Batten disease. They fund pioneering research and support the Batten community tirelessly, giving affected children the best possible life and spreading awareness about the need for new treatments. The organization also grants funds to tax-exempt 501(c)(3) organizations that advance their objectives of promoting awareness of Batten disease and creating opportunities for scientists to come together and fund innovation.
Total revenues
Total expenses
Total assets
Num. employees

Program areas at Fore Batten Foundation

This organization made grants to several tax-exempt 501(c)(3) organizations that advance the objectives of this organization to promote awareness of Batten disease as well as to promote opportunities for scientists to come together to create and fund innovative research proposals to work toward a cure for Batten disease.

Grants made by Fore Batten Foundation

GranteeGrant descriptionAmount
SanfordTo Support and Promote the Pursuit of the Highest Caliber, Publishable Research (1) Relating To the Development/delivery of Quality Medical and Health Care Services, (2) Advancing Medical Or Scientific Knowledge and Skills, And/or (3) Benefiting the Education of Health Science Students, Residents, Health Professionals and the General Public$334,500
Rosalind Franklin University of Medicine and Science (RFUMS)To Fund Research of Advancing Knowledge and Creating Knowledge That Can Be Translated Into Improving the Health of the Population$259,258
University of RochesterTo Support the Research for the Purpose of the Evaluation of Photoreceptor Outer Segment Phagocytosis Function in the Retina/retinal Cells Obtained From A Porcine Model of Cln3-Batten Disease$186,753
...and 3 more grants made

Who funds Fore Batten Foundation

Grants from foundations and other nonprofits
Mightycause Charitable FoundationUnrestricted$21,600
National Christian Foundation / Natl Christian Charitable FDN IncSupport$6,100
...and 2 more grants received

Personnel at Fore Batten Foundation

Karen KahnPresident and Chief Executive Officer$0
Marlena KahnSecretary$0
Chad McGinnChief Financial Officer and Treasurer$0

Financials for Fore Batten Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,576,666
Program services$96
Investment income and dividends$2,876
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-127,035
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$1,452,603

Form 990s for Fore Batten Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-15990View PDF
2021-122022-08-12990View PDF
2020-122021-11-08990View PDF
2019-122021-02-24990View PDF
2018-122020-02-10990View PDF
...and 1 more Form 990
Data update history
January 9, 2024
Posted financials
Added Form 990 for fiscal year 2022
December 31, 2023
Received grants
Identified 2 new grant, including a grant for $21,600 from Mightycause Charitable Foundation
December 27, 2023
Used new vendors
Identified 1 new vendor, including
August 17, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 26, 2023
Received grants
Identified 2 new grant, including a grant for $358,438 from Mightycause Charitable Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
HealthDiseases and disorders
Provides grantsConducts researchFundraising eventsOperates internationallyFundraising races, competitions, and tournamentsTax deductible donations
General information
11312 Us 15-501 N 107-117
Chapel Hill, NC 27517
Metro area
Durham-Chapel Hill, NC
Website URL
(440) 708-6008
IRS details
Fiscal year end
Taxreturn type
Form 990
Year formed
Eligible to receive tax-deductible contributions (Pub 78)
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
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