| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Sanford | To Support and Promote the Pursuit of the Highest Caliber, Publishable Research (1) Relating To the Development/delivery of Quality Medical and Health Care Services, (2) Advancing Medical Or Scientific Knowledge and Skills, And/or (3) Benefiting the Education of Health Science Students, Residents, Health Professionals and the General Public | 2022-12 | $334,500 |
| Rosalind Franklin University of Medicine and Science (RFUMS) | To Fund Research of Advancing Knowledge and Creating Knowledge That Can Be Translated Into Improving the Health of the Population | 2022-12 | $259,258 |
| University of Rochester | To Support the Research for the Purpose of the Evaluation of Photoreceptor Outer Segment Phagocytosis Function in the Retina/retinal Cells Obtained From A Porcine Model of Cln3-Batten Disease | 2022-12 | $186,753 |
| ...and 3 more grants made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| KultureCity | 2022-12 | Donation | $23,834 |
| Mightycause Charitable Foundation | 2022-12 | Unrestricted | $21,600 |
| National Christian Foundation / Natl Christian Charitable FDN Inc | 2022-12 | Support | $6,100 |
| ...and 2 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Karen Kahn | President and Chief Executive Officer | $0 | 2023-11-15 |
| Marlena Kahn | Secretary | $0 | 2022-12-31 |
| Chad McGinn | Chief Financial Officer and Treasurer | $0 | 2019-12-31 |
| Revenues | FYE 12/2022 |
|---|---|
| Total grants, contributions, etc. | $1,576,666 |
| Program services | $96 |
| Investment income and dividends | $2,876 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $-127,035 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $1,452,603 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-12 | 2023-11-15 | 990 | View PDF |
| 2021-12 | 2022-08-12 | 990 | View PDF |
| 2020-12 | 2021-11-08 | 990 | View PDF |
| 2019-12 | 2021-02-24 | 990 | View PDF |
| 2018-12 | 2020-02-10 | 990 | View PDF |
| ...and 1 more Form 990 | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Cystinosis Research Foundation | 501(c)(3) | Irvine, CA | $3,244,975 |
| Global Foundation for Peroxisomal Disorders | 501(c)(3) | Tulsa, OK | $815,854 |
| Children's Assistive Technology Service | 501(c)(3) | Moneta, VA | $2,195,821 |
| United Cerebral Palsy Housing Development Fund Corporation | 501(c)(3) | New York, NY | $1,265,347 |
| EB Research Partnership | 501(c)(3) | New York, NY | $6,450,445 |
| Macc Fund | 501(c)(3) | Milwaukee, WI | $5,623,010 |
| Sabeswings | 501(c)(3) | Paso Robles, CA | $1,549,893 |
| Snowdrop Foundation | 501(c)(3) | Houston, TX | $727,633 |
| Alphapointe Foundation | 501(c)(3) | Kansas City, MO | $2,691,652 |
| The Mighty Oakes Heart Foundation | 501(c)(3) | Saint Louis, MO | $544,041 |
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