Program areas at American Cleft Palate - Craniofacial Association
Professional education related to clinical care and research a) to educate concerned professionals about new clinical and research information b) to provide an opportunity for the involved professionals to update their knowledge and skills of their own and related disciplines c) to create an environment that encourages interaction among multidisciplinary participants d) to publish a journal to communicate relevant information to professionals.
Outreach and alliances a) to educate the public about the importance of team care as it relates to individuals affected by facial birth defects b) to partner with allied organizations to enhance capabilities to achieve strategic objectives related to patient care.
Membership and team services a) to create and maintain a diverse network of professionals involved with clinical team care and research relating to individuals affected by Cleft lip, Cleft Palate, and other Craniofacial abnormalities b)to partner with family services to improve the quality of team care and advocate for improved patient care.
Who funds American Cleft Palate - Craniofacial Association
Grants from foundations and other nonprofits
Personnel at American Cleft Palate - Craniofacial Association
Name | Title | Compensation | Date of data |
---|
Marty Saffer | Director, Finance and Operations | | 2021-03-30 |
Charlene Bell | Development Manager | | 2021-03-26 |
Jamie L Perry Ccc-Slp | / / Communications Officer | $24,000 | 2021-12-31 |
Jamie Perry | | $24,000 | 2022-12-31 |
Scott Dailey | Treasurer | $0 | 2023-04-13 |
...and 19 more key personnel |
Financials for American Cleft Palate - Craniofacial Association
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $900,483 | $1,107,394 | -18.7% |
Program services | $693,143 | $480,245 | 44.3% |
Investment income and dividends | $79,307 | $60,630 | 30.8% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $361,446 | $35,713 | 912.1% |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $21,900 | $24,986 | -12.4% |
Miscellaneous revenues | $15,357 | $26,877 | -42.9% |
Total revenues | $2,071,636 | $1,735,845 | 19.3% |
Organizations like American Cleft Palate - Craniofacial Association
Organization | Type | Location | Revenue |
---|
National Down Syndrome Society (NDSS) | 501(c)(3) | Washington, DC | $3,651,955 |
Down Syndrome Innovations | 501(c)(3) | Shawnee Mission, KS | $1,538,198 |
Down Syndrome Association of Greater Cincinnati | 501(c)(3) | Cincinnati, OH | $2,821,991 |
Williams Syndrome Association | 501(c)(3) | Newark, NJ | $2,421,502 |
Hemophilia Foundation of Michigan | 501(c)(3) | Ypsilanti, MI | $3,850,387 |
Cystic Fibrosis Association of ND | 501(c)(3) | Bismarck, ND | $1,277,707 |
United Cerebral Palsy of Middle Tennessee | 501(c)(3) | Nashville, TN | $1,272,910 |
Spina Bifida Association of America | 501(c)(3) | Arlington, VA | $2,183,431 |
Down Syndrome Association of Central Florida | 501(c)(3) | Winter Park, FL | $775,933 |
Lone Star Bleeding Disorders Foundation | 501(c)(3) | Houston, TX | $663,733 |
Data update history
June 22, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 17, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 14, 2023
Updated personnel
Identified 5 new personnel
May 10, 2023
Updated personnel
Identified 6 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
MembershipsConducts researchReceives government fundingEndowed supportCommunity engagement / volunteeringProvides scholarshipsAuction fundraisersTax deductible donations
General information
- Address
- 1504 East Franklin St Ste 102
- Chapel Hill, NC 27514
- Metro area
- Durham-Chapel Hill, NC
- Website URL
- acpacares.org/Â
- Phone
- (919) 933-9044
IRS details
- EIN
- 43-0793521
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1974
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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