New York City disease-focused nonprofits

Name: Top 20 New York City disease-focused nonprofits
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

There are 1,851 medical disease and disorder focused nonprofits in the greater New York City metro area, including the cities of New York, Jersey City, Lakewood, Newark, New Brunswick, and White Plains within the states of New York and New Jersey. Combined, these New York City metro disease-focused nonprofits employ 36,787 people, earn more than $6 billion in revenue each year, and have assets of $7 billion.

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List of New York City disease-focused nonprofits
Categories
Employment
Revenues

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Types of disease-focused nonprofits in New York City

Nonprofit type	Number	Employees	Revenues	Assets
Organizations focused on specific diseases	498	8,802	$1,338,132,565	$2,188,583,467
Cancer nonprofits	475	725	$281,041,780	$706,691,027
Organ disease nonprofits	205	2,770	$882,548,347	$1,958,450,178
Autism awareness organizations	179	3,075	$211,138,489	$264,334,900
Medical specialty organizations	156	12,464	$2,243,371,768	$779,151,176
Organizations supporting multiple disease or disorder focused nonprofits	120	1	$5,875,273	$37,105,426
Genetic disorder and birth defect organizations	108	4,068	$326,333,141	$417,584,154
HIV / AIDS focused organizations	99	3,943	$536,441,186	$662,926,832
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations	89	7,517	$531,874,773	$496,116,032
Disease and disorder focused professional societies	73	123	$49,030,269	$98,321,328

Showing 10 of 17 categories

Job trends for New York City disease-focused nonprofits

Employees per organization	Number of organizations
0	394
1-10	198
11-25	72
26-100	57
101 to 1,000	41
1,000+	6

Key takeaways for employment stats:

Employment in New York City disease-focused nonprofits is driven by large organizations like Ahrc Nyc, Braverhood, Physician Affiliate Group of New York PC, Quality Services for the Autism Community (QSAC), and Epic Long Island.

Sizes of disease-focused nonprofits in New York City

Revenues per organization	Number of organizations
< $250k	638
$250k to $1M	186
$1M to $5M	153
$5M to $25M	79
$25M to $100M	25
$100M+	10

Key takeaways for revenue stats:

Large organizations like Physician Affiliate Group of New York PC, Ahrc Nyc, CHS Physician Partners PC, Breakthrough T1D (JDRF), and NY Presbyterian Medical GroupQueens earn the majority of revenues among nonprofits in New York City disease-focused nonprofits.
Organizations with less than $1 million in revenue account for 2.5% of combined nonprofit revenues, whereas organizations in New York City disease-focused nonprofits with more than $100 million account for 56.1% of nonprofit earnings.

Directory of disease-focused nonprofits in New York City

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1-20 of 1,851

The American Geriatrics Society

The American Geriatrics Society improves the health and quality of life for older people through education, grants, and special projects.

Revenue

$9.9m

Assets

$14.7m

Employees

EIN

13-1950856

IRS type

501(c)(3)

Lupus Research Alliance (ALR)

Lupus Research Alliance drives patient-centered lupus research from lab to clinical trials, funding collaborations to advance diagnostics, targeted treatments, and a cure.

Revenue

$18.6m

Assets

$93.3m

Employees

EIN

58-2492929

IRS type

501(c)(3)

Helen Keller Services (HKS)

HKS' mission is to enable individuals who are blind or deaf-blind live, work and thrive in their community of choice.

Revenue

$53.3m

Assets

$165.3m

Employees

489

EIN

11-1630807

IRS type

501(c)(3)

National Multiple Sclerosis Society

The National MS Society's mission is that people affected by MS can live their best lives as they stop MS in its tracks, restore what has been lost and end MS forever.

Revenue

$162.0m

Assets

$189.2m

Employees

789

EIN

13-5661935

IRS type

501(c)(3)

National Kidney Foundation (NKF)

The National Kidney Foundation is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.

Revenue

$50.1m

Assets

$51.5m

Employees

279

EIN

13-1673104

IRS type

501(c)(3)

Gay Men's Health Crisis

Gay Men's Health Crisis combats the AIDS epidemic, providing vital services like advocacy, testing, mental health support, housing assistance, and workforce development.

Revenue

$38.7m

Assets

$113.6m

Employees

239

EIN

13-3130146

IRS type

501(c)(3)

Children's Tumor Foundation

The Children's Tumor Foundation is dedicated to ending neurofibromatosis (NF), to fund research, increase public awareness, support patients and families, encourage establishment of NF clinics.

Revenue

$19.7m

Assets

$30.7m

Employees

EIN

13-2298956

IRS type

501(c)(3)

American Parkinson Disease Association (APDA)

The American Parkinson's Disease Association was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. The organization focuses its energies on research, patient support, education and raising public awareness of the disease.

Revenue

$12.1m

Assets

$35.3m

Employees

EIN

13-1962771

IRS type

501(c)(3)

Cooley's Anemia Foundation

The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major.

Revenue

$3.6m

Assets

$7.6m

Employees

EIN

11-1971539

IRS type

501(c)(3)

Parkinson's Foundation (PDF)

Parkinsons Disease Foundation Incorporated advances research, improves care, and empowers individuals affected by Parkinson's disease through resources, support, and a global community.

Revenue

$84.2m

Assets

$62.7m

Employees

202

EIN

13-1866796

IRS type

501(c)(3)

Quality Services for the Autism Community (QSAC)

Quality Services for the Autism Community (QSAC) provides person-centered services for children and adults with autism throughout New York City and Long Island.

Revenue

$120.9m

Assets

$100.6m

Employees

1,962

EIN

11-2482974

IRS type

501(c)(3)

Stony Brook Orthopedic Associates University Faculty Practice Corporation

The providers of Stony Brook Orthopaedic Associates focus on excellence in clinical care and research for the prevention, diagnosis, and treatment of all musculoskeletal injuries and disorders in adults and children.

Revenue

$46.3m

Assets

$2.9m

Employees

EIN

11-2593061

IRS type

501(c)(3)

Young Survival Coalition (YSC)

Young Survival Coalition (ysc) is the largest national organization dedicated to the critical issues unique to Young women who are diagnosed with breast cancer. Ysc offers resources, connections and outreach so women feel supported, empowered and hopeful.....

Revenue

$2.6m

Assets

$1.8m

Employees

EIN

13-4057685

IRS type

501(c)(3)

Aids Research Foundation amfAR

Aids Research Foundation amfAR advances AIDS research, prevention, and advocacy, raising nearly $900 million and awarding over 3,800 grants to combat the epidemic.

Revenue

$34.8m

Assets

$58.0m

Employees

EIN

13-3163817

IRS type

501(c)(3)

Crohn's and Colitis Foundation (CCFA)

CCFA's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases.

Revenue

$85.2m

Assets

$50.6m

Employees

372

EIN

13-6193105

IRS type

501(c)(3)

Breakthrough T1D (JDRF)

JDRF is an organizations focused on specific disease in New York, NY whose mission is: JDRF funds T1D research grants worldwide to cure, prevent and treat Type 1 Diabetes.

Revenue

$301.7m

Assets

$534.6m

Employees

688

EIN

23-1907729

IRS type

501(c)(3)

Smile Train

Smile Train empowers local medical professionals globally to provide free cleft surgery and care, transforming lives through sustainable training and education programs.

Revenue

$121.7m

Assets

$423.9m

Employees

111

EIN

13-3661416

IRS type

501(c)(3)

The Eye-Bank for Sight Restoration

The Eye-Bank for Sight Restoration is a independent, not-for-profit organization devoted to restoring sight through eye donations and cornea transplants, as well as providing ocular tissue for research into treatment and cures for other eye diseases.

Revenue

$13.6m

Assets

$89.2m

Employees

EIN

13-1623998

IRS type

501(c)(3)

North Jersey Community Research Initiative (NJCRI)

The mission of North Jersey Community Research Initiative is to empower their clients by reducing social and health disparities in the greater Newark area.

Revenue

$32.3m

Assets

$13.6m

Employees

151

EIN

52-1592616

IRS type

501(c)(3)

Hyacinth Aids Foundation

Hyacinth Aids Foundation provides direct services to those affected by HIV/AIDS in New Jersey, including medical care and prevention education.

Revenue

$15.4m

Assets

$5.5m

Employees

144

EIN

22-2648820

IRS type

501(c)(3)

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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.

This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.

New York City disease-focused nonprofits

Types of disease-focused nonprofits in New York City

Job trends for New York City disease-focused nonprofits

Sizes of disease-focused nonprofits in New York City

Directory of disease-focused nonprofits in New York City

The American Geriatrics Society

Lupus Research Alliance (ALR)

Helen Keller Services (HKS)

National Multiple Sclerosis Society

National Kidney Foundation (NKF)

Gay Men's Health Crisis

Children's Tumor Foundation

American Parkinson Disease Association (APDA)

Cooley's Anemia Foundation

Parkinson's Foundation (PDF)

Quality Services for the Autism Community (QSAC)

Stony Brook Orthopedic Associates University Faculty Practice Corporation

Young Survival Coalition (YSC)

Aids Research Foundation amfAR

Crohn's and Colitis Foundation (CCFA)

Breakthrough T1D (JDRF)

Smile Train

The Eye-Bank for Sight Restoration

North Jersey Community Research Initiative (NJCRI)

Hyacinth Aids Foundation

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