New York City disease-focused nonprofits

Name: Top 20 New York City disease-focused nonprofits
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

There are 1,545medical disease and disorder focused nonprofits in the greater New York Citymetro area, including the cities of New York, Jersey City, Lakewood, Newark, New Brunswick, and White Plains within the states of New York and New Jersey. Combined, these New York City metro disease-focused nonprofitsemploy 39,133 people, earn more than $4 billion in revenue each year, and have assets of $6 billion.

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List of New York City disease-focused nonprofits
Categories
Employment
Revenues

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Types of disease-focused nonprofits in New York City

Nonprofit type	Number	Employees	Revenues	Assets
Organizations focused on specific diseases	377	10,909	$913,636,153	$965,231,911
Cancer nonprofits	346	1,712	$694,509,764	$990,674,469
Organizations supporting multiple disease or disorder focused nonprofits	190	53	$22,317,300	$83,934,429
Organ disease nonprofits	188	3,645	$697,553,779	$1,688,600,871
Autism awareness organizations	141	6,723	$364,285,392	$309,616,916
Medical specialty organizations	120	5,724	$623,055,121	$636,040,445
HIV / AIDS focused organizations	96	3,784	$475,575,840	$530,132,346
Genetic disorder and birth defect organizations	81	11,412	$879,454,064	$1,072,086,814
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations	71	4,808	$380,918,674	$340,009,032
Disease and disorder focused professional societies	60	591	$63,512,783	$73,543,528

Showing 10 of 17categories

Job trends for New York City disease-focused nonprofits

Employees per organization	Number of organizations
0	348
1-10	195
11-25	53
26-100	46
101 to 1,000	49
1,000+	9

Key takeaways for employment stats:

Employment in New York City disease-focused nonprofits is driven by large organizations like Nysarc New York City Chapter, Braverhood, Adapt Community Network, Developmental Disabilities Institute (DDI), and Constructive Partnerships Unlimited (CP of NYS).

Sizes of disease-focused nonprofits in New York City

Revenues per organization	Number of organizations
< $250k	600
$250k to $1M	182
$1M to $5M	128
$5M to $25M	67
$25M to $100M	26
$100M+	10

Key takeaways for revenue stats:

Large organizations like The Leukemia and Lymphoma Society, Nysarc New York City Chapter, Constructive Partnerships Unlimited (CP of NYS), Adapt Community Network, and Weill Cornell Imaging at NewYork-Presbyterian earn the majority of revenues among nonprofits in New York City disease-focused nonprofits.
Organizations with less than $1 million in revenue account for 3.0% of combined nonprofit revenues, whereas organizations in New York City disease-focused nonprofits with more than $100 million account for 45.6% of nonprofit earnings.

Directory of disease-focused nonprofits in New York City

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1-20 of 1,545

The American Geriatrics Society

The American Geriatrics Society improves the health and quality of life for older people through education, grants, and special projects.

Revenue

$7.5m

Assets

$11.5m

Employees

EIN

13-1950856

IRS type

501(c)(3)

The Leukemia and Lymphoma Society Research Programs

The corporation was formed exclusively for one or more of The following objectives or purposes: to benefit, to perform The Research functions of, or to carry out The purposes of The Leukemia & Lymphoma Society, Inc. tax id 13-5644916.

Revenue

Assets

Employees

EIN

13-3470494

IRS type

501(c)(3)

Adapt Community Network

Adapt Community Network creates opportunities for disabled individuals by providing pre-schools, adult day programs, work readiness, and family support services.

Revenue

$191.5m

Assets

$395.9m

Employees

2,467

EIN

13-5654532

IRS type

501(c)(3)

National Multiple Sclerosis Society

The National MS Society's mission is that people affected by MS can live their best lives as they stop MS in its tracks, restore what has been lost and end MS forever.

Revenue

$171.9m

Assets

$185.5m

Employees

833

EIN

13-5661935

IRS type

501(c)(3)

Helen Keller Services (HKS)

HKS' mission is to enable individuals who are blind or deaf-blind live, work and thrive in their community of choice.

Revenue

$42.9m

Assets

$106.2m

Employees

382

EIN

11-1630807

IRS type

501(c)(3)

National Kidney Foundation (NKF)

The National Kidney Foundation is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.

Revenue

$49.6m

Assets

$49.3m

Employees

241

EIN

13-1673104

IRS type

501(c)(3)

Gay Men's Health Crisis

GMHC fights to end the AIDS epidemic, provides care & support services, advocacy, and legal assistance; serves 9K clients/yr.

Revenue

$21.1m

Assets

$121.6m

Employees

204

EIN

13-3130146

IRS type

501(c)(3)

American Parkinson Disease Association (APDA)

The American Parkinson's Disease Association was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. The organization focuses its energies on research, patient support, education and raising public awareness of the disease.

Revenue

$19.0m

Assets

$24.6m

Employees

EIN

13-1962771

IRS type

501(c)(3)

Cooley's Anemia Foundation

The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major.

Revenue

$3.0m

Assets

$5.1m

Employees

EIN

11-1971539

IRS type

501(c)(3)

Young Survival Coalition (YSC)

Young Survival Coalition (YSC) is the premier organization dedicated to the critical issues unique to young women who are diagnosed with breast cancer. YSC offers resources, connections and outreach so women feel supported, empowered and hopeful.

Revenue

$2.6m

Assets

$2.3m

Employees

EIN

13-4057685

IRS type

501(c)(3)

Quality Services for the Autism Community (QSAC)

Quality Services for the Autism Community (QSAC) provides person-centered services for children and adults with autism throughout New York City and Long Island.

Revenue

$93.7m

Assets

$77.9m

Employees

1,752

EIN

11-2482974

IRS type

501(c)(3)

The Leukemia and Lymphoma Society

Our mission is to cure Leukemia, Lymphoma, hodgkin's disease and myeloma, and improve The quality of life of patients and their families.

Revenue

$427.0m

Assets

$693.7m

Employees

1,177

EIN

13-5644916

IRS type

501(c)(3)

Crohn's and Colitis Foundation (CCFA)

CCFA's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases.

Revenue

$78.0m

Assets

$57.7m

Employees

376

EIN

13-6193105

IRS type

501(c)(3)

CP Bayville

The mission is to affect positively the quality of life of persons with cerebral palsy and other individuals with severe disabilities and multiple service needs.

Revenue

$10.7m

Assets

$2.5m

Employees

142

EIN

11-2623791

IRS type

501(c)(3)

Braverhood

Hand in Hand Family Services is a Brooklyn, NY based organization that provides programs and support services to developmentally disabled individuals.

Revenue

$113.5m

Assets

$56.0m

Employees

2,616

EIN

20-4157876

IRS type

501(c)(3)

EB Research Partnership

Eb Research Partnership is dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth.

Revenue

$7.7m

Assets

$20.9m

Employees

EIN

27-2417202

IRS type

501(c)(3)

Housing Works Community Health Center

Brooklyn-based health center providing comprehensive care and support services for those living with AIDS, HIV-related illnesses and chronic diseases.

Revenue

$50.1m

Assets

$57.3m

Employees

337

EIN

13-3826364

IRS type

501(c)(3)

A Torah Infertility Medium of Exchange

ATIME provides support, counseling, and financial assistance to couples struggling with infertility while ensuring halachic compliance.

Revenue

$6.9m

Assets

$4.3m

Employees

EIN

11-3394747

IRS type

501(c)(3)

LADACIN Network

LADACIN Network is a non-profit agency whose mission is to provide education, therapeutic, social, residential and support services for people with cerebral palsy and other physical and developmental disabilities in Monmouth and Ocean Counties.

Revenue

$30.5m

Assets

$23.4m

Employees

557

EIN

21-0674715

IRS type

501(c)(3)

Aids Center of Queens County (ACQC)

To enhance the quality of life for individuals and their families infected, affected and at risk for hiv/aids and other related conditions.

Revenue

$17.1m

Assets

$6.6m

Employees

140

EIN

11-2837894

IRS type

501(c)(3)

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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.

This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.

New York City disease-focused nonprofits

Types of disease-focused nonprofits in New York City

Job trends for New York City disease-focused nonprofits

Sizes of disease-focused nonprofits in New York City

Directory of disease-focused nonprofits in New York City

The American Geriatrics Society

The Leukemia and Lymphoma Society Research Programs

Adapt Community Network

National Multiple Sclerosis Society

Helen Keller Services (HKS)

National Kidney Foundation (NKF)

Gay Men's Health Crisis

American Parkinson Disease Association (APDA)

Cooley's Anemia Foundation

Young Survival Coalition (YSC)

Quality Services for the Autism Community (QSAC)

The Leukemia and Lymphoma Society

Crohn's and Colitis Foundation (CCFA)

CP Bayville

Braverhood

EB Research Partnership

Housing Works Community Health Center

A Torah Infertility Medium of Exchange

LADACIN Network

Aids Center of Queens County (ACQC)

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