New York City disease-focused nonprofits

Name: Top 20 New York City disease-focused nonprofits
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

There are 1,818 medical disease and disorder focused nonprofits in the greater New York City metro area, including the cities of New York, Jersey City, Lakewood, Newark, New Brunswick, and White Plains within the states of New York and New Jersey. Combined, these New York City metro disease-focused nonprofits employ 45,223 people, earn more than $6 billion in revenue each year, and have assets of $6 billion.

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List of New York City disease-focused nonprofits
Categories
Employment
Revenues

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Types of disease-focused nonprofits in New York City

Nonprofit type	Number	Employees	Revenues	Assets
Cancer nonprofits	462	678	$265,658,153	$653,284,066
Organizations focused on specific diseases	456	11,081	$1,014,192,805	$1,249,446,373
Organ disease nonprofits	209	3,397	$1,087,636,692	$2,121,055,065
Autism awareness organizations	177	6,586	$389,228,484	$378,512,624
Medical specialty organizations	152	11,978	$2,005,948,987	$693,746,952
Organizations supporting multiple disease or disorder focused nonprofits	126	6	$7,842,571	$37,739,581
Genetic disorder and birth defect organizations	120	9,299	$765,754,368	$756,426,274
HIV / AIDS focused organizations	95	3,917	$504,692,254	$609,821,484
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations	93	7,865	$588,151,143	$567,649,553
Disease and disorder focused professional societies	71	612	$78,754,875	$95,544,904

Showing 10 of 17 categories

Job trends for New York City disease-focused nonprofits

Employees per organization	Number of organizations
0	397
1-10	200
11-25	66
26-100	49
101 to 1,000	51
1,000+	9

Key takeaways for employment stats:

Employment in New York City disease-focused nonprofits is driven by large organizations like Braverhood, Ahrc Nyc, Physician Affiliate Group of New York PC, Developmental Disabilities Institute (DDI), and Constructive Partnerships Unlimited (CP of NYS).

Sizes of disease-focused nonprofits in New York City

Revenues per organization	Number of organizations
< $250k	642
$250k to $1M	187
$1M to $5M	155
$5M to $25M	76
$25M to $100M	27
$100M+	12

Key takeaways for revenue stats:

Large organizations like Physician Affiliate Group of New York PC, Ahrc Nyc, CHS Physician Partners PC, NY Presbyterian Medical GroupQueens, and Constructive Partnerships Unlimited (CP of NYS) earn the majority of revenues among nonprofits in New York City disease-focused nonprofits.
Organizations with less than $1 million in revenue account for 2.4% of combined nonprofit revenues, whereas organizations in New York City disease-focused nonprofits with more than $100 million account for 54.9% of nonprofit earnings.

Directory of disease-focused nonprofits in New York City

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1-20 of 1,818

The American Geriatrics Society

The American Geriatrics Society improves the health and quality of life for older people through education, grants, and special projects.

Revenue

$9.9m

Assets

$14.7m

Employees

EIN

13-1950856

IRS type

501(c)(3)

Gay Men's Health Crisis

Gay Men's Health Crisis combats the AIDS epidemic, providing vital services like advocacy, testing, mental health support, housing assistance, and workforce development.

Revenue

$38.7m

Assets

$113.6m

Employees

239

EIN

13-3130146

IRS type

501(c)(3)

Children's Tumor Foundation

The Children's Tumor Foundation is dedicated to ending neurofibromatosis (NF), to fund research, increase public awareness, support patients and families, encourage establishment of NF clinics.

Revenue

$19.7m

Assets

$30.7m

Employees

EIN

13-2298956

IRS type

501(c)(3)

National Kidney Foundation (NKF)

The National Kidney Foundation is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.

Revenue

$50.1m

Assets

$51.5m

Employees

279

EIN

13-1673104

IRS type

501(c)(3)

National Multiple Sclerosis Society

The National MS Society's mission is that people affected by MS can live their best lives as they stop MS in its tracks, restore what has been lost and end MS forever.

Revenue

$171.8m

Assets

$201.1m

Employees

1,035

EIN

13-5661935

IRS type

501(c)(3)

Helen Keller Services (HKS)

HKS' mission is to enable individuals who are blind or deaf-blind live, work and thrive in their community of choice.

Revenue

$45.3m

Assets

$150.9m

Employees

467

EIN

11-1630807

IRS type

501(c)(3)

Cooley's Anemia Foundation

The Cooley's Anemia Foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major.

Revenue

$2.8m

Assets

$6.4m

Employees

EIN

11-1971539

IRS type

501(c)(3)

American Parkinson Disease Association (APDA)

The American Parkinson's Disease Association was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. The organization focuses its energies on research, patient support, education and raising public awareness of the disease.

Revenue

$18.8m

Assets

$30.2m

Employees

EIN

13-1962771

IRS type

501(c)(3)

Parkinsons Disease Foundation Incorporated (PDF)

The Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, education and public advocacy.

Revenue

$84.2m

Assets

$62.7m

Employees

202

EIN

13-1866796

IRS type

501(c)(3)

Quality Services for the Autism Community (QSAC)

Quality Services for the Autism Community (QSAC) provides person-centered services for children and adults with autism throughout New York City and Long Island.

Revenue

$103.6m

Assets

$87.6m

Employees

1,885

EIN

11-2482974

IRS type

501(c)(3)

Young Survival Coalition (YSC)

Young Survival Coalition (YSC) is the premier organization dedicated to the critical issues unique to young women who are diagnosed with breast cancer. YSC offers resources, connections and outreach so women feel supported, empowered and hopeful.

Revenue

$2.6m

Assets

$1.8m

Employees

EIN

13-4057685

IRS type

501(c)(3)

Aids Research Foundation AMFAR

Aids Research Foundation amfAR advances AIDS research, prevention, and advocacy, raising nearly $900 million and awarding over 3,800 grants to combat the epidemic.

Revenue

$24.8m

Assets

$53.4m

Employees

EIN

13-3163817

IRS type

501(c)(3)

Crohn's and Colitis Foundation (CCFA)

CCFA's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases.

Revenue

$85.2m

Assets

$50.6m

Employees

372

EIN

13-6193105

IRS type

501(c)(3)

Smile Train

Smile Train empowers local medical professionals globally to provide free cleft surgery and care, transforming lives through sustainable training and education programs.

Revenue

$99.6m

Assets

$384.2m

Employees

111

EIN

13-3661416

IRS type

501(c)(3)

Cerebral Palsy Transport

To provide motor vehicle transportation to persons with disabilities served by United Cerebral Palsy Association of New York state.

Revenue

$11.1m

Assets

$5.7m

Employees

EIN

13-3409801

IRS type

501(c)(3)

Hyacinth Aids Foundation

Hyacinth AIDS Foundation is the first and largest AIDS service organization in New Jersey. Founded in 1985, they are a not-for-profit, tax-exempt agency. They provide client services in six regional offices as well as several statewide services.

Revenue

$12.1m

Assets

$5.0m

Employees

143

EIN

22-2648820

IRS type

501(c)(3)

Voces Latinas Corporation

Voces Latinas Corp provides HIV and violence prevention education, referrals, and leadership training for immigrant Latinos; reaching ~2k individuals in NY.

Revenue

$5.0m

Assets

$3.6m

Employees

EIN

20-2312651

IRS type

501(c)(3)

Housing Works Community Health Center

Brooklyn-based health center providing comprehensive care and support services for those living with AIDS, HIV-related illnesses and chronic diseases.

Revenue

$31.4m

Assets

$72.8m

Employees

380

EIN

13-3826364

IRS type

501(c)(3)

Christopher and Dana Reeve Foundation

The Christopher and Dana Reeve Foundation advances spinal cord injury research, enhances life quality for those affected, and offers vital support resources.

Revenue

$22.6m

Assets

$30.9m

Employees

EIN

22-2939536

IRS type

501(c)(3)

Alzheimer's Foundation of America (AFA)

The mission of the Alzheimer's Foundation of America (AFA) is "to provide optimal care and services to individuals confronting dementia, and to their caregivers and families-through our member organizations dedicated to improving quality of life.".

Revenue

$20.0m

Assets

$75.9m

Employees

EIN

91-1792864

IRS type

501(c)(3)

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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.

This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.

New York City disease-focused nonprofits

Types of disease-focused nonprofits in New York City

Job trends for New York City disease-focused nonprofits

Sizes of disease-focused nonprofits in New York City

Directory of disease-focused nonprofits in New York City

The American Geriatrics Society

Gay Men's Health Crisis

Children's Tumor Foundation

National Kidney Foundation (NKF)

National Multiple Sclerosis Society

Helen Keller Services (HKS)

Cooley's Anemia Foundation

American Parkinson Disease Association (APDA)

Parkinsons Disease Foundation Incorporated (PDF)

Quality Services for the Autism Community (QSAC)

Young Survival Coalition (YSC)

Aids Research Foundation AMFAR

Crohn's and Colitis Foundation (CCFA)

Smile Train

Cerebral Palsy Transport

Hyacinth Aids Foundation

Voces Latinas Corporation

Housing Works Community Health Center

Christopher and Dana Reeve Foundation

Alzheimer's Foundation of America (AFA)

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