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EIN 13-1930701

Cystic Fibrosis Foundation

IRS 501(c) type
501(c)(3)
Num. employees
890
City
Bethesda
State
Maryland
Year formed
1955
Most recent tax filings
2022-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
Cystic Fibrosis Foundation: Mission to cure CF. World leader in search for a cure. Supports patients and families managing challenges of CF.
Total revenues
$248,630,352
2022
Total expenses
$396,664,114
2022
Total assets
$4,735,058,992
2022
Num. employees
890
2022

Grants made by Cystic Fibrosis Foundation

GranteeGrant descriptionAmount
Seattle Children's HospitalClinical Research Center$7,610,499
Seattle Children's HospitalClinical Research Study$6,399,823
HealthWell FoundationPatient Assistance$5,600,000
...and 468 more grants made totalling $139,694,002

Who funds Cystic Fibrosis Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$2,146,136
American Online Giving FoundationGeneral Support$1,008,076
Schwab Charitable FundHealth$900,921
...and 141 more grants received totalling $9,200,395

Personnel at Cystic Fibrosis Foundation

NameTitleCompensation
Michael P BoylePresident and Chief Executive Officer$950,256
Marc S GinskyFormer Chief Operating Officer$1,245,811
Irena BarisicExecutive Vice President , Chief Operating Officer , and Chief Financial Officer$557,940
Jack MahlerChief Investment Officer$2,463,847
Vera H TwiggFormer Executive Vice President , Chief Financial Officer$616,739
...and 21 more key personnel

Financials for Cystic Fibrosis Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$97,948,958
Program services$2,555,705
Investment income and dividends$63,753,516
Tax-exempt bond proceeds$0
Royalty revenue$14,016,961
Net rental income$0
Net gain from sale of non-inventory assets$64,313,171
Net income from fundraising events$0
Net income from gaming activities$39,056
Net income from sales of inventory$0
Miscellaneous revenues$6,002,985
Total revenues$248,630,352

Form 990s for Cystic Fibrosis Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-11-15990View PDF
2020-122021-11-10990View PDF
2019-122021-02-22990View PDF
2018-122019-12-05990View PDF
...and 9 more Form 990s

Organizations like Cystic Fibrosis Foundation

OrganizationLocationRevenue
The Leukemia and Lymphoma SocietyRye Brook, NY$426,997,204
National Multiple Sclerosis SocietyNew York, NY$171,945,464
Susan G KomenDallas, TX$107,597,705
American Heart Association (AHA)Dallas, TX$855,744,080
American Cancer Society (ACS)Kennesaw, GA$674,472,929
Muscular Dystrophy AssociationChicago, IL$63,227,837
Canadian Cancer SocietyCanada, $123,004,632
American Lung AssociationChicago, IL$129,392,936
Juvenile Diabetes Research Foundation (JDRF)New York, NY$238,595,505
Crohn's and Colitis Foundation (CCFA)New York, NY$81,491,223
Data update history
December 26, 2023
Posted financials
Added Form 990 for fiscal year 2022
December 26, 2023
Updated personnel
Identified 2 new personnel
December 24, 2023
Received grants
Identified 87 new grant, including a grant for $1,008,076 from American Online Giving Foundation
December 23, 2023
Used new vendors
Identified 3 new vendors, including , , and
August 7, 2023
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyProvides grantsConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelEndowed supportCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
4550 Montgomery Ave 1100n
Bethesda, MD 20814
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
Website URL
cff.org/ 
Phone
(301) 951-4422
Facebook page
cysticfibrosisfoundation 
Twitter profile
@cf_foundation 
IRS details
EIN
13-1930701
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1955
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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