Cause IQ organization profile

The Leukemia and Lymphoma Society

Program areas | Form 990s | Financials | Vendors | Personnel | Peers

The Leukemia and Lymphoma Society is a cancer organization based in Rye Brook, NY that was founded in 1949. As of 2019 they had $396 million in revenue and $454 million in assets.

Our mission is to cure Leukemia, Lymphoma, hodgkin's disease and myeloma, and improve The quality of life of patients and their families.

Previous legal names or variations of their name include: The Leukemia And Lymphoma Societyinc.

Fiscal year end:
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Program areas at The Leukemia and Lymphoma Society

A) research programs: we will continue to support research through our innovative and integrated funding programs, until every patient has a safe and effective therapy. In fiscal year 2019, lls supported research in The u.s., canada and 7 other countries with a total research disbursement of approximately 44.3 million. Research funding was distributed across all blood cancers. Beat aml master trial The beat aml master trial, a collaborative clinical trial testing several novel targeted therapies for patients with acute myeloid leukemia(aml) designed to facilitate fda approval of new drugs and change The treatment paradigm for patients diagnosed with aml by developing more individualized, effective treatment approaches. The master trial involves collaborations with multiple medical institutions, drug companies, a genomic provider, a clinical research organization, and The fda, all of whom have committed to working collaboratively. More than 760 patients have been screened in 11 study arms at 16 cancer centers ...

C) public health education: information and education. Paying for medical care, making treatment choices, communicating with healthcare providers, family members and friends-these are some of The stresses that come with a cancer diagnosis. Lls's information specialists are master's level oncology social workers, nurses and health educators who provide help with disease, treatment and clinical trial information and support. Information specialists may also refer patients and caregivers to a nurse in The clinical trial support center. The nurses in this center have expertise in The blood cancers and provide patients and their caregivers with comprehensive navigation to find and enroll in an appropriate clinical trial. As part of this process, The nurses work closely with information specialists to address resource barriers to clinical trial enrollment. Patients, families and healthcare professionals may speak to an information specialist at (800) 955-4572 monday through friday, 9 a.m. to 9 p.m., et, email [email protected] or ...

B) patient & community services: publications and The lls website. Support services are provided by professionals or rigorously trained peer volunteers. All resources are provided through a variety of media - print, online, by phone, and face- to-face in communities. A number of resources are available in spanish for patients, caregivers and healthcare professionals. Print publications: an extensive catalog of education materials is offered free-of-charge to patients and healthcare professionals. Each year, lls distributes disease and support booklets and fact sheets through The information resource center, lls website and lls chapters. Each year, lls publishes an annual compilation of data available for blood cancers, including The estimated numbers of new blood cancer cases and deaths, The most recent statistics available for incidence, mortality and survival. In 2019, 717,119 free printed disease and support booklets and 8,621 fact sheets were ordered. Additionally, there were 129,388 page views of these booklets and ...

Form 990s for The Leukemia and Lymphoma Society

Fiscal year endingDate received by IRSFormPDF link
2019-06Sep 16, 2020990View PDF
2018-06May 14, 2019990View PDF
2017-06Apr 10, 2018990View PDF
2016-06Jul 20, 2017990View PDF
2015-06Jul 7, 2016990View PDF
...and five more Form 990 PDFs

Financials for The Leukemia and Lymphoma Society

Total grants, contributions, etc.$372,750,094
Program services$14,936,342
Investment income and dividends$7,317,868
Tax-exempt bond proceeds$0
Royalty revenue$4,512,294
Net rental income$0
Net gain from sale of non-inventory assets$1,302,046
Net income from fundraising events$-4,556,653
Net income from gaming activities$-40,839
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$396,221,152

Vendors for The Leukemia and Lymphoma Society

VendorServicesAmount paidDate
DrupalContent management system software2020-06-15
██████Fundraising software2020-06-15
███████ ███ ████Fundraising software; Payment processing2020-06-15
█████████CRM software; Marketing software2020-03-17
████ ███Tax accounting; Audit accounting2020-02-04
██████ ██████ ███ ████████ ███Insurance agent or broker$3,4902019-12-31
██████ █████ ████████ ██████████Insurance agent or broker$8,9992019-12-31
...and 15 more vendors

Personnel at The Leukemia and Lymphoma Society

NameTitleCompensationMost recent data
Louis J. DegennaroPresident and Chief Executive Officer$634,681April 26, 2020
Troy DunmireExecutive Vice President, Chief Operating Officer-April 26, 2020
██████ █████Chief Financial Officer / Board Member-April 26, 2020
█████████ █ ████████Executive Vice President - Chief Financial Officer$380,439June 30, 2018
████ ███████Evp, Chief Marketing Officer-April 26, 2020
██████ █████Evp , Chief Communications Officer / Chief Communications Officer / Executive Vice President , Communications$266,288April 26, 2020
████████ ███Chief of Staff-April 26, 2020
█████ ███████████Evp , Chief Relationship Officer / Chief Relationship Officer / Executive Vice President Chief Relations Office$324,213April 26, 2020
███████ █████Evp , Chief Development Officer-April 26, 2020
███ ██████Evp , Chief Human Resources Officer-April 26, 2020
...and 13 more key personnel

Peer cancer nonprofits

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7Juvenile Diabetes Research Foundation (JDRF)501(c)(3)$239 millionNew York, NY
8Research Foundation for Mental Hygiene (RFMH)501(c)(3)$187 millionMenands, NY
9Cold Spring Harbor Laboratory501(c)(3)$212 millionCold Spring Harbor, NY
10Canadian Cancer Society501(c)(3)$133 millionCanada,
11Children's Medical Center Foundation501(c)(3)$100 millionDallas, TX
12Cystic Fibrosis Foundation - Group Return for the Chapters501(c)(3)$113 millionBethesda, MD
13Muscular Dystrophy Association501(c)(3)$110 millionChicago, IL
14H Lee Moffitt Cancer Center and Research Institute (MCC)501(c)(3)$188 millionTampa, FL
15Parker Institute for Cancer Immunotherapy501(c)(3)$113 millionSan Francisco, CA
16Stowers Resource Management501(c)(3)$146 millionKansas City, MO
17Be The Match / National Marrow Donor Program501(c)(3)$445 millionMinneapolis, MN
18Henry M Jackson Foundation For The Advancement of Military Medicine501(c)(3)$495 millionBethesda, MD
19Scripps Research Institute501(c)(3)$412 millionLa Jolla, CA
20Jackson Laboratory501(c)(3)$432 millionBar Harbor, ME
21Beckman Research Institute of the City of Hope (BRI)501(c)(3)$568 millionDuarte, CA
22The Broad Institute501(c)(3)$536 millionCambridge, MA
23Fred Hutch (FHCRC)501(c)(3)$698 millionSeattle, WA
24Musculoskeletal Transplant Foundation (MTF)501(c)(3)$431 millionEdison, NJ
25Oregon State University Foundation501(c)(3)$127 millionCorvallis, OR