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Organizations focused on specific diseases

There are 5,560 specific disease focused organizations in the United States. Combined, these specific disease focused organizations employ 70,811 people, earn more than $18 billion in revenue each year, and have assets of $24 billion.
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Types of specific disease focused organizations

Nonprofit typeNumberRevenues
Organizations focused on specific diseases
 
5,560
 
$17,600,270,153
Autism awareness organizations
 
1,822
 
$3,424,834,625
HIV / AIDS focused organizations
 
893
 
$11,444,261,352
Alzheimer's disease organizations
 
380
 
$859,833,142
Showing 4 of 4 categories

Job trends for Specific disease focused organizations

Employees per organizationNumber of organizations
0
 
763
1-10
 
591
11-25
 
284
26-100
 
293
101 to 1,000
 
131
1,000+
 
7
Key takeaways for employment stats:

Sizes of specific disease focused organizations

Revenues per organizationNumber of organizations
< $250k
 
1,637
$250k to $1M
 
609
$1M to $5M
 
500
$5M to $25M
 
219
$25M to $100M
 
54
$100M+
 
22
Key takeaways for revenue stats:

Directory of specific disease focused organizations

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1-20 of 5,560

TSC Alliance

Founded in 1974, Tuberous Sclerosis Alliance (TS Alliance) provides information, access to resources and a place for hope for those affected by tuberous sclerosis complex.
Revenue
$9.8m
Assets
$18.0m
Employees
26
EIN
95-3018799
IRS type
501(c)(3)

AIDS United

AU's mission is to end the AIDS epidemic within the US. We seek to achieve our mission through strategic grantmaking initiatives that cover a broad range of areas including access to care, advocacy, and syringe access.
Revenue
$13.9m
Assets
$9.5m
Employees
46
EIN
52-1706646
IRS type
501(c)(3)

Lupus Research Alliance (ALR)

Lupus Research Alliance drives patient-centered lupus research from lab to clinical trials, funding collaborations to advance diagnostics, targeted treatments, and a cure.
Revenue
$18.6m
Assets
$93.3m
Employees
72
EIN
58-2492929
IRS type
501(c)(3)

Lupus Foundation of America

The Lupus Foundation of America is dedicated to improving the quality of life for all people affected by lupus through a comprehensive program of research, education, and advocacy.
Revenue
$15.0m
Assets
$11.4m
Employees
76
EIN
43-1131436
IRS type
501(c)(3)

National Brain Tumor Society (NBTS)

National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.
Revenue
$15.1m
Assets
$19.7m
Employees
60
EIN
04-3068130
IRS type
501(c)(3)

Brain Injury Association of America (BIAA)

The Brain Injury Association of America's mission is to advance brain injury prevention, research, treatment and education and to improve the quality of life for all individuals impacted by brain injury.
Revenue
$4.5m
Assets
$6.4m
Employees
28
EIN
04-2716222
IRS type
501(c)(3)

Gay Men's Health Crisis

Gay Men's Health Crisis combats the AIDS epidemic, providing vital services like advocacy, testing, mental health support, housing assistance, and workforce development.
Revenue
$38.7m
Assets
$113.6m
Employees
239
EIN
13-3130146
IRS type
501(c)(3)

Aids Foundation of Chicago

Aids Foundation of Chicago (AFC) mobilizes communities to create equity and justice for people living with and vulnerable to HIV and related chronic diseases.
Revenue
$41.0m
Assets
$21.7m
Employees
194
EIN
36-3412054
IRS type
501(c)(3)

the Add Impact Network

Promote charitable, social and educational events that support The autism and disabilities community. Provide a fundraising platform for non profits that support The autism and disabilities community.
Revenue
$1.2m
Assets
$88.2k
Employees
3
EIN
26-1809507
IRS type
501(c)(3)

Association of Diabetes Care and Education Specialists

Adces empowers Diabetes Care & Education Specialists with innovative education & management. Liaises with non-profits, provides tools and training for best practices.
Revenue
$16.9m
Assets
$22.1m
Employees
74
EIN
51-0161670
IRS type
501(c)(6)

Association of Community Cancer Centers (ACCC)

ACCC promotes the entire continuum of quality cancer care for our patients and our communities. Since 1974, ACCC has been helping oncology professionals adapt to the complex changes of delivering quality cancer care.
Revenue
$15.6m
Assets
$14.9m
Employees
0
EIN
51-0137807
IRS type
501(c)(3)

Parkinson's Foundation (PDF)

Parkinsons Disease Foundation Incorporated advances research, improves care, and empowers individuals affected by Parkinson's disease through resources, support, and a global community.
Revenue
$84.2m
Assets
$62.7m
Employees
202
EIN
13-1866796
IRS type
501(c)(3)

Elizabeth Glaser Pediatric Aids Foundation

The Elizabeth Glaser Pediatric AIDS Foundation fights HIV/AIDS through advocacy, research, and strengthening health systems to ensure healthy futures for mothers and children.
Revenue
$138.0m
Assets
$37.7m
Employees
135
EIN
95-4191698
IRS type
501(c)(3)

Quality Services for the Autism Community (QSAC)

Quality Services for the Autism Community (QSAC) provides person-centered services for children and adults with autism throughout New York City and Long Island.
Revenue
$120.9m
Assets
$100.6m
Employees
1,962
EIN
11-2482974
IRS type
501(c)(3)

New England Center for Children (NECC)

The New England Center for Children is a private, nonprofit autism research and education center dedicated to their mission: to transform the lives of children with autism worldwide through education, research, and technology.
Revenue
$134.9m
Assets
$94.1m
Employees
1,235
EIN
04-2708762
IRS type
501(c)(3)

Aid Atlanta

AID Atlanta has been providing HIV/AIDS-related services, care, and education since its inception in 1982. The agency was established in response to the devastating impact that HIV/AIDS was having on gay men in Atlanta.
Revenue
$10.5m
Assets
$3.3m
Employees
98
EIN
58-1537967
IRS type
501(c)(3)

San Francisco Aids Foundation (SFAF)

The San Francisco Aids Foundation's mission is the radical reduction of new infections in San Francisco because we refuse to accept HIV as inevitable.
Revenue
$44.3m
Assets
$43.8m
Employees
267
EIN
94-2927405
IRS type
501(c)(3)

Aids Research Foundation amfAR

Aids Research Foundation amfAR advances AIDS research, prevention, and advocacy, raising nearly $900 million and awarding over 3,800 grants to combat the epidemic.
Revenue
$34.8m
Assets
$58.0m
Employees
71
EIN
13-3163817
IRS type
501(c)(3)

Epilepsy Foundation

The mission of the Epilepsy Foundation is to stop seizures and sudep, find a cure and overcome the challenges created by Epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.
Revenue
$16.2m
Assets
$20.0m
Employees
99
EIN
52-0856660
IRS type
501(c)(3)

BrightFocus Foundation

BrightFocus Foundation is a nonprofit organization supporting research and providing public education to help eradicate brain and eye diseases, including Alzheimer's disease, macular degeneration, and glaucoma.
Revenue
$63.4m
Assets
$65.1m
Employees
59
EIN
23-7337229
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G80: Specifically Named Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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