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Medical disease and disorder focused nonprofits

There are 22,716 disease-focused nonprofits in the United States. Combined, these disease-focused nonprofits employ 253,350 people, earn more than $44 billion in revenue each year, and have assets of $72 billion.
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Types of disease-focused nonprofits

Nonprofit typeNumberRevenues
Cancer nonprofits
 
4,796
 
$8,190,699,504
Organizations focused on specific diseases
 
4,205
 
$16,573,346,718
Organ disease nonprofits
 
3,077
 
$6,022,491,086
Medical specialty organizations
 
2,347
 
$3,871,387,973
Disease and disorder focused professional societies
 
1,852
 
$1,826,807,854
Autism awareness organizations
 
1,726
 
$2,606,422,096
Organizations supporting multiple disease or disorder focused nonprofits
 
1,604
 
$187,449,035
Genetic disorder and birth defect organizations
 
1,499
 
$4,941,093,014
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations
 
1,247
 
$1,634,443,096
HIV / AIDS focused organizations
 
841
 
$12,455,793,929
Showing 10 of 17 categories

Job trends for Disease-focused nonprofits

Employees per organizationNumber of organizations
0
 
4,111
1-10
 
2,501
11-25
 
839
26-100
 
710
101 to 1,000
 
355
1,000+
 
30
Key takeaways for employment stats:

Sizes of disease-focused nonprofits

Revenues per organizationNumber of organizations
< $250k
 
7,151
$250k to $1M
 
2,692
$1M to $5M
 
1,788
$5M to $25M
 
656
$25M to $100M
 
171
$100M+
 
48
Key takeaways for revenue stats:

Directory of disease-focused nonprofits

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1-20 of 22,716

Vince Lombardi Cancer Foundation (VLCF)

Vince Lombardi Cancer Foundation (VLCF) has raised over $19 million in the fight against cancer. It has grown to include additional charitable cancer fundraising events.
Revenue
$934.9k
Assets
$1.0m
Employees
0
EIN
23-7120909
IRS type
501(c)(3)

American Academy of Implant Dentistry (AAID)

American Academy of Implant Dentistry (AAID) provides bonafide credentials and comprehensive oral implant education.
Revenue
$5.4m
Assets
$13.5m
Employees
14
EIN
41-6044864
IRS type
501(c)(6)

National Kidney Foundation of Illinois (NKF)

The National Kidney Foundation of Illinois improves the health and well-being of people at risk for or affected by kidney disease through prevention, education and empowerment.
Revenue
$2.5m
Assets
$7.2m
Employees
24
EIN
36-6009226
IRS type
501(c)(3)

National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD), organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
Revenue
$50.7m
Assets
$72.3m
Employees
124
EIN
13-3223946
IRS type
501(c)(3)

The American Geriatrics Society

The American Geriatrics Society improves the health and quality of life for older people through education, grants, and special projects.
Revenue
$8.8m
Assets
$12.9m
Employees
26
EIN
13-1950856
IRS type
501(c)(3)

American Society of Anesthesiologists (ASA)

The American Society of Anesthesiologists (ASA) is an educational, research and scientific society with more than 50,000 members organized to raise and maintain the standards of the medical practice of anesthesiology.
Revenue
$52.2m
Assets
$110.4m
Employees
188
EIN
36-2181944
IRS type
501(c)(6)

American College of Gastroenterology (ACG)

The mission of the College is to serve the evolving needs of physicians in the delivery of high quality, scientifically sound, humanistic, ethical, and cost-effective health care to gastroenterology patients.
Revenue
$27.3m
Assets
$289.8m
Employees
49
EIN
13-1883814
IRS type
501(c)(3)

TSC Alliance

Founded in 1974, Tuberous Sclerosis Alliance (TS Alliance) provides information, access to resources and a place for hope for those affected by tuberous sclerosis complex.
Revenue
$10.0m
Assets
$17.3m
Employees
26
EIN
95-3018799
IRS type
501(c)(3)

American Brain Tumor Association

The American Brain Tumor Association supports research, education, and advocacy, aiming to improve the lives of those affected by brain tumors through free patient services.
Revenue
$6.8m
Assets
$9.8m
Employees
42
EIN
23-7286648
IRS type
501(c)(3)

American Academy of Dermatology

American Academy of Dermatology advances dermatologic care through education, research, advocacy, and community engagement while supporting over 20,500 board-certified dermatologists in the U.S.
Revenue
$46.7m
Assets
$108.7m
Employees
214
EIN
41-0793046
IRS type
501(c)(3)

Radiological Society of North America (RSNA)

RSNA promotes excellence in patient care and health care delivery through education, research and technologic innovation. Promoting and developing the highest standards of radiology and related science through education and research.
Revenue
$64.7m
Assets
$206.9m
Employees
293
EIN
15-0539115
IRS type
501(c)(3)

International Association for the Study of Lung Cancer

IASLC promotes lung cancer research, education, and information to members with publications and scientific programs located in Denver.
Revenue
$24.6m
Assets
$31.0m
Employees
35
EIN
20-0499338
IRS type
501(c)(3)

Society of Interventional Radiology (SIR)

Society of Interventional Radiology is a national organization of physicians, scientists and allied health professionals dedicated to improving public health through disease management and minimally invasive, image-guided therapeutic interventions.
Revenue
$12.2m
Assets
$15.9m
Employees
73
EIN
39-1345331
IRS type
501(c)(6)

The Association for Research in Vision and Ophthalmology

ARVO advances vision science research globally, awards achievements, provides travel grants, and holds an annual convention for researchers.
Revenue
$13.9m
Assets
$23.3m
Employees
34
EIN
34-0812556
IRS type
501(c)(3)

Inteleos (ARDMS)

American Registry for Diagnostic Medical Sonography (ARDMS) promotes quality care and patient safety through the certification and continuing competency of ultrasound professionals.
Revenue
$23.6m
Assets
$28.0m
Employees
101
EIN
51-0184277
IRS type
501(c)(6)

The American Academy of Allergy Asthma (AAAAI)

The American Academy of Allergy, Asthma & Immunology is dedicated to the advancement of the knowledge and practice of allergy, asthma and immunology for optimal patient care.
Revenue
$16.1m
Assets
$37.8m
Employees
0
EIN
39-6061326
IRS type
501(c)(3)

Pediatric Brain Tumor Foundation of the United States

The Pediatric Brain Tumor Foundation is the world's largest nonprofit solely dedicated to the pediatric brain tumor community. We serve the more than 28,000 children and teens in the United States who are living with a brain tumor diagnosis.
Revenue
$5.0m
Assets
$3.3m
Employees
24
EIN
58-1966822
IRS type
501(c)(3)

Livestrong Foundation

The Livestrong Foundation fights to improve the lives of people affected by cancer now. Created in 1997, the Foundation is known for providing free cancer support services and advocating for policies that improve access to care and quality of life.
Revenue
$1.9m
Assets
$26.9m
Employees
16
EIN
74-2806618
IRS type
501(c)(3)

Lupus Foundation of America

The Lupus Foundation of America is dedicated to improving the quality of life for all people affected by lupus through a comprehensive program of research, education, and advocacy.
Revenue
$17.2m
Assets
$15.5m
Employees
74
EIN
43-1131436
IRS type
501(c)(3)

American Society of Hematology (ASH)

To further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology.
Revenue
$108.3m
Assets
$331.5m
Employees
126
EIN
23-7080568
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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