EIN 41-1756085

The Als Association Minnesota North Dakota South Dakota Chapter

IRS 501(c) type
501(c)(3)
Num. employees
23
Year formed
1993
Most recent tax filings
2022-01-01
Description
The Als Association Minnesota North Dakota South Dakota Chapter strives to discover treatments and a cure for ALS, while also serving, advocating for, and empowering individuals affected by the disease to live their lives to the fullest. As an affiliate of The National ALS Association, they actively invest in research grants each year. Along with providing direct programs through support groups, phone support, and referrals, they aim to assist individuals and families affected by ALS in living as full a life as possible. Their location is St Paul, MN.
Related structure
The Als Association Minnesota North Dakota South Dakota Chapter is child organization, under the parent exemption from ALS Association (ALS).
Also known as...
Amyotrophic Lateral Sclerosis Association Minnesota Chapter; Minnesota North Dakota South Dakota; Als Association MNNDSD Chapter
Total revenues
$4,572,143
2022
Total expenses
$3,921,624
2022
Total assets
$6,104,152
2022
Num. employees
23
2022

Program areas at The Als Association Minnesota North Dakota South Dakota Chapter

Care services - helping people with Als and their families live as full a life as possible through direct programs for people living with Als (see schedule 0 for detail), support groups, phone support, and referrals.
Public awareness - educate and inform The public about The nature of Als through advocacy, newsletters, social media and events.
Research - The Als Association, Minnesota/ North dakota/south Dakota Chapter is an affiliate of The national Als Association. Each year since its founding in 1985, The national Als Association has increased its investment in research grants. Since The ice bucket challenge, The Als Association has invested $122 million in The quest to unlock The mysteries of Als. In The past 25 years The Minnesota /North Dakota /South Dakota Chapter has helped raise more than $5.0 million for Als research.the Als Association funds more Als research than any other organization and its research enterprise is recognized in The Als community for its scope and diversity. Currently, The Association is funding 162 active projects globally. Projects are milestone driven, which enables The Association to redirect dollars when The science demonstrates that one approach is not feasible, and another is more promising.

Who funds The Als Association Minnesota North Dakota South Dakota Chapter

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American Online Giving FoundationGeneral Support$103,930
Saint Paul and Minnesota FoundationMultiple Grants for Multiple Purposes$67,125
The Blackbaud Giving FundGeneral Support$56,825
...and 24 more grants received totalling $472,304

Personnel at The Als Association Minnesota North Dakota South Dakota Chapter

NameTitleCompensation
Jennifer HjelleChief Executive Officer / Executive Director$145,078
Julie SmithVice President , Development
Marrianne KeuhnVice President Care Services / Vice President , Care Services / Vice Presidentcare Services$120,508
Gary ShippDirector of Operations
Ryan StauffPast Vice President , Development / Vice President Development$117,841
...and 6 more key personnel

Financials for The Als Association Minnesota North Dakota South Dakota Chapter

RevenuesFYE 01/2022
Total grants, contributions, etc.$4,662,324
Program services$0
Investment income and dividends$63,341
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-83,084
Net income from fundraising events$-78,493
Net income from gaming activities$8,055
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$4,572,143

Form 990s for The Als Association Minnesota North Dakota South Dakota Chapter

Fiscal year endingDate received by IRSFormPDF link
2021-012021-07-26990View PDF
2020-012020-12-07990View PDF
2019-012019-11-01990View PDF
2018-012018-10-16990View PDF
2017-012017-10-17990View PDF
...and 7 more Form 990s
Data update history
May 26, 2023
Updated personnel
Identified 3 new personnel
May 7, 2023
Received grants
Identified 5 new grant, including a grant for $67,125 from Saint Paul and Minnesota Foundation
August 3, 2022
Received grants
Identified 4 new grant, including a grant for $30,000 from Christopher and Dana Reeve Foundation
April 12, 2022
Updated personnel
Identified 1 new personnel
April 10, 2022
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
1919 University Ave W 175
St Paul, MN 55104
Metro area
Minneapolis-St. Paul-Bloomington, MN-WI
Website URL
als.org/mn-nd-sd 
Phone
(612) 672-0484
Facebook page
ALSAssociationMNNDSD 
Twitter profile
@alsa_mnndsd 
IRS details
EIN
41-1756085
Fiscal year end
January
Taxreturn type
Form 990
Year formed
1993
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Child within group exemption
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