Cause IQ organization profile

ALS Association (ALS)

Program areas | Form 990s | Financials | Vendors | Personnel | Peers

ALS is a nerve, muscle, or bone disease organization based in Washington, DC that was founded in 1985. As of 2019 they had $27 million in revenue and $96 million in assets.

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

Previous legal names or variations of their name include: Amyotrophic Lateral Sclerosis Association; and National Office.

EIN:
13-3271855
City:
State:
Metro:
Website:
Phone:
202-407-8580
Facebook:
Twitter:
Founded:
1985
Type:
501(c)(3)
NTEE:
Revenue:
$27,065,702
Assets:
$96,316,713
Employees:
106
Fiscal year end:
January
Revenue trends:
Asset trends:

Program areas at ALS

Research programs - the association funds scientific research grants to doctors/scientists to find the cause and cure of amyotrophic lateral sclerosis (als). During the year ending january 31, 2019, research grants were $14,568,338. This level of spending is made possible with funding from the ice bucket challenge (ibc), an organic fundraising event that took place in the summer of 2014, that empowered individuals to raise awareness and funds for als by pouring ice water over their heads, and challenging their friends to do the same. The association was the main benefactor of this event and received approximately $115 million in contributions as a result. The association's goal is to further increase research funding in ensuing years with the goal of spending over $20 million annually on research.

Public and professional education - the association's public policy department develops awareness and understanding of als and the work of the association among the general public, healthcare professionals, the scientific community, and elected and other government officials. For the year ending january 31, 2019, the association worked with congress to continue funding for the national als registry and the als research program at the department of defense as well as funding for als research at the national institutes of health.

Patient and community services - the association's national care services department, in working with the association's network of chapters, is committed to providing fully developed, managed and evaluated programs and services to people living with als, families, caregivers and professionals across the united states. Programs incorporate the perspectives from key stakeholders including people living with the disease, subject matter experts, clinical best practice, caregivers, technology, academicians and research. Activities address current needs and explore future services, creating a foundation for innovative and advanced program development based on specific community needs and knowledge advancements. Specific activities include 1) developing and implementing clinical and professional education programs based on ongoing needs assessments and best practice; 2) implementing certified care center certification and recertification programs based on nationally-recognized standards of practice, including grants to support centers of excellence; 3) developing strategies and actualizing plans to deliver care through other than certified centers; 4) ...

Form 990s for ALS

Fiscal year endingDate received by IRSFormPDF link
2019-01Sep 14, 2019990View PDF
2018-01Oct 16, 2018990View PDF
2017-01Sep 18, 2017990View PDF
2016-01Oct 12, 2016990View PDF
2015-01Jul 9, 2015990View PDF
...and six more Form 990 PDFs

Financials for ALS

Field2019
Total grants, contributions, etc.$29,429,700
Program services$146,365
Investment income and dividends$2,641,824
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-5,003,034
Net income from fundraising events$-205,789
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$56,636
Total revenues$27,065,702

Vendors for ALS

VendorServicesAmount paidDate
BlackbaudFundraising software; CRM software; Marketing software2020-06-16
██████████████████ ███Tax accounting2019-08-23
████ █ █ █████████ ███Marketing Consulting Services; Fundraising Counsel$118,7502019-01-01
█████ ██████Scientific Officer Research Oversite$290,0002019-01-01
███ █████████Fundraising Counsel; Direct Marketing Services$366,0002019-01-01
█████████ █████ ███Marketing Consulting Services$113,6002019-01-01
█████████ ████████Software2018-09-21
██████ ███ ██████████ ████ ███████████Tax accounting2014-01-14

Personnel at ALS

NameTitleCompensationMost recent data
Dr. Judith A. PrattPresident and Chief Executive Officer-July 17, 2019
Lucie BruijnChief Scientist-Dec. 18, 2018
███████ ██ ████████Executive Vice President, Finance and Administration$218,987Aug. 23, 2019
█████ ██████████ █████Executive Vice President, Communications$195,041July 17, 2019
████████ ███████Vice President , Public Policy and Advocacy / Vice President Public Policy and Advocacy$163,398Jan. 31, 2019
████ ████Executive Vice President, Development$167,968July 17, 2019
██████ █████ ████Vice President , Human Resources and Talent Management$143,503Jan. 31, 2019
████████ ████████Senior Vice President, Care Services-July 17, 2019
███████ █████ █████Vice President-July 17, 2019
█████ █████████Executive Vice President, Chapter Relations and Governance$210,684July 17, 2019
...and 11 more key personnel

Peer arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations

 NameTypeRevenueLocation
1Parent Project Muscular Dystrophy (PPMD)501(c)(3)$9.0 millionHackensack, NJ
2Association for Frontotemporal Degeneration (AFTD)501(c)(3)$9.1 millionRadnor, PA
3International Myeloma Foundation501(c)(3)$16 millionNorth Hollywood, CA
4Muscular Dystrophy Association501(c)(3)$110 millionChicago, IL
5Arthritis Foundation501(c)(3)$86 millionAtlanta, GA
6The ALS Association - ALS Association Golden West Chapter501(c)(3)$7.5 millionAgoura Hills, CA
7Lupus Foundation of America501(c)(3)$16 millionWashington, DC
8Epilepsy Foundation of America (EFA)501(c)(3)$23 millionLandover, MD
9National Multiple Sclerosis Society Greater New England Chapter501(c)(3)$11 millionWaltham, MA
10National Multiple Sclerosis Society Greater Northwest Chapter501(c)(3)$7.0 millionSeattle, WA
11National Multiple Sclerosis Society Upper Midwest Chapter501(c)(3)$7.7 millionMinneapolis, MN
12National Hemophilia Foundation501(c)(3)$22 millionNew York, NY
13Alpha-1 Foundation501(c)(3)$10 millionMiami, FL
14National Organization for Rare Disorders (NORD)501(c)(3)$48 millionQuincy, MA
15Arthritis Foundation Pacific Region501(c)(3)$7.7 millionLos Angeles, CA
16National Multiple Sclerosis Society New York City- Southern New York Chapter501(c)(3)$8.8 millionNew York, NY
17South Central Chapter of the National Multiple Sclerosis Society501(c)(3)$24 millionHouston, TX
18United Spinal Association501(c)(3)$8.3 millionKew Gardens, NY
19Colorectal Cancer Alliance (CCA)501(c)(3)$8.8 millionWashington, DC
20Ovarian Cancer Research Alliance501(c)(3)$9.7 millionNew York, NY
21American Lung Association501(c)(3)$107 millionChicago, IL
22Melanoma Research Alliance (MRA)501(c)(3)$24 millionWashington, DC
23American Parkinson Disease Association (APDA)501(c)(3)$10 millionStaten Island, NY
24Jeffrey Modell Foundation (JMF)501(c)(3)$11 millionNew York, NY
25Foundation Fighting Blindness (FFB)501(c)(3)$53 millionColumbia, MD