Epilepsy Foundation of Greater Los Angel

Specialty care: improve access to and quality of specialty care to improve outcomes for children with Epilepsy. Efla does this by helping expedite care through our 800# helpline and funding pediatric epileptologist fellows through our care and cure initiatives. Since 2006, efla has partnered with many of the major medical centers in the Greater Los angeles, raising funds for the medical training of 45 fellows. Some of the partnering medical Epilepsy centers in our region include: (a) ucla david geffen school of medicine (b) children's hospital Los angeles (c) usc keck school of medicine.

Supportive care: promote seizure freedom and safety to improve & save lives. Organized and offered a variety of virtual activities to disseminate information and updates on Epilepsy and Epilepsy treatment. Efla conducted Epilepsy and seizure first aid training in the community, monthly Epilepsy 101 sessions with families and individuals affected by Epilepsy, monthly seizure first aid training certification courses, monthly support groups, partnered with local Epilepsy centers and community agencies to host multiple virtual educational session on various topics, provided training and updates on Epilepsy to school nurses and school personnel. Efla connects people affected by Epilepsy to one another to build community and support and to ultimately empower them to pursue their utmost quality of life. Efla does this by offering multiple networking activities for children and adults with Epilepsy and loved ones of people with Epilepsy such as family and childrens camps, employment readiness workshops, book clubs, and other social activities. Through the 800# helpline, efla helps people navigate their Epilepsy journey by providing information and referral and offers an emergency assistance program.

Public education & awareness: promote understanding, fairness, access and justice for those with Epilepsy. Promoted awareness about Epilepsy and efla through community events, website and social media so that more people are informed and inspired to join the fight to end Epilepsy together. Promoted awareness to grow the number of grassroot advocates. Efla led state efforts to educate the California legislature and other key stakeholders regarding a current law that discriminates against people with the diagnosis of Epilepsy. Efla supported state and federal measures that benefit people with Epilepsy, and continued involvement with various advocacy coalitions with similar goals. In conjunction with the Epilepsy Foundation of america, we participated in nationwide advocacy through the public policy institute and teens speak up to advocate for more funding for Epilepsy research and public health education and engage young people as advocates. Education to the public-at-large was delivered through seizure recognition and first aid trainings to employers, schools, and through partner community agencies. Efla participated in the California school nurses organization's annual conference to update school nurses on the latest treatments in Epilepsy and how best to support students with seizures.