Program areas at Lupus Foundation of America
Mission: the Lupus Foundation of America is the nation's leading non-profit voluntary health organization dedicated to Lupus. Our mission is to improve the diagnosis and treatment of Lupus, support individuals and families affected by the disease, increase awareness of the Lupus among health professionals and the pubilc, and the causes and cure. Community outreach and public awareness: the goal of the program is to increase knowledge about Lupus among the professional and lay public. The program has four main components including: (1) distribution of nationally approved educational materials at various community health fairs and workplace events; (2) distribution of a quarterly newsletter and the nationally circulated lfa magazine, "Lupus now-; (3) facilitation of educational seminars, workshops and lecture professionals on topics pertaining to Lupus; and (4) reaching public through various media outlets including psa's. On average, the organization provides educational services to more than 600 chapter members and more than 3,700 Lupus patients. The organization handles approximately 650 information and referral calls on an annual basis and distributes approximately 13,000 brochures and fact sheets annually. The organization utilizes an estimated 100 volunteers annually for this program
National affiliiation and research: the chapter maintains membership with the national Lupus Foundation of America to gain access to national programs, services and materials for distribution. This includes support of local and national Lupus research
Direct patient services: the goal of the direct services program is to provide support and advocacy to those living with Lupus. The chapter provides the following services: (1) financial assistance for laboratory testing, medications specific to Lupus treatment and emergency medical assistance; (2) physician referral service with board certified rheumatologists and dermatologists for Lupus patients seeking physicians; (3) a listing of other helpful agencies and community resources is also available; and (4) teen activity group in support of teens living with Lupus and several adult support groups for Lupus patients to share experiences, network and learn coping strategies. The organization services on average between 200 and 250 Lupus patients annually through our direct patient services program
Grants made by Lupus Foundation of America
Who funds Lupus Foundation of America
Grants from foundations and other nonprofits
Personnel at Lupus Foundation of America
Name | Title | Compensation | Date of data |
---|
Rebecca Kramer | President and Chief Executive Officer / Chief Executive Officer and Director / President | $43,778 | 2021-07-27 |
Mary T. Crimmings | Interim Ceo; Senior Vice President, Marketing and Communications | | 2023-03-24 |
Financials for Lupus Foundation of America
Revenues | FYE 09/2022 |
---|
Total grants, contributions, etc. | $166,281 |
Program services | $0 |
Investment income and dividends | $1,407 |
Tax-exempt bond proceeds | $0 |
Royalty revenue | $0 |
Net rental income | $0 |
Net gain from sale of non-inventory assets | $0 |
Net income from fundraising events | $58,531 |
Net income from gaming activities | $0 |
Net income from sales of inventory | $0 |
Miscellaneous revenues | $0 |
Total revenues | $226,219 |
Organizations like Lupus Foundation of America
Organization | Type | Location | Revenue |
---|
Diabetes Foundation of Mississippi | 501(c)(3) | Ridgeland, MS | $568,135 |
The Lupus Foundation of America Heartland Chapter | 501(c)(3) | Saint Louis, MO | $347,391 |
PJ Parkinsons Support Group of Blount | 501(c)(3) | Knoxville, TN | $161,085 |
Tyler Type 1 Diabetes Foundation | 501(c)(3) | Tyler, TX | $92,915 |
Parkinsons Association | 501(c)(3) | Solana Beach, CA | $541,755 |
Lupus Foundation of Colorado | 501(c)(3) | Centennial, CO | $201,969 |
Lupus Foundation of America Lone Star Chapter | 501(c)(3) | Addison, TX | $282,967 |
Lupus Foundation of America New Jersey Chapter | 501(c)(3) | Livingston, NJ | $159,155 |
Lupus Foundation of America Georgia Chapter | 501(c)(3) | Smyrna, GA | $586,075 |
Lupus Foundation of America North Carolina Chapter | 501(c)(3) | Charlotte, NC | $294,285 |
Data update history
June 7, 2023
Updated personnel
Identified 10 new personnel
March 24, 2023
Updated personnel
Identified 26 new personnel
March 1, 2022
Posted financials
Added Form 990 for fiscal year 2019
October 2, 2020
Posted financials
Added Form 990 for fiscal year 2017
September 30, 2020
Posted financials
Added Form 990 for fiscal year 2018
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingState / local levelGala fundraisersFundraising races, competitions, and tournamentsTax deductible donations
General information
- Address
- 405 Main St Ste 512
- Houston, TX 77002
- Metro area
- Houston-The Woodlands-Sugar Land, TX
- Website URL
- lupus.org/texasgulfcoastÂ
- Phone
- (713) 529-0126
IRS details
- EIN
- 76-0112724
- Fiscal year end
- September
- Taxreturn type
- Form 990
- Year formed
- 1984
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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