Gateway Hemophilia Association

Educational events providing educational sessions, social networking, educational mailings and other support for families affected by bleeding disorders. In order to bring the families to a place where they can hear the most up-to-date treatment for bleeding disorders and meet with families living similar lifestyles as they do. Events allow attendees the opportunity to meet, talk and share with hemophilia, and Von Willebrand disease health care professionals to help them make a more educated choice when deciding on their service needs.

Camp Notaclotamongus is full of the usual camp activities, such as fishing, swimming and various sports. In addition, education sessions are set up to help children gain skills in self-care. For example, one major focus is teaching the children how to self infuse (inject themselves with factor to help with clotting) so that they can become more self sufficient in managing their health and increase their freedom to take part in daily activity away from family and caregivers. The treatment center staff also works with campers to help them understand their disorder and to be able to explain their disorder to others. Qualified counselors and volunteers, many of whom have a bleeding disorder undergo training and education on issues related to bleeding disorders. In addition, there is a staff of medical professionals onsite to ensure safety and assist with medical needs.