EIN 23-7367636

Great Lakes Hemophilia Foundation

IRS 501(c) type
501(c)(3)
Num. employees
7
Year formed
1974
Most recent tax filings
2022-09-01
Description
The Great Lakes Hemophilia Foundation educates, supports, and advocates for the bleeding disorders community of Wisconsin. The foundation provides a variety of opportunities for individuals with bleeding disorders such as the Wisconsin bleeding disorders conference, men's groups, and youth programs like cam. Additionally, Great Lakes Hemophilia Foundation advances comprehensive care for people with bleeding disorders through its participation in an integrated regional network of Hemophilia treatment centers enabled by an Hrsa grant. The Hemo is thoughtfully designed to improve patient care.
Total revenues
$1,516,533
2022
Total expenses
$1,471,056
2022
Total assets
$2,295,264
2022
Num. employees
7
2022

Program areas at Great Lakes Hemophilia Foundation

Patient care: Great Lakes Hemophilia Foundation advances the comprehensive care for people with bleeding disorders through its participation in an integrated regional network of Hemophilia treatment centers through a grant from hrsa. The design of the Hemophilia treatment care network provides patients with access to multiple disciplines, each of which has specific expertise in bleeding disorders care. The Hemophilia model has been one of the most successfully managed public health programs in the united states. The substantial socioeconomic benefits of comprehensive services for the Hemophilia population are well documented and include decreased hospital in-patient-days, increased numbers of patients with third-party coverage, lower cost of care, and decreased health care resource utilization. More importantly, studies indicate that persons receiving care through the Hemophilia treatment center network have a reduction in risk of death despite having more severe clinical symptoms compared to those receiving non-treatment-center care.
Public and patient education:great Lakes Hemophilia Foundation supports a comprehensive network of health professionals and patients and their families in providing public education about bleeding disorders. Health care professionals - through the federal grant supported regional network - educate teachers, coaches, emergency room personnel, dentists and other individuals who provide support to individuals with bleeding disorders to ensure safe and healthy outcomes for their patients. In addition, Great Lakes Hemophilia Foundation volunteers attend health fairs and other events to heighten the public's understanding of bleeding disorders and the symptoms to encourage women and girls, in particular, to seek medical support for otherwise potentially undiagnosed conditions. Great Lakes Hemophilia Foundation also manages a strong volunteer advocacy program which educates legislators and other public officials on the interests and challenges of individuals living with bleeding disorders related to public policy issues. Glhf coordinates and mansges a large educational conference annually for patients and their families.
Research/surveillance: Great Lakes Hemophilia Foundation supports the systematic coordinated assessment and recording of health outcomes of individuals with bleeding disorders in a national database. Great Lakes Hemophilia Foundation is a sub grantee of the american thrombosis and hemostasis network (athn) for the cdc community counts project. This database monitors the health of the bleeding disorders population with the goal of optimized quality of life for those affected by bleeding disorders.
Community services and professional education and training:great Lakes Hemophilia Foundation provides a variety of opportunities for individuals with bleeding disorders. The Wisconsin bleeding disorders conference, men's groups, and youth programs like camp klotty pine provide individuals with bleeding disorders an opportunity to network with others living with a bleeding disorder. Camp scholarships are provided to youth. At camp, they are among other kids with bleeding disorders and often learn to infuse therefore gaining independence. Educational scholarships are made available to assist individuals with bleeding disorders to gain meaningful education about their disorder or life skills which in turn leads to job skills that will allow them to gain employment with health insurance benefits.individuals with challenging financial situations may apply for financial assistance through Great Lakes Hemophilia Foundation. Many individuals with bleeding disorders are at or just above the federal poverty levels. Great Lakes Hemophilia Foundation provides assistance to ensure individuals with bleeding disorders can retain health insurance coverage by assisting with cobra payments and insurance premiums. In addition, funds are available to assist with medical bills and basic living needs.great Lakes Hemophilia Foundation is committed to assessing regional training needs and providing training opportunities in its role as the regional core center. As the regional core center, staff provides technical assistance to Hemophilia treatment center staff through training using a variety of techniques. New personnel training is carried out: 1) by staff exchange; 2) through on-the-job training by other team members during team meetings and clinic using a defined set of demonstrated skills and knowledge; 3) at professional meetings; 4) at training programs like the partners program; 5) through contact with other professionals on a state, regional, and national level; and 6) through training from regional core staff that includes informational resource emails, calls and video calls.as the regional core center, Great Lakes Hemophilia Foundation is also committed to helping experienced staff update their knowledge and skills by providing ongoing opportunities for professional training and growth. These opportunities include, but are not limited to providing disciple-specific symposia and annual regional meetings.

Grants made by Great Lakes Hemophilia Foundation

GranteeGrant descriptionAmount
Versiti Wisconsin (BCW)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research To Prevent Complications.$82,495
Rush University Medical CenterTo Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research To Prevent Complications.$65,783
Bleeding and Clotting Disorders Institute (BCDI)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research To Prevent Complications.$56,521
...and 10 more grants made

Who funds Great Lakes Hemophilia Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American Thrombosis and Hemostasis Network (ATHN)Data Management Capacity Research$345,060
Versiti Wisconsin (BCW)Patient Financial Assistance$102,100
Hemophilia Outreach of WisconsinFinancial Assistance$43,500
...and 7 more grants received

Personnel at Great Lakes Hemophilia Foundation

NameTitleCompensation
Danielle Leitner BaxterExecutive Director$134,829
Karin KoppenDirector of Camp and Community Outreach
Joshua WelshPresident$0
Dustin van PeursemTreasurer$0
Andy BarragrySecretary$0
...and 5 more key personnel

Financials for Great Lakes Hemophilia Foundation

RevenuesFYE 09/2022
Total grants, contributions, etc.$1,436,483
Program services$7,211
Investment income and dividends$34,788
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$53,412
Net income from fundraising events$-36,311
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$20,950
Total revenues$1,516,533

Form 990s for Great Lakes Hemophilia Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-092023-08-14990View PDF
2021-092022-08-12990View PDF
2020-092021-08-13990View PDF
2019-092020-10-13990View PDF
2018-092019-09-27990View PDF
...and 11 more Form 990s
Data update history
September 25, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 26, 2023
Received grants
Identified 3 new grant, including a grant for $102,100 from Versiti Wisconsin (BCW)
June 14, 2023
Posted financials
Added Form 990 for fiscal year 2021
May 17, 2023
Received grants
Identified 8 new grant, including a grant for $345,060 from American Thrombosis and Hemostasis Network (ATHN)
May 13, 2023
Updated personnel
Identified 3 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyProvides grantsConducts researchFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingProvides scholarshipsFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
638 N 18th St 108
Milwaukee, WI 53233
Metro area
Milwaukee-Waukesha, WI
Website URL
glhf.org/ 
Phone
(414) 257-0200
IRS details
EIN
23-7367636
Fiscal year end
September
Taxreturn type
Form 990
Year formed
1974
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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