EIN 13-6145280

Familial Dysautonomia Foundation

Name: Familial Dysautonomia Foundation financials for 2022
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

IRS 501(c) type

501(c)(3)

Num. employees

City

New York

State

New York

Year formed

1954

Most recent tax filings

2022-12-01

NTEE code, primary

G50: Nerve, Muscle, and Bone Diseases

Description

The Familial Dysautonomia Foundation supports and operates programs focused on medical care, research, social services, and public education for the benefit of people affected by or at risk for Familial Dysautonomia FD.

Related structure

Familial Dysautonomia Foundation is a parent organization to a group of 2 other organizations.

Also known as...

Dysautonomia Foundation

Total revenues

$1,577,517

2022

Total expenses

$1,830,056

2022

Total assets

$2,168,499

2022

Num. employees

2022

Program areas at Familial Dysautonomia Foundation

The Dysautonomia Foundation supports and operates programs focused on the medical care, research, social services, and public education for the benefit of people affected by or at risk for Familial Dysautonomia fd.

Grants made by Familial Dysautonomia Foundation

Grantee	Grant description	Grant year	Amount
New York University (NYU)	Research & Treatment	2022-12	$998,570

Who funds Familial Dysautonomia Foundation

Grants from foundations and other nonprofits

Grantmaker	Grantmaker tax period	Description	Amount
The Kopelman Foundation	2022-12	To Fund the Recipients Operating Budget	$100,000
Goldman Sachs Philanthropy Fund (GSPF)	2022-12	Medical	$61,800
Fidelity Investments Charitable Gift Fund	2022-06	For Grant Recipient's Exempt Purposes	$57,280
...and 33 more grants received totalling $394,154

Personnel at Familial Dysautonomia Foundation

Name	Title	Compensation	Date of data
Lanie Etkind	Executive Director	$235,000	2022-12-31
Allan Cohen	Treasurer	$0	2023-10-31
Paul B Wexler	Vice President	$0	2022-12-31
Steven S Fass	Secretary	$0	2022-12-31
Steven Kietz	Vice President	$0	2022-12-31
...and 2 more key personnel

Financials for Familial Dysautonomia Foundation

Revenues	FYE 12/2022	FYE 12/2021	% Change
Total grants, contributions, etc.	$638,170	$1,519,164	-58%
Program services	$0	$0	-
Investment income and dividends	$20,987	$8,963	134.2%
Tax-exempt bond proceeds	$0	$0	-
Royalty revenue	$5,073	$3,468	46.3%
Net rental income	$0	$0	-
Net gain from sale of non-inventory assets	$0	$0	-
Net income from fundraising events	$913,287	$855,998	6.7%
Net income from gaming activities	$0	$0	-
Net income from sales of inventory	$0	$0	-
Miscellaneous revenues	$0	$0	-
Total revenues	$1,577,517	$2,387,593	-33.9%

Form 990s for Familial Dysautonomia Foundation

Fiscal year ending	Date received by IRS	Form	PDF link
2022-12	2023-10-31	990	View PDF
2021-12	2022-10-25	990	View PDF
2020-12	2021-11-15	990	View PDF
2019-12	2021-02-19	990	View PDF
2018-12	2019-11-01	990	View PDF
...and 10 more Form 990s

Organizations like Familial Dysautonomia Foundation

Organization	Type	Location	Revenue
The Cure Starts Now	501(c)(3)	Cincinnati, OH	$5,231,630
Myasthenia Gravis Foundation of America (MGFA)	501(c)(3)	Westborough, MA	$4,388,529
National Scleroderma Foundation	501(c)(3)	Danvers, MA	$4,581,467
The Chelsea Hutchison Foundation	501(c)(3)	Aurora, CO	$461,759
Epilepsy Foundation of Greater Los Angel	501(c)(3)	Los Angeles, CA	$1,788,459
Team Gleason Foundation	501(c)(3)	New Orleans, LA	$3,478,549
National Ataxia Foundation Incorporated	501(c)(3)	Minneapolis, MN	$4,581,188
ALS Association Connecticut Chapter	501(c)(3)	Milford, CT	$1,255,316
Cure Sanfilippo Foundation	501(c)(3)	Columbia, SC	$2,707,445
Reflex Sympathetic Dystrophy Syndrome Association of America	501(c)(3)	Milford, CT	$606,080

Data update history

January 20, 2024

Posted financials

Added Form 990 for fiscal year 2022

December 26, 2023

Received grants

Identified 6 new grant, including a grant for $100,000 from The Kopelman Foundation

September 26, 2023

Received grants

Identified 2 new grant, including a grant for $15,000 from J Aron Charitable Foundation

July 29, 2023

Posted financials

Added Form 990 for fiscal year 2021

July 8, 2023

Updated personnel

Identified 2 new personnel

Nonprofit Types

Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities

Issues

HealthDiseases and disorders

Characteristics

Conducts researchFundraising eventsFundraising races, competitions, and tournamentsTax deductible donations

General information

Address: 315 W 39th St 701; New York, NY 10018
Metro area: New York-Newark-Jersey City, NY-NJ-PA
Website URL: familialdysautonomia.org/
Phone: (212) 279-1066

IRS details

EIN: 13-6145280
Fiscal year end: December
Taxreturn type: Form 990
Year formed: 1954
Eligible to receive tax-deductible contributions (Pub 78): Yes

Categorization

NTEE code, primary: G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary: 813212: Health and Disease Research Fundraising Organizations
Parent/child status: Parent of group exemption

Blog articles

Free account sign-up

Want updates when Familial Dysautonomia Foundation has new information, or want to find more organizations like Familial Dysautonomia Foundation?

Create free Cause IQ account

Familial Dysautonomia Foundation

Program areas at Familial Dysautonomia Foundation

Grants made by Familial Dysautonomia Foundation

Who funds Familial Dysautonomia Foundation

Personnel at Familial Dysautonomia Foundation

Financials for Familial Dysautonomia Foundation

Form 990s for Familial Dysautonomia Foundation

Organizations like Familial Dysautonomia Foundation

Nonprofits

Product

Customers

About