EIN 13-5672224

Myasthenia Gravis Foundation of America (MGFA)

IRS 501(c) type
501(c)(3)
Num. employees
2
Year formed
1952
Most recent tax filings
2019-12
Description
Committed to finding a cure for Myasthenia Gravis and closely related disorders, improving treatment options, and providing information and support to people with Myasthenia Gravis through research, education, community programs and advocacy.
Related structure
MGFA is a parent organization to a group of 2 other organizations.

Program areas at MGFA

Evaluating, funding, and disseminating critical research: funding of high impact mg research at prominent universities and medical institutions, including leveraging funds in collaboration with the american brain Foundation to bring new scientists to mg research through fellowships, and funding pilot grants aimed at leading to larger studies. Mgfa maintains the only us mg patient registry, which has been grown to include nearly 3,000 participants. Mgfa sponsors an annual scientific session in conjunction with the meeting of the aanem, attracting as many as 150 attendees. Mgfa provides information to members about research initiatives and progress, and sends e-blasts to more than 20,000 people when there is breaking news.
Information, education, and support: mgfa provides material, information and referral, and education and support programs to help people manage the challenges of living with Myasthenia Gravis. Mgfa is a unified organization that supports the delivery of programs and service through central management of a network of approximately 100 community groups nationwide. Manuals, tools, orientation, networking and training sessions for group leaders are facilitated by the home office. A database of members is maintained, with a new tool implemented to allow for better identification of members and their needs. The Foundation maintains a web resource just for community and support group leaders. Foundation staff respond daily to telephone and email inquiries for those seeking information about mg and connection to community resources. Educational webinars are provided several times a year. Mgfa has a highly engaged medical and scientific advisory board and nurses advisory board, populated by top mg experts who support the organization through review of all materials and information of a medical nature, and who serve as speakers and spokespersons for mgfa as needed.
Awareness and advocacy: mgfa provides over 20 educational brochures on topics important to people living with mg, free of charge to patients and the public. In addition, mgfa provides manuals and information for health care professionals. The mgfa conducts an annual awareness campaign, centered on june as the mg awareness month, reaching out to people through our support groups, an awareness toolkit for all who are interested in raising awareness of mg in their communities, press releases, posters and promotion in social media. The mg walk also serves as a vehicle to grow awareness and link patients and families in more than 35 communities nationwide. Mgfa maintains an extensive website with educational content and news as well as facebook page to promote awareness and the organization's educational mission. Annually, a patient education conference is produced in various locales around the u.s. with a full program of speakers, workshops and exhibitors over 2 days. The focus on mg newsletter covers patient stories, organizational activities, community and support group activities, and research updates and is sent to 25,000 plus people twice a year.

Form 990s for MGFA

Fiscal year endingDate received by IRSFormPDF link
2019-122021-04-02990View PDF
2018-122019-10-25990View PDF
2017-122018-10-16990View PDF
2016-122017-10-18990View PDF
2015-122016-08-08990View PDF
...and 7 more Form 990s

Who funds Myasthenia Gravis Foundation of America (MGFA)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Antoinette and Lawrence Iannotti FoundationGeneral Support$17,500
 Subscribe to view██ ███ ██████ ███ ████$99,999
 Subscribe to view████ █ ██████$99,999
...and 7 more grants received

Grants made by MGFA

GranteeGrant descriptionAmount
American Brain FoundationMedical Research$53,333
 Subscribe to view████ ████$99,999
 Subscribe to view████ ████$9,999
 Subscribe to view████ ████$9,999
 Subscribe to view████ ████$9,999
...and 1 more grants made

Financials for MGFA

RevenuesFYE 12/2019
Total grants, contributions, etc.$2,058,119
Program services$140,777
Investment income and dividends$246,775
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$201,583
Net income from fundraising events$-104,341
Net income from gaming activities$0
Net income from sales of inventory$90
Miscellaneous revenues$36,569
Total revenues$2,579,572

Personnel at MGFA

NameTitleCompensation
Nancy LawBoard Chair / Chief Executive$0
Samantha MastersonChief Executive Officer
Beth UlrichChief Financial Officer
 Subscribe to viewVice President, Development
 Subscribe to viewVice President of Programs and Clinical Care
...and 12 more key personnel

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Nonprofit Types
Issues
Characteristics
Key performance indicators
Total revenues
$2,579,572
2019
Yearly growth
-0.2%
% of revenues
n/a
Total expenses
$2,266,013
2019
Yearly growth
15.9%
% of expenses
n/a
Total assets
$9,512,374
2019
Yearly growth
16.8%
% of assets
n/a
Num. employees
2
2019
Yearly growth
100%
% of total
n/a
General information
Address
290 Turnpike Rd No 5-315
Westborough, MA 01581
Metro area
Worcester, MA-CT
Website URL
myasthenia.org/ 
Phone
(800) 541-5454
IRS details
EIN
13-5672224
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1952
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Parent of group exemption