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EIN 46-5433260

The Dysautonomia Project

IRS 501(c) type
501(c)(3)
Num. employees
3
City
Clearwater
State
Florida
Year formed
2014
Most recent tax filings
2022-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Dysautonomia Project educates healthcare professionals, communities, and patients about dysautonomia through virtual and in-person education/awareness trainings for pediatric nurse practitioners, graduate school nursing students, and other medical professionals. They also distribute and sell TDP books to further educate the community.
Total revenues
$626,154
2022
Total expenses
$253,214
2022
Total assets
$918,188
2022
Num. employees
3
2022

Program areas at The Dysautonomia Project

Provided virtual and in-person education/awareness trainings to pediatric nurse pracitioners, graduate school nursing students, and other medical professionals. Distributed and sold TDP books to educate the community.

Who funds The Dysautonomia Project

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Dwayne Hawkins Family FoundationGeneral Support$50,000
Community Foundation of Tampa Bay (CFTB)Support of Mission$17,500
Ronald & Joyce Wanek FoundationGeneral Fund$15,000
...and 3 more grants received

Personnel at The Dysautonomia Project

NameTitleCompensation
Alexandra KeyExecutive Director$0
Marli LutzMSM Director of Development
Cheryl FaberDirector of Education
Ashleigh Goforth, MSWDevelopment and Events Manager
Karen CrownBoard Member$0
...and 4 more key personnel

Financials for The Dysautonomia Project

RevenuesFYE 12/2022
Total grants, contributions, etc.$684,580
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-92,932
Net income from gaming activities$0
Net income from sales of inventory$34,506
Miscellaneous revenues$0
Total revenues$626,154

Form 990s for The Dysautonomia Project

Fiscal year endingDate received by IRSFormPDF link
2022-122023-06-19990View PDF
2021-122022-08-24990View PDF
2021-122022-05-16990View PDF
2020-122022-08-24990View PDF
2020-122021-05-24990View PDF
...and 6 more Form 990s
Data update history
December 26, 2023
Received grants
Identified 1 new grant, including a grant for $15,000 from Ronald & Joyce Wanek Foundation
September 18, 2023
Updated personnel
Identified 7 new personnel
August 10, 2023
Posted financials
Added Form 990 for fiscal year 2021
August 2, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 25, 2023
Updated personnel
Identified 3 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedFundraising eventsGala fundraisersTax deductible donations
General information
Address
4592 Ulmerton Rd
Clearwater, FL 33762
Metro area
Tampa-St. Petersburg-Clearwater, FL
Website URL
thedysautonomiaproject.org/ 
Phone
(727) 304-1547
IRS details
EIN
46-5433260
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2014
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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