EIN 39-1681338

Down Syndrome Association of Wisconsin

IRS 501(c) type
501(c)(3)
Num. employees
129
Year formed
1990
Most recent tax filings
2022-12-01
Description
Down Syndrome Association of Wisconsin provides support to Wisconsin families and individuals with Down Syndrome and related disabilities through education, information, programs, services, and the exchange of ideas and experience. They offer rehabilitation services to outside clients with Down Syndrome and related disabilities, along with home and community services as well as employment services. Dsaw Housing LLC is a wholly-owned subsidiary aimed at providing community-based housing for individuals with Down Syndrome and related disabilities.
Related structure
Down Syndrome Association of Wisconsin is a parent organization to a group of 2 other organizations.
Total revenues
$3,222,790
2022
Total expenses
$2,998,965
2022
Total assets
$5,130,763
2022
Num. employees
129
2022

Program areas at Down Syndrome Association of Wisconsin

Member events and outreach program: to help make people aware of Down Syndrome, build fraternity and support in communities, and increase acceptance and access for people with Down Syndrome.
Dsaw housing llc: these company is a wholly-owned subsidiary of Down Syndrome Association of Wisconsin, Inc. This was established to provide community-based housing for individuals with Down sydrome and related disabilities.
Family services: to provide rehabilitation services to outside clients with Down Syndrome and related disabilities. Under this program, they also provide home and community services as well as employment services described below.home and community services:children under 18 can utilize children's long term support waiver (clts) to pay for services. Dsaw has contracts with each county where we provide services that lists the maximum dollar amount of services we can provide per year in that county, along with compliance requirements. Then for each individual who we provide services for, we contact their caseworker and receive an authorization to provide services. This authorization lists dates, the type of service to be provided, the units authorized and the unit cost. At the end of each month, dsaw sends the county an invoice for the services that were provided. Adults 18+ can utilize either iris or family care to pay for services. Iris is a self-directed program, and dsaw is an iris provider. Individuals receive a budget and can direct dollars towards services. Fiscal agents (such as ilife and premier), receive the funds from the state and help participants manage their budgets. If individuals choose dsaw, we contact the individual's fiscal agent and receive an authorization with dates, the type of service to be provided, the units authorized and the unit cost. At the end of each month, dsaw sends the fiscal agent an invoice for the services that were provided. Adults 18+ also have a secondary program to choose from, called family care. They work alongside their care manager, rn, guardian and any other idt member that is involved at that time. Dsaw is contracted with a few of the managed care organizations that serve the family care funded program. If the individual adds a service to their plan and dsaw is the chosen service provider, then we receive an authorization and bill for the service at the end of the month. Employment services:dsaw receives referrals to work with individuals directly from the department of workforce development's department of vocational rehabilitation (dvr). Dsaw is a dvr provider in several wdas. Dsaw completes services per the instructions on the referral, and then sends dvr an invoice at the end of each month for the services that were provided.

Grants made by Down Syndrome Association of Wisconsin

GranteeGrant descriptionAmount
Islands of BrillianceSubrecipient for Workforce Innovation Grant$127,257
Disability in WisconsinSubrecipient for Workforce Innovation Grant$18,439

Who funds Down Syndrome Association of Wisconsin

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Greater Milwaukee Foundation (GMF)Support for Intellectual Development Disability Housing$75,000
Schwab Charitable FundHuman Services$61,800
American Online Giving FoundationGeneral Support$9,196
...and 15 more grants received

Personnel at Down Syndrome Association of Wisconsin

NameTitleCompensation
Dawn NuofferPresident and Chief Executive Officer$161,537
Jim FackelmanPresident$0
Wendy BushellBoard Member$0
Joe MalloyTreasurer$0
Julie AguilarPresident Director$0
...and 6 more key personnel

Financials for Down Syndrome Association of Wisconsin

RevenuesFYE 12/2022
Total grants, contributions, etc.$2,058,469
Program services$1,249,198
Investment income and dividends$4,854
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$1,089
Net income from fundraising events$-75,370
Net income from gaming activities$-16,788
Net income from sales of inventory$0
Miscellaneous revenues$1,338
Total revenues$3,222,790

Form 990s for Down Syndrome Association of Wisconsin

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-15990View PDF
2021-122022-11-15990View PDF
2020-122021-11-15990View PDF
2019-122021-02-26990View PDF
2018-122020-01-21990View PDF
...and 11 more Form 990s
Data update history
January 7, 2024
Posted financials
Added Form 990 for fiscal year 2022
December 26, 2023
Used new vendors
Identified 1 new vendor, including
December 23, 2023
Received grants
Identified 3 new grant, including a grant for $3,000 from Marjorie L Christiansen Foundation
August 17, 2023
Updated personnel
Identified 17 new personnel
August 5, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthHuman servicesDiseases and disordersDevelopmentally disabled
Characteristics
Conducts researchLobbyingFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
11709 W Cleveland Ave 2
West Allis, WI 53227
Metro area
Milwaukee-Waukesha, WI
Website URL
dsaw.org/ 
Phone
(414) 327-3729
IRS details
EIN
39-1681338
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1990
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Parent of group exemption
Central organization
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