EIN 43-1108833

Down Syndrome Association of Greater St Louis

IRS 501(c) type
501(c)(3)
Num. employees
12
Year formed
1976
Most recent tax filings
2022-12-01
Description
Supports, serves and celebrates individuals with Down Syndrome and their families through every stage of life. Offers educational and social programs. Located in St. Louis, MO.
Total revenues
$1,150,647
2022
Total expenses
$1,046,936
2022
Total assets
$1,734,878
2022
Num. employees
12
2022

Program areas at Down Syndrome Association of Greater St Louis

The organization supported individuals and families through the following programs: new parent support, first birthday program/celebration baskets, parent to parent network and mentor program, ages and stages book program, volunteer staffing for Down Syndrome center at children's hospital, regional community groups, family events (family picnics, holiday party), sharing our strategies resource network, information and referral, resource library, health professional outreach, support caregivers of aging adults with Down Syndrome, and educational advocacy and support.
The organization provided the following public awareness and advocacy programs: step up for Down Syndrome (suds) awareness walk, walk in the park, run for 21, world Down Syndrome day, Down Syndrome awareness month, friends for all seasons calendar, awareness bracelets and apparel, social media campaigns, e-communications, publications, and legislative advocacy.
The organization provided the following educational programs: small steps therapy camp and therapeutic playgroups, dsagl rocks music program, conferences, seminars & workshops, steps to independence classes for adults with Down Syndrome, Down Syndrome education specialists program, ready to work employment initiative, community education and outreach, and pop up snack shop social enterprise and job training program.

Who funds Down Syndrome Association of Greater St Louis

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Youthbridge Community FoundationProgram Activity Funding$25,650
Schwab Charitable FundHealth$19,825
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$16,739
...and 10 more grants received

Personnel at Down Syndrome Association of Greater St Louis

NameTitleCompensation
Erin SuelmannExecutive Director
Greg SzczepanBoard$0
Dwayne WorleySecretary$0
Matthew KaneVice President$0
Joe NiemeyerTreasurer$0
...and 4 more key personnel

Financials for Down Syndrome Association of Greater St Louis

RevenuesFYE 12/2022
Total grants, contributions, etc.$418,761
Program services$42,788
Investment income and dividends$28,545
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$655,851
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$4,702
Total revenues$1,150,647

Form 990s for Down Syndrome Association of Greater St Louis

Fiscal year endingDate received by IRSFormPDF link
2022-122023-09-11990View PDF
2020-122021-08-12990View PDF
2019-122021-02-17990View PDF
2018-122020-02-06990View PDF
2017-122018-08-13990View PDF
...and 11 more Form 990s
Data update history
October 26, 2023
Received grants
Identified 2 new grant, including a grant for $10,303 from The Blackbaud Giving Fund
October 24, 2023
Posted financials
Added Form 990 for fiscal year 2022
October 24, 2023
Updated personnel
Identified 9 new personnel
July 22, 2023
Received grants
Identified 6 new grant, including a grant for $35,000 from Youthbridge Community Foundation
May 8, 2023
Received grants
Identified 1 new grant, including a grant for $5,000 from Herbert and Adrian Woods Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingState / local levelCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
1300 Strassner Dr
Saint Louis, MO 63144
Metro area
St. Louis, MO-IL
Website URL
dsagsl.org/ 
Phone
(314) 961-2504
IRS details
EIN
43-1108833
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1976
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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