Program areas at CPF
The Foundation provides financial support to rigorously reviewed, scientifically important research relevant to Cerebral Palsy and other developmental disabilities. The Foundation also provides medical expertise as requested by other organizations and serves as a resource for the international public, clinicians and policy-makers about best health care practices, prevention and curative strategies for Cerebral Palsy. The Foundation is also focusing its attention on research directed at issues of early diagnosis, mechanisms of nervous system injury and repair, regenerative treatments, neurological rehabilitation, orthopedic rehabilitation and engineering solutions as well as research to prevent the secondary neuromuscular, musculoskeletal and cardiovascular complications seen in adults with Cerebral Palsy. There are approximately 1 million children and adults in the usa with Cerebral Palsy and related developmental disabilities, more clinical and basic biomedical research is urgently needed for improving neurological functions, preventing medical complications, and optimizing quality of life in these individuals from infancy through adulthood.
Who funds Cerebral Palsy Foundation (CPF)
Grants from foundations and other nonprofits
Personnel at CPF
| Name | Title | Compensation | Date of data |
|---|
| Rachel Jordan | Executive Director / Project Director | $186,542 | 2022-04-20 |
| Rebecca Lam | Project Manager | $102,365 | 2021-09-30 |
| Richard Ellenson | Former Chief Executive Officer / Chief Executive Officer and President | $314,500 | 2021-09-30 |
| Michelle Kassner | Chairman of the Board / Chairman / Current Chair of the Board / Director / Board Member | $0 | 2021-09-30 |
| James P Volcker | V.P and Secretary / Vice President , Secretary / Assistant Secretary | $0 | 2021-09-30 |
| ...and 6 more key personnel |
Financials for CPF
| Revenues | FYE 09/2022 | FYE 09/2021 | % Change |
|---|
| Total grants, contributions, etc. | $1,916,963 | $1,867,379 | 2.7% |
| Program services | $230,538 | $146,196 | 57.7% |
| Investment income and dividends | $5,085 | $2,010 | 153% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $-832 | $-900 | 7.6% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $2,151,754 | $2,014,685 | 6.8% |
Organizations like CPF
| Organization | Type | Location | Revenue |
|---|
| Huntington's Disease Society of America (HDSA) | 501(c)(3) | New York, NY | $10,709,965 |
| National Down Syndrome Society (NDSS) | 501(c)(3) | Washington, DC | $3,651,955 |
| Osteogenesis Imperfecta Foundation | 501(c)(3) | Gaithersburg, MD | $2,112,061 |
| National MPS Society | 501(c)(3) | Durham, NC | $1,902,823 |
| Williams Syndrome Association | 501(c)(3) | Troy, MI | $1,472,394 |
| Lumind Idsc Foundation | 501(c)(3) | Burlington, MA | $5,267,215 |
| Save One Life | 501(c)(3) | Danvers, MA | $1,621,245 |
| Austin Plastic Surgery Foundation Austin Smiles | 501(c)(3) | Austin, TX | $720,885 |
| Kids Center for Pediatric Therapies | 501(c)(3) | Louisville, KY | $5,668,865 |
| Hereditary Neuropathy Foundation | 501(c)(3) | New York City, NY | $1,259,879 |
Data update history
May 10, 2023
Updated personnel
Identified 2 new personnel
May 8, 2023
Received grants
Identified 1 new grant, including a grant for $32,915 from PayPal Giving Fund November 18, 2022
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyNational levelEndowed supportGala fundraisersTax deductible donations
General information
- Address
- 3 Columbus Cir Floor Suite 15th
- New York, NY 10019
- Metro area
- New York-Newark-Jersey City, NY-NJ-PA
- County
- New York County, NY
- Website URL
- yourcpf.org/Â
- Phone
- (212) 520-1686
- Facebook page
- cerebralpalsyfoundationÂ
- Twitter profile
- @yourcpfÂ
IRS details
- EIN
- 13-6093337
- Fiscal year end
- September
- Taxreturn type
- Form 990
- Year formed
- 1955
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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