Grants for genetic disorder organizations

Name: Top 25 grants made to genetic disorder and birth defect organizations
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

314 genetic disorder and birth defect organizations received at least $7.4 million in grants for the most recent fiscal year. This includes 517 grants made from 368 grantmaking organizations, with a median grant amount of $1,000. Of these 368 foundations, 88% made just a single grant to birth disorder orgs, and 4% made grants to four or more birth disorder orgs. This analysis is based on grantmakers that e-file their Form 990s, and likely is an undercount of grants.

$7,371,597

Total grant dollars given to genetic disorder organizations

517

Number of grants made annually to genetic disorder organizations

368

Number of grantmakers funding genetic disorder organizations

$1,000

Median grant size to genetic disorder organizations

Foundations that support genetic disorder and birth defect organizations

Out of all grants made to genetic disorder organizations, 76% came from small foundations with less than $10 million in assets. The top 10 grantmakers accounted for 88% of the dollar-value of grants to birth disorder orgs. Foundations funding birth disorder orgs also made grants to multiservice human service organizations, scholarship organizations, specific population service providers, food banks, and educational service providers.

Foundation size

Foundation size	Number of grantmakers
Small	283
Medium	44
Large	41

Small foundations have <$10M in assets. Medium foundations have $10M to $50M in assets. Large foundations have >$50M in assets.

Foundation type

Foundation type	Number of grantmakers
Community	12
Private	292
Corporate	30
Other	34

Grants made

Grants made to birth disorder orgs	Number of grantmakers
1	327
2-3	23
4-10	15
11+	3

Top 10 foundations supporting genetic disorder and birth defect organizations

Grantmaker	State	Geographic focus	Percent of grant dollars to birth disorder orgs	Number of grants made to birth disorder orgs	Median grant size
Abbvie Foundation	IL	National	0.0%	20	$203
Community Foundation of Middle Tennessee (CFMT)	TN	Metro	0.0%	16	$277
Colburn-Keenan Foundation	CT	National	6.3%	13	$1,000
Seattle Foundation	WA	State	0.0%	10	$2,000
Shell Oil Company Foundation	TX	National	0.0%	8	$375
Baird Foundation	WI	National	0.2%	7	$500
JP Morgan Chase Foundation	NY	National	0.0%	7	$430
Arthur J Gallagher Foundation	IL	National	0.2%	7	$135
Dollar General Literacy Foundation	TN	National	0.1%	6	$2,500
Synchrony Foundation	CT	National	0.0%	6	$260

See all grantmaking to genetic disorder organizations

Genetic disorder and birth defect organizations grantees

Genetic disorder organizations with more than $5 million in total revenues received 91% of all grant dollars. These larger organizations accounted for 29% of all birth disorder orgs.

Grant amounts

Size of grant	Number of grants
<$10k	516
$10k-$25k	0
$25k-$100k	0
$100k+	1

Grant amount by grantee size

Grantee annual revenue	Median grant size
<$100k	$1,000
$100k-$500k	$1,000
$500k-$1M	$1,500
$1M-$5M	$1,000
>$5M	$1,800

Grantee states

State of grantee	Number of grants
New York	61
Texas	57
California	36
Ohio	34
Other	329

Grantee metros

Metro area of grantee	Number of grants
New York City	60
Chicago	28
Denver	25
Dallas	19
Other	335

Top 25 grants made to genetic disorder organizations

Grantee	Grant size	Purpose	Grantmaker
United Cerebral Palsy of Los Angeles Ventura and Santa Barbara Counties (UCPLA)	$6,410,000	To Support the Cost of Momentum's Various Program Activities.	Spastic Children's Endowment Foundation
Capper Foundation	$5,000	General Operating	Elise M Malley Tua
Down Syndrome Association of Greater St Louis	$5,000	Exempt Purpose	MassMutual Foundation
The Mcmains Children's Developmental Center	$5,000	General Assistance	Zurich Classic of New Orleans
Easter Seals Greater Houston	$5,000	Support Non-Profit Healthcare Org	Texas Children's Hospital (TCS)
HMS School for Children with Cerebral Palsy	$5,000	Educational Grant	William T Vogt and Lorine E Vogt Charitable Foundation
Spina Bifida Kansas Club	$5,000	Charity Alliance	Global Impact
Easter Seals Greater Houston	$5,000	Community QB Award	Houston Texans Foundation
The Center for Discovery	$5,000	General Operating Purpose	Mutual of America Foundation
Cerebral Palsy Foundation (CPF)	$5,000	Community Life	Barbara Bradley Baekgaard Family Foundation
Down Syndrome Association of Central Ohio	$5,000	Program Support	Western Reserve Health Foundation
AccessCNY	$5,000	Donation To Support Organization's Daily Operation	Jim and Juli Boeheim Foundation
GiGi's Playhouse	$5,000	Grant Would Be To Provide One on One Literacy Tutoring To Those Who Attend Gigi's Play House. the Literacy Program Builds Upon Each of the Five Components Reading Instruction.	Jim and Juli Boeheim Foundation
Down Syndrome Association of Greater Cincinnati	$5,000	Given To the Charity's General Fund To Be Used As They See Fit	Marge & Charles J Schott Foundation
National Sports Center for the Disabled	$5,000	Donation	Horejsi Charitable Foundation
GiGi's Playhouse	$5,000	Disease/disorder	Greater Houston Community Foundation
United Cerebral Palsy Seguin of Greater Chicago	$5,000	General Purpose	William and Rosemary Pacella Family Foundation
Special Equestrians	$5,000	General Support	The Olsten Family C Foundation
Down Syndrome Association of Wisconsin	$5,000	To Support Programs and Services in Central Wisconsin	Judd S. Alexander Foundation
GiGi's Playhouse	$5,000	Support for General Operations	J. W. and Ida M. Jameson Foundation
United Cerebral Palsy Association of OC	$5,000	General Operating	Mckenzie Memorial Fund Eva L Tua
Down Syndrome Association of Houston	$5,000	Human Rightsorganizationfor Downs Syndrome	Anya and Aarav Bhojwani Foundation
Down Syndrome Association of Central Ohio	$5,000	General Support of Organization	Cooper Family Foundation
Hemophilia Federation of America (HFA)	$5,000	Support Activities That Benefit the Bleeding Disorders and Chronic Illness Communitie	Colburn-Keenan Foundation
United Hemophilia Foundation	$5,000	Support Activities That Benefit the Bleeding Disorders and Chronic Illness Communitie	Colburn-Keenan Foundation

See all grants to genetic disorder organizations

Methodology: To determine grants and grantees, Cause IQ analyzes electronically-filed Form 990, Form 990-EZ, and Form 990-PF financial disclosure documents, matching grantees to specific organizations using EINs and fuzzy matching logic. The "Genetic disorder organizations" category for this page is determined by the "G20: Birth Defects and Genetic Diseases" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.