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Disease and disorder focused research and public policy institutes

There are 65 disease-focused research institutes in the United States. Combined, these disease-focused research institutes employ 32 people, earn more than $17 million in revenue each year, and have assets of $26 million.
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Job trends for Disease-focused research institutes

Employees per organizationNumber of organizations
0
 
8
1-10
 
5
11-25
 
0
26-100
 
0
101 to 1,000
 
0
1,000+
 
0
Key takeaways for employment stats:

Sizes of disease-focused research institutes

Revenues per organizationNumber of organizations
< $250k
 
10
$250k to $1M
 
4
$1M to $5M
 
3
$5M to $25M
 
1
$25M to $100M
 
0
$100M+
 
0
Key takeaways for revenue stats:

Directory of disease-focused research institutes

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1-20 of 65

FOXG1 Research

FOXG1 Research drives global efforts to cure FOXG1 syndrome, funds innovative studies, advocates for patients, and supports families affected by neurological disorders.
Revenue
$6.9m
Assets
$6.4m
Employees
0
EIN
82-5300929
IRS type
501(c)(3)

Personalized Medicine Coalition

Personalized Medicine Coalition promotes personalized medicine adoption, educates decision-makers and advocates for modernized regulatory policies.
Revenue
$2.1m
Assets
$1.7m
Employees
8
EIN
54-2134884
IRS type
501(c)(3)

The Johnson Center for Child Health and Development

Advancing childhood development understanding through clinical care, research, education & outreach. Lectures, studies, & collaborations with caregivers and professionals.
Revenue
$1.7m
Assets
$1.2m
Employees
9
EIN
20-0802572
IRS type
501(c)(3)

Center for Disease Dynamics Economics and Policy

CCDEP advances worldwide health and wellbeing by studying antibiotic resistance and evaluating the benefits of early childhood nutrition.
Revenue
$3.7m
Assets
$15.1m
Employees
8
EIN
27-3235008
IRS type
501(c)(3)

Global Pandemic Prevention and Biodefense Center

Global Pandemic Prevention and Biodefense Center is a disease or disorder focused research or public policy institute in MC Lean, VA that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
87-2108020
IRS type
501(c)(3)

American Institute For Voice And Ear Research

Clinical & basic Research on the causes, prevention, treatment of Ear & Voice disorders. Development of audiometric testing to detect hearing loss at an earlier stage.
Revenue
$78.9k
Assets
$133.1k
Employees
0
EIN
23-2222726
IRS type
501(c)(3)

International Society for the Trace Element Research In Humans

International Society for the Trace Element Research in Humans encourages and promotes increased scientific and clinical research on the causes, alleviation of suffering, and cure of trace element disorders with a mission of medical research.
Revenue
$0
Assets
$13.1k
Employees
N/A
EIN
45-3577363
IRS type
501(c)(3)

Orthopedic and Neurologic Research Institute

Orthopedic and Neurologic Research Institute is a disease or disorder focused research or public policy institute in Fort Worth, TX, which was founded in 2019 and most recently had $152,016 in revenue and no employees.
Revenue
$152.0k
Assets
$27.4k
Employees
N/A
EIN
83-3745449
IRS type
501(c)(3)

Bone and Joint Clinic of Baton Rouge Research Foundation

Bone and Joint Clinic of Baton Rouge Research Foundation is a disease or disorder focused research or public policy institute in Baton Rouge, LA that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-2092130
IRS type
501(c)(3)

Global Support Initiatives

Global Support Initiatives is a disease or disorder focused research or public policy institute in Moorhead, MN that was founded in 2013.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
80-0665364
IRS type
501(c)(3)

Metco Directors Association (MDA)

MDA provides educational and social experiences for all students, with a focus on creating opportunities for children of color.
Revenue
$341.8k
Assets
$189.0k
Employees
0
EIN
37-1574499
IRS type
501(c)(3)

Integrative Health Research and Evaluation

Integrative Health Research and Evaluation is a disease or disorder focused research or public policy institute in Atlanta, GA that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-4084695
IRS type
501(c)(3)

F A R Institute

Fari's intent is to improve healthcare delivery by performing and supporting research to develop and utilize innovative techniques for analysis of data within electronic medical records.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
46-0884268
IRS type
501(c)(3)

Heart Valve Collaboratory

Heart Valve Collaboratory catalyzes clinical research and advances regulatory science through collaborative projects on valvular heart disease with stakeholders.
Revenue
$241.2k
Assets
$171.4k
Employees
0
EIN
85-3443532
IRS type
501(c)(3)

T1International USA T1International

T1international empowers communities worldwide to advocate for their rights and access to diabetes care and supplies.
Revenue
$285.0k
Assets
$297.2k
Employees
5
EIN
84-2544817
IRS type
501(c)(3)

Alliance for Longevity Initiatives Foundation

Alliance for Longevity Initiatives Foundation is a disease or disorder focused research or public policy institute in PRT Washingtn, NY that was founded in 2025.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
33-2071244
IRS type
501(c)(3)

Institute Advancing Womens Health I NC

Institute Advancing Womens Health I NC is a disease or disorder focused research or public policy institute in Mercer Island, WA that was founded in 2026.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
30-1482341
IRS type
501(c)(3)

Gift of Light Charitable Foundation

Gift of Light Charitable Foundation is a disease or disorder focused research or public policy institute in Chicago, IL that was founded in 2012.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
45-3863714
IRS type
501(c)(3)

Atg Project

Atg Project is a disease or disorder focused research or public policy institute in Chapel Hill, NC that was founded in 2026.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
39-5159794
IRS type
501(c)(3)

Regenemed-Center for Translational Medicine

Regenemed-Center for Translational Medicine is a disease or disorder focused research or public policy institute in Ann Arbor, MI that was founded in 2014.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
46-2348064
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G05: Voluntary Health Associations and Medical Disciplines Research Institutes and Public Policy Analysis" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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