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Rochester, NY disease-focused nonprofits

There are 81 medical disease and disorder focused nonprofits in the greater Rochester New York metro area. Combined, these Rochester metro disease-focused nonprofits employ 265 people, earn more than $25 million in revenue each year, and have assets of $57 million.
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Types of disease-focused nonprofits in Rochester

Nonprofit typeNumberRevenues
Cancer nonprofits
 
25
 
$7,599,603
Organizations focused on specific diseases
 
16
 
$7,509,791
Medical specialty organizations
 
8
 
$1,107,353
Disease and disorder focused professional societies
 
7
 
$2,096,906
Organizations supporting multiple disease or disorder focused nonprofits
 
6
 
$0
Genetic disorder and birth defect organizations
 
5
 
$196,281
Autism awareness organizations
 
5
 
$5,364,475
Organ disease nonprofits
 
5
 
$1,585,325
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations
 
3
 
$5,052,687
HIV / AIDS focused organizations
 
2
 
$57,213
Showing 10 of 12 categories

Job trends for Rochester, NY disease-focused nonprofits

Employees per organizationNumber of organizations
0
 
14
1-10
 
6
11-25
 
2
26-100
 
3
101 to 1,000
 
1
1,000+
 
0
Key takeaways for employment stats:

Sizes of disease-focused nonprofits in Rochester

Revenues per organizationNumber of organizations
< $250k
 
26
$250k to $1M
 
9
$1M to $5M
 
6
$5M to $25M
 
2
$25M to $100M
 
0
$100M+
 
0
Key takeaways for revenue stats:

Directory of disease-focused nonprofits in Rochester

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1-20 of 81

Huntington Study Group (HSG)

The Huntington Study Group (HSG), which was formed in 1993, is the world's first HD cooperative therapeutic research organization. To be an invaluable research partner to Families, HSG Members, Sponsors, and Partners.
Revenue
$5.0m
Assets
$8.1m
Employees
36
EIN
45-5557987
IRS type
501(c)(3)

AutismUp

AutismUp supports individuals with autism and their families in Rochester, NY through programs that enhance their quality of life.
Revenue
$5.3m
Assets
$4.5m
Employees
113
EIN
04-3833868
IRS type
501(c)(3)

Pluta Cancer Center Foundation

Pluta Cancer Center Foundation supports patients by offering financial assistance and integrative oncology programs to alleviate Cancer treatment symptoms and side effects.
Revenue
$2.0m
Assets
$9.7m
Employees
6
EIN
27-0425383
IRS type
501(c)(3)

Cure Childhood Cancer Association

The Cure Childhood Cancer Association supports families facing pediatric cancer through emotional, educational, and financial assistance, promoting peer support and academic continuity.
Revenue
$1.2m
Assets
$2.8m
Employees
7
EIN
51-0215037
IRS type
501(c)(3)

Cancer Support Community Rochester

Free Rochester-based support community for cancer patients, offering emotional support through advocacy, referral services, and educational programs.
Revenue
$979.8k
Assets
$4.3m
Employees
10
EIN
16-0836556
IRS type
501(c)(3)

Council on Alcoholism and Other Chemical Dependencies of the Finger Lakes

The Council On Alcoholism is dedicated to the prevention of alcohol/drug abuse within the central five county Finger Lakes Region of Ontario, Schuyler, Seneca, Wayne and Yates counties.
Revenue
$1.7m
Assets
$520.5k
Employees
31
EIN
16-1270622
IRS type
501(c)(3)

Breast Cancer Coalition of Rochester (BCCR)

To provide support to those touched by a diagnosis of breast cancer, to make access to information and care a priority through education and advocacy, and to empower women and men to participate fully in decisions relating to breast cancer.
Revenue
$1.8m
Assets
$5.5m
Employees
15
EIN
16-1541293
IRS type
501(c)(3)

Bridges for Brain Injury

Nonprofit that guides those with brain injuries to independence through rehabilitation and wildlife education programs.
Revenue
$1.6m
Assets
$1.8m
Employees
30
EIN
13-4367970
IRS type
501(c)(3)

Indo-American Eye Care Society

Indo-American Eye Care Society promotes affordable eye care and provides medical equipment for hospitals in Hyderabad, India.
Revenue
$1.3m
Assets
$10.3m
Employees
0
EIN
13-3358601
IRS type
501(c)(3)

Jordyn Torrey Augello Memorial Foundation

The Jordyn Torrey Augello Memorial Foundation supports cancer patients and their families while promoting community among them and assisting local youth athletic programs.
Revenue
$21.4k
Assets
$29.2k
Employees
N/A
EIN
85-0836228
IRS type
501(c)(3)

Good for Mens Prostate Health Incorporated

Good for Mens Prostate Health Incorporated is a cancer nonprofit in Hilton, NY that was founded in 2013.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
46-2734630
IRS type
501(c)(3)

National Federation of the Blind of New York State

The NFB of New York is made up of blind and sighted people working to improve the lives of blind New York residents by providing assistance and services to parents, blind workers, and consumers of rehabilitation services. Self-help for the blind.
Revenue
$301.2k
Assets
$327.4k
Employees
0
EIN
16-6028451
IRS type
501(c)(3)

John C Sable Memorial Heart Fund

The John C Sable Memorial Heart Fund supports cardiovascular research grants, promotes awareness, and funds fellowships for young doctors to combat heart disease.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
16-6035197
IRS type
501(c)(3)

Human Paratuberculosis Foundation

The Human Paratuberculosis Foundation advances education and research on human MAP's role in Crohn's and other immune-mediated diseases, supporting patients and clinicians.
Revenue
$15.3k
Assets
$32.7k
Employees
N/A
EIN
81-5108055
IRS type
501(c)(3)

Be Unintimidated

To encourage support and advocate for treatment of pcma and other rare forms of cancer through direct research grants and travel support for family members. Cancer awareness & education.
Revenue
$42.1k
Assets
$66.1k
Employees
0
EIN
46-1936854
IRS type
501(c)(3)

New York State Peri Anesthesia Nurses Association

The New York State perianesthesia Nurses Association, nyspana, with its 938 members advances nursing practice through education, research and standards. This year nyspana won aspan's 2012 gold leaf award, the newsletter award, and the abpanc shining star.....
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
13-2986552
IRS type
501(c)(6)

Hemophilia Foundation of Upstate New York

Hemophilia Foundation of Upstate New York is an organizations supporting multiple disease or disorder focused nonprofit in Rochester, NY that was founded in 2010.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
27-2555684
IRS type
501(c)(3)

Ellaniel Foundation

Ellaniel Foundation is a medical specialty organization in Churchville, NY that was founded in 2025.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
33-4723307
IRS type
501(c)(3)

Campaign D

Campaign D is an autism awareness organization in Rochester, NY that was founded in 2019.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
84-3362886
IRS type
501(c)(3)

Big Helping Little

Big Helping Little supports, provides resources to, and raises awareness for families of children with rare diseases and genetic disorders, extensive medical needs, and similar conditions and hardships.
Revenue
$36.5k
Assets
$4,945
Employees
N/A
EIN
84-4626031
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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