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Rochester, NY disease-focused nonprofits

There are 88 medical disease and disorder focused nonprofits in the greater Rochester New York metro area. Combined, these Rochester metro disease-focused nonprofits employ 3,049 people, earn more than $139 million in revenue each year, and have assets of $146 million.
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Types of disease-focused nonprofits in Rochester

Nonprofit typeNumberRevenues
Cancer nonprofits
 
27
 
$7,296,302
Organizations focused on specific diseases
 
13
 
$21,400,602
Genetic disorder and birth defect organizations
 
9
 
$63,083,165
Organizations supporting multiple disease or disorder focused nonprofits
 
8
 
$65,717
Medical specialty organizations
 
7
 
$761,118
Disease and disorder focused professional societies
 
7
 
$1,010,288
Organ disease nonprofits
 
7
 
$3,378,024
Autism awareness organizations
 
5
 
$2,096,374
Arthritis, muscular dystrophy, multiple sclerosis, and epilepsy organizations
 
3
 
$40,036,710
HIV / AIDS focused organizations
 
2
 
$0
Showing 10 of 13 categories

Job trends for Rochester, NY disease-focused nonprofits

Employees per organizationNumber of organizations
0
 
13
1-10
 
6
11-25
 
3
26-100
 
4
101 to 1,000
 
4
1,000+
 
1
Key takeaways for employment stats:

Sizes of disease-focused nonprofits in Rochester

Revenues per organizationNumber of organizations
< $250k
 
32
$250k to $1M
 
5
$1M to $5M
 
8
$5M to $25M
 
4
$25M to $100M
 
2
$100M+
 
0
Key takeaways for revenue stats:

Directory of disease-focused nonprofits in Rochester

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1-20 of 88

Mary M Gooley Hemophilia Center

Mary M. Gooley Hemophilia Center is an independent, Hemophilia Treatment Center based in Rochester serving people that cares for people affected by hemophilia, von willebrand disease, other rare bleeding disorders, hemochromatosis and gaucher's disease.
Revenue
$25.4m
Assets
$28.7m
Employees
11
EIN
16-0836536
IRS type
501(c)(3)

Happiness House

Happiness House is an educational, residential, health and human service organization that excels in providing the highest quality, innovative and cost effective services to children and adults with and without disabilities.
Revenue
$15.0m
Assets
$12.1m
Employees
390
EIN
16-0965912
IRS type
501(c)(3)

Empowering People's Independence (EPI)

To be a successful partner for all individuals with developmental or acquired brain conditions as they strive to remove barriers to their personal fulfillments.
Revenue
$40.0m
Assets
$21.0m
Employees
1,464
EIN
16-1422825
IRS type
501(c)(3)

Huntington Study Group (HSG)

The Huntington Study Group (HSG), which was formed in 1993, is the world's first HD cooperative therapeutic research organization. To be an invaluable research partner to Families, HSG Members, Sponsors, and Partners.
Revenue
$6.4m
Assets
$8.2m
Employees
27
EIN
45-5557987
IRS type
501(c)(3)

Starbridge Services

Starbridge Services partners with individuals and families with disabilities to realize possibilities in education, employment, health, and community living.
Revenue
$17.6m
Assets
$6.6m
Employees
569
EIN
22-2702285
IRS type
501(c)(3)

CP Rochester

Supporting people with physical and developmental disabilities in choosing and accomplishing successive individualized life goals through providing a wide range of services to people of all ages in the greater Rochester Area; including outpatient clinical....
Revenue
$16.2m
Assets
$13.9m
Employees
336
EIN
16-0743950
IRS type
501(c)(3)

AutismUp

AutismUp supports individuals with autism and their families in Rochester, NY through programs that enhance their quality of life.
Revenue
$2.1m
Assets
$2.0m
Employees
100
EIN
04-3833868
IRS type
501(c)(3)

Pluta Cancer Center Foundation

Pluta Cancer Center Foundation supports patients by offering financial assistance and integrative oncology programs to alleviate Cancer treatment symptoms and side effects.
Revenue
$1.9m
Assets
$10.8m
Employees
9
EIN
27-0425383
IRS type
501(c)(3)

Cancer Support Community Rochester

Free Rochester-based support community for cancer patients, offering emotional support through advocacy, referral services, and educational programs.
Revenue
$1.2m
Assets
$4.1m
Employees
12
EIN
16-0836556
IRS type
501(c)(3)

Mary Cariola Foundation

Foundation raising funds for personalized education and life skills development of individuals at Mary Cariola Children's Center in Rochester, NY.
Revenue
$2.0m
Assets
$9.7m
Employees
0
EIN
87-1411659
IRS type
501(c)(3)

Breast Cancer Coalition of Rochester (BCCR)

To provide support to those touched by a diagnosis of breast cancer, to make access to information and care a priority through education and advocacy, and to empower women and men to participate fully in decisions relating to breast cancer.
Revenue
$1.6m
Assets
$4.9m
Employees
15
EIN
16-1541293
IRS type
501(c)(3)

Council on Alcoholism and Other Chemical Dependencies of the Finger Lakes

The Council On Alcoholism is dedicated to the prevention of alcohol/drug abuse within the central five county Finger Lakes Region of Ontario, Schuyler, Seneca, Wayne and Yates counties.
Revenue
$1.7m
Assets
$520.5k
Employees
31
EIN
16-1270622
IRS type
501(c)(3)

Bridges for Brain Injury

Nonprofit that guides those with brain injuries to independence through rehabilitation and wildlife education programs.
Revenue
$1.5m
Assets
$1.7m
Employees
32
EIN
13-4367970
IRS type
501(c)(3)

Hickok Center for Brain Injury

Empowers adult survivors of brain injury through structured day programs that support their potential with social, prevocational, and recreational activities.
Revenue
$1.9m
Assets
$3.0m
Employees
30
EIN
22-3127533
IRS type
501(c)(3)

Kidney Cares of Western New York

Kidney Cares of Western New York is a kidney disease nonprofit in Rochester, NY that was founded in 2012.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
45-3411524
IRS type
501(c)(3)

Ellaniel Foundation

Ellaniel Foundation is a medical specialty organization in Churchville, NY that was founded in 2025.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
33-4723307
IRS type
501(c)(3)

Lupus Foundation of Genesee Valley Ny

Lupus Foundation of Genesee Valley Ny provides educational and emotional support for those with lupus and their families, supports research on lupus and related autoimmune diseases, and conducts programs to increase public awareness of the disease.
Revenue
$0
Assets
$14.4k
Employees
0
EIN
22-2612041
IRS type
501(c)(3)

Be Unintimidated

To encourage support and advocate for treatment of pcma and other rare forms of cancer through direct research grants and travel support for family members. Cancer awareness & education.
Revenue
$33.9k
Assets
$54.8k
Employees
0
EIN
46-1936854
IRS type
501(c)(3)

Hemophilia Foundation of Upstate New York

Hemophilia Foundation of Upstate New York is an organizations supporting multiple disease or disorder focused nonprofit in Rochester, NY that was founded in 2010.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
27-2555684
IRS type
501(c)(3)

Sustain Inspire Survive

Sustain Inspire Survive improves the lives of breast cancer patients by providing financial grants and quality of life enhancements.
Revenue
$50.4k
Assets
$11.6k
Employees
N/A
EIN
41-2183783
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G00: Disease, Disorders, Medical Disciplines: General" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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