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Disease and disorder focused alliances and advocates

There are 511 disease-focused advocates in the United States. Combined, these disease-focused advocates employ 106 people, earn more than $26 million in revenue each year, and have assets of $57 million.
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Job trends for Disease-focused advocates

Employees per organizationNumber of organizations
0
 
17
1-10
 
5
11-25
 
2
26-100
 
2
101 to 1,000
 
0
1,000+
 
0
Key takeaways for employment stats:

Sizes of disease-focused advocates

Revenues per organizationNumber of organizations
< $250k
 
31
$250k to $1M
 
14
$1M to $5M
 
4
$5M to $25M
 
1
$25M to $100M
 
0
$100M+
 
0
Key takeaways for revenue stats:

Directory of disease-focused advocates

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1-20 of 511

Children's Choice for Hearing and Talking Sacramento

At CCHAT Center, our singular mission is to teach children who are deaf or hard of hearing to develop the necessary speaking, listening, and communication skills required for lifelong success.
Revenue
$3.0m
Assets
$7.9m
Employees
39
EIN
46-1362294
IRS type
501(c)(3)

Rare-X

Rare-X accelerates rare disease diagnosis, treatment, and understanding by enabling secure data sharing across over 9,500 rare diseases.
Revenue
$1.7m
Assets
$823.0k
Employees
0
EIN
84-2298259
IRS type
501(c)(3)

Activating Change

Activating Change aims to end victimization, criminalization, incarceration, and institutionalization of people with disabilities through alignment, capacity-building, and coordination.
Revenue
$3.6m
Assets
$2.7m
Employees
30
EIN
88-0922290
IRS type
501(c)(3)

Samaritan Fund Foundation

The Samaritan Fund Foundation alleviates medical expenses, facilitating transitions to suitable health plans and providing financial support for participants' peace of mind and healing.
Revenue
$7.5m
Assets
$3.6m
Employees
1
EIN
87-3467536
IRS type
501(c)(3)

Southwest Mississippi Childrens Advocacy Center

Southwest Mississippi's center provides a safe place for child abuse victims with access to interviews, referral services, and treatment.
Revenue
$1.0m
Assets
$1.2m
Employees
14
EIN
64-0918739
IRS type
501(c)(3)

Stowers Policy Institute

SPI promotes biomedical research and therapies through philanthropy. It provides financial support to organizations with similar missions.
Revenue
$812.9k
Assets
$32.0m
Employees
0
EIN
20-3270502
IRS type
501(c)(4)

Key Learning Center

Key Learning Center is a disease or disorder focused alliances or advocate in Houston, TX that was founded in 2016.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
81-2432720
IRS type
501(c)(3)

Arizona Consortium for Children with Chronic Illness

Arizona Consortium for Children with Chronic Illness is a disease or disorder focused alliances or advocate in Tempe, AZ that was founded in 1990.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
86-0613584
IRS type
501(c)(3)

A Good Steward Community Outreach

A Good Steward Community Outreach is a disease or disorder focused alliances or advocate in Montgomery, AL that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-2254949
IRS type
501(c)(3)

Find A Cure for Our Daughters

Find A Cure for Our Daughters is a disease or disorder focused alliances or advocate in Stafford, TX that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-3674153
IRS type
501(c)(3)

Genesis United

Genesis United is a disease or disorder focused alliances or advocate in Charlottesvle, VA that was founded in 2020.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
85-0594387
IRS type
501(c)(3)

Lift and Learn Foundation

Lift and Learn Foundation is a disease or disorder focused alliances or advocate in Winter Park, FL that was founded in 2025.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
39-5011179
IRS type
501(c)(3)

Bile Duct Injury Advocacy

Bile Duct Injury Advocacy is a disease or disorder focused alliances or advocate in Farmingtn HLS, MI that was founded in 2026.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
41-4950027
IRS type
501(c)(3)

Lichen Planus HQ

Lichen Planus HQ is a disease or disorder focused alliances or advocate in Portland, OR that was founded in 2026.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
41-3552449
IRS type
501(c)(3)

Jamaa Health

Jamaa Health is a disease or disorder focused alliances or advocate in Cincinnati, OH that was founded in 2023.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
92-0346976
IRS type
501(c)(3)

Healthy Connections Zero To Five

Healthy Connections Zero To Five is a disease or disorder focused alliances or advocate in Wetumpka, AL that was founded in 2024.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
99-1028662
IRS type
501(c)(3)

Blankets By Ellieanas Action Team

Blankets By Ellieanas Action Team is a disease or disorder focused alliances or advocate in Mulberry, FL that was founded in 2025.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
99-1759452
IRS type
501(c)(3)

Patience with Patients

Patience with Patients is a disease or disorder focused alliances or advocate in Royal PLM BCH, FL that was founded in 2016.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
81-2279128
IRS type
501(c)(3)

Vertical Awareness

Vertical Awareness is a disease or disorder focused alliances or advocate in Jacksonville, FL that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
88-1094984
IRS type
501(c)(3)

War on Drugs NJ

War on Drugs NJ is a disease or disorder focused alliances or advocate in Waretown, NJ that was founded in 2019.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
84-2948813
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G01: Voluntary Health Associations and Medical Disciplines Alliances and Advocacy" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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