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Disease and disorder focused alliances and advocates

There are 520 disease-focused advocates in the United States. Combined, these disease-focused advocates employ 143 people, earn more than $31 million in revenue each year, and have assets of $64 million.
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Job trends for Disease-focused advocates

Employees per organizationNumber of organizations
0
 
20
1-10
 
5
11-25
 
4
26-100
 
2
101 to 1,000
 
0
1,000+
 
0
Key takeaways for employment stats:

Sizes of disease-focused advocates

Revenues per organizationNumber of organizations
< $250k
 
32
$250k to $1M
 
16
$1M to $5M
 
6
$5M to $25M
 
1
$25M to $100M
 
0
$100M+
 
0
Key takeaways for revenue stats:

Directory of disease-focused advocates

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1-20 of 520

Autistic Self Advocacy Network

Advocacy group for autistic adults and youth advancing disability rights principles; supports public education and outreach.
Revenue
$1.7m
Assets
$4.6m
Employees
21
EIN
26-1270198
IRS type
501(c)(3)

Children's Choice for Hearing and Talking Sacramento

At CCHAT Center, our singular mission is to teach children who are deaf or hard of hearing to develop the necessary speaking, listening, and communication skills required for lifelong success.
Revenue
$3.0m
Assets
$7.9m
Employees
39
EIN
46-1362294
IRS type
501(c)(3)

Rare-X

Rare-X accelerates rare disease diagnosis, treatment, and understanding by enabling secure data sharing across over 9,500 rare diseases.
Revenue
$1.7m
Assets
$823.0k
Employees
0
EIN
84-2298259
IRS type
501(c)(3)

Activating Change

Activating Change aims to end victimization, criminalization, incarceration, and institutionalization of people with disabilities through alignment, capacity-building, and coordination.
Revenue
$3.6m
Assets
$2.7m
Employees
30
EIN
88-0922290
IRS type
501(c)(3)

Samaritan Fund Foundation

The Samaritan Fund Foundation alleviates medical expenses, facilitating transitions to suitable health plans and providing financial support for participants' peace of mind and healing.
Revenue
$7.5m
Assets
$3.6m
Employees
1
EIN
87-3467536
IRS type
501(c)(3)

Native American Disability Law Center

Native American Disability Law Center advocates for the rights of Native Americans with disabilities, promoting independence, access to justice, and equality in their communities.
Revenue
$1.7m
Assets
$1.6m
Employees
16
EIN
35-2238666
IRS type
501(c)(3)

Southwest Mississippi Childrens Advocacy Center

Southwest Mississippi's center provides a safe place for child abuse victims with access to interviews, referral services, and treatment.
Revenue
$1.0m
Assets
$1.2m
Employees
14
EIN
64-0918739
IRS type
501(c)(3)

Stowers Policy Institute

SPI promotes biomedical research and therapies through philanthropy. It provides financial support to organizations with similar missions.
Revenue
$812.9k
Assets
$32.0m
Employees
0
EIN
20-3270502
IRS type
501(c)(4)

Haystack Project

Haystack Project educates and advocates for rare medical conditions, engaging stakeholders and using consultants to provide patient voice on systematic barriers.
Revenue
$759.0k
Assets
$402.1k
Employees
0
EIN
83-3367375
IRS type
501(c)(3)

Find A Cure for Our Daughters

Find A Cure for Our Daughters is a disease or disorder focused alliances or advocate in Stafford, TX that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
47-3674153
IRS type
501(c)(3)

Arizona Consortium for Children with Chronic Illness

Arizona Consortium for Children with Chronic Illness is a disease or disorder focused alliances or advocate in Tempe, AZ that was founded in 1990.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
86-0613584
IRS type
501(c)(3)

A Good Steward Community Outreach

A Good Steward Community Outreach is a disease or disorder focused alliances or advocate in Montgomery, AL that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-2254949
IRS type
501(c)(3)

Key Learning Center

Key Learning Center is a disease or disorder focused alliances or advocate in Houston, TX that was founded in 2016.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
81-2432720
IRS type
501(c)(3)

Genesis United

Genesis United is a disease or disorder focused alliances or advocate in Charlottesvle, VA that was founded in 2020.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
85-0594387
IRS type
501(c)(3)

Bile Duct Injury Advocacy

Bile Duct Injury Advocacy is a disease or disorder focused alliances or advocate in Farmingtn HLS, MI that was founded in 2026.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
41-4950027
IRS type
501(c)(3)

Angels of Provision

Angels of Provision is a disease or disorder focused alliances or advocate in Lake Worth, FL that was founded in 2024.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
99-4144702
IRS type
501(c)(3)

United Charitable Foundation

United Charitable Foundation is a disease or disorder focused alliances or advocate in Dewey Beach, DE that was founded in 2024.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
99-2681682
IRS type
501(c)(3)

Chialice Foundation

Chialice Foundation is a disease or disorder focused alliances or advocate in Carson, CA that was founded in 2025.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
99-1905938
IRS type
501(c)(3)

Responders Foundation

Responders Foundation is a disease or disorder focused alliances or advocate in Sun City, AZ that was founded in 2024.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
88-2797858
IRS type
501(c)(3)

Lift and Learn Foundation

Lift and Learn Foundation is a disease or disorder focused alliances or advocate in Winter Park, FL that was founded in 2025.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
39-5011179
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "G01: Voluntary Health Associations and Medical Disciplines Alliances and Advocacy" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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