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Research: We provide funding to promising research that seeks to benefit pediatric rare diseases. We are currently providing research that seeks to benefit PYROXD-1 a rare form of muscular dystrophy that is affecting 20+ young people (and counting as new cases are discovered) across the world. There are over 30 million people with rare diseases and we plan to continue to pursue research that affects as many as we possibly can that start at childhood or birth. In addition, we are funding research for Gould's Syndrome.

Resources:We provide resources for undiagnosedfamilies and families of kids with rare diseases in order to help the children thrive. Some of those resources include access to genetic testing, when the family is denied by insurance. We also provide a free online platform for parents of kids with rare diseases to tell their child's story and have all of their information in one place. These pages help those those care for the child (hospitals, doctors, nurses, teachers, therapists, babysitters, family members, friends) understand the child more full in order to better support and care for them and their families. Right now our platform has 20+ warriors with the possibility of holding thousands. We also tell the story of the diseases we are fundraising for through video in order to educate the public about rare diseases and the kids behind the disease.