Program areas at Sophie's Hope Foundation
The organization worked to spread awareness about glycogen storage disease 1b (gsd 1b) and raise critical funds which are used for patient advocacy initiatives, distributed to organizations working to find a cure, or to support the collaboration of patients, caregives, doctors, researchers and drug companies.
The organization collaborated with the global center for gsd on the gsdvalue project, which has a desired outcome of establishing a global standard of care for hepatic gsd.
Grants made by Sophie's Hope Foundation
| Grantee | Grant description | Grant year | Amount |
|---|
| Duke University | Duke Retrospective Natural History Study | 2024-12 | $37,578 |
Who funds Sophie's Hope Foundation
Grants from foundations and other nonprofits
Financials for Sophie's Hope Foundation
| Revenues | FYE 12/2024 | FYE 12/2023 | % Change |
|---|
| Total grants, contributions, etc. | $348,174 | $274,858 | 26.7% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $8,822 | $6,939 | 27.1% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $67,778 | $47,611 | 42.4% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $424,774 | $329,408 | 29% |
Organizations like Sophie's Hope Foundation
| Organization | Type | Location | Revenue |
|---|
| Allison Rose Foundation | 501(c)(3) | Independence, OH | $148,508 |
| Proteus Syndrome Foundation | 501(c)(3) | Cordova, TN | $110,610 |
| Rolf Benirschke Legacy Foundation | 501(c)(3) | Del Mar, CA | $670,344 |
| Greg Eble-Petromart Memorial Foundation | 501(c)(3) | Earth City, MO | $256,001 |
| Lupus and Allied Diseases Association | 501(c)(3) | Verona, NY | $1,076,141 |
| Brendon Mclarty Memorial Foundation | 501(c)(3) | Oklahoma City, OK | $141,129 |
| Seneca Diabetes Foundation | 501(c)(3) | Irving, NY | $167,496 |
| The Med13l Foundation | 501(c)(3) | Barrington, NJ | $608,940 |
| Lupus Foundation of Northern California | 501(c)(3) | San Jose, CA | $243,518 |
| Diabetes Association | 501(c)(3) | Fall River, MA | $214,302 |
Data update history
June 5, 2024
Posted financials
Added Form 990 for fiscal year 2023
November 25, 2023
Posted financials
Added Form 990EZ for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 23 Briarcliff Dr
- Hopkinton, MA 01748
- Metro area
- Boston-Cambridge-Newton, MA-NH
- County
- Middlesex County, MA
- Website URL
- sophieshopefoundation.org/Â
- Phone
- (508) 341-4027
IRS details
- EIN
- 84-5014314
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2020
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
Free account sign-up
Want updates when Sophie's Hope Foundation has new information, or want to find more organizations like Sophie's Hope Foundation?
Create free Cause IQ account