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EIN 84-4654297

Shwachman-Diamond Syndrome Alliance

IRS 501(c) type
501(c)(3)
Num. employees
1
City
Woburn
State
Massachusetts
Year formed
2020
Most recent tax filings
2022-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
Shwachman-Diamond Syndrome Alliance brings patient families, researchers, clinicians, and other diverse stakeholders together to better understand, diagnose, and treat the devastating cancer predisposition genetic disorder called Shwachman-Diamond Syndrome (SDS). The mission of the alliance is to build a world where SDS is curable.
Total revenues
$336,751
2022
Total expenses
$102,768
2022
Total assets
$635,328
2022
Num. employees
1
2022

Program areas at Shwachman-Diamond Syndrome Alliance

The SDS Alliance brings together patient families, researchers, clinicians, and other diverse stakeholders to better understand, diagnose, and treat this devastating cancer predisposition genetic disorder.

Grants made by Shwachman-Diamond Syndrome Alliance

GranteeGrant descriptionAmount
Coriell Institute for Medical ResearchMedical Research - Biobank Development$8,000

Who funds Shwachman-Diamond Syndrome Alliance

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
AmazonSmile FoundationGeneral Support$401

Personnel at Shwachman-Diamond Syndrome Alliance

NameTitleCompensation
Eszter Hars, PH.D.Founder and CEO, Shwachman - Diamond Syndrome Alliance$80,000
Dr. Yigal DrorHead of the Haematology and Director of the Marrow Failure and Myelodysplasia
Kati EbrahimTreasurer$0
Anne DupreySecretary$0

Financials for Shwachman-Diamond Syndrome Alliance

RevenuesFYE 12/2022
Total grants, contributions, etc.$336,751
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$336,751

Form 990s for Shwachman-Diamond Syndrome Alliance

Fiscal year endingDate received by IRSFormPDF link
2022-122023-06-01990View PDF
2021-122022-05-05990View PDF
Data update history
August 29, 2023
Updated personnel
Identified 1 new personnel
August 9, 2023
Posted financials
Added Form 990 for fiscal year 2021
August 2, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 22, 2023
Updated personnel
Identified 3 new personnel
May 21, 2023
Received grants
Identified 1 new grant, including a grant for $600,000 from Silicon Valley Community Foundation (SVCF)
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchTax deductible donations
General information
Address
PO Box 2441
Woburn, MA 01888
Metro area
Boston-Cambridge-Newton, MA-NH
Website URL
sdsalliance.org/ 
IRS details
EIN
84-4654297
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2020
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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