Cause IQ organization profile

Epilepsy Foundation New England

Program areas | Form 990s | Financials | Vendors | Personnel | Peers

Epilepsy Foundation New England is a trade / professional association based in Lowell, MA that was founded in 1983. As of 2018 they had $6.9 million in revenue and $4.7 million in assets.

The epilepsy foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through services, education, advocacy and research. The mission of epilepsy foundation new engla...

Previous legal names or variations of their name include: Epilepsy Foundation Of Massachusetts And Rhode Island New Hampshire And Maine.

Fiscal year end:
Revenue trends:
Asset trends:

Program areas at Epilepsy Foundation New England

Community education: efne provides workshops and educational conferences for families, caregivers, first responders, employers, and the community at large; approximately 2,000 people receive training each year. Our matty project is designed to teach young children about epilepsy. Our community outreach training programs assist preschool teachers, school nurses, emts, law enforcement, and all school personnel learn about epilepsy and raise awareness. Education conferences: 250 constituents served. Awareness events in more than a dozen cities. Art therapy: three 8-week art therapy sessions for 45 people. Young leaders networks meet monthly in 4 states, serving about 250 young people ages 15-25.

Funding support & donation center:fund epilepsy foundation of new england's mission of supporting epilepsy research and advocacy through collecting gently used clothing and housewares to be resold. Efne works to showcase advances and raise money for research, in partnership with epilepsy foundation of america's epilepsy innovation institute. This includes showcasing research in our communication and holding events to engage health care providers, clients, and donors in understanding research in epilepsy.

Resource and support center & advocacy:- helpdesk: 1,800 help desk calls per year. - support groups: 24 recurring in-person and phone/online support groups.- physician outreach to efne: "inbox" - 181+ (requests from medical teams to reach out to patients, info on programs, sudep families, education, and support group).- neuro grand rounds or epilepsy rounds: md (neurology, neurosurgery) rn, residents/fellows; tufts and uri - approximately 90 attendees - intern program: 6 college interns participated in resource and support projects over the summer and fall of 2018 (outreach, education, neuroscience, awareness, pharmacy and patient assistance, art therapy).- linking with resources in community to support families - monthly information sessions: first information session in october, offered in partnership with caregiver homes to provide resources to families caring for loved ones at home; upcoming workshops: education: navigating iep, 504c, housing resources, transportation resources, respite provider resources/pca, patient assistance programs for rx, first aid for ...

Form 990s for Epilepsy Foundation New England

Fiscal year endingDate received by IRSFormPDF link
2018-06May 14, 2019990View PDF
2017-06Apr 10, 2018990View PDF
2016-06Apr 19, 2017990View PDF
2015-06Jul 12, 2016990View PDF
2014-06Mar 3, 2015990View PDF
...and four more Form 990 PDFs

Financials for Epilepsy Foundation New England

Total grants, contributions, etc.$1,067,942
Program services$5,882,964
Investment income and dividends$44,106
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-111,790
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$19,332
Total revenues$6,902,554

Vendors for Epilepsy Foundation New England

VendorServicesAmount paidDate
Microsoft ServicesSoftware2019-08-29
██████Content management system software2019-08-19
███████Marketing software; CRM software; Content management system software2019-08-19
██████Fundraising software2019-08-19
███████ ███ ████Fundraising software; Payment processing2019-08-19
██████████████████ ███Tax accounting2019-05-02
███████ ██████████████Advertising and Outreach$643,6842018-06-01
█████ █████████████ ████████Truck Leases$382,7992018-06-01
...and one more vendors

Personnel at Epilepsy Foundation New England

NameTitleCompensationMost recent data
Susan LinnExecutive Director / President and Chief Executive Officer$168,969May 2, 2019
Leslie BrodyPast President and Chief Executive Officer , Former$121,013June 30, 2017
██████ █████Treasurer$0June 30, 2018
█████ ███████Chair$0June 30, 2018
██████ ████Vice Chair$0June 30, 2018
█████ ██████Secretary$0June 30, 2018
███████ ██████Chair$0June 30, 2016
█████ ████████Secretary$0June 30, 2016

Peer trade / professional associations and chambers of commerce

1Asthma and Allergy Foundation of America501(c)(3)$3.7 millionLandover, MD
2Brain Injury Association of America (BIAA)501(c)(3)$3.1 millionVienna, VA
3American Epilepsy Society (AES)501(c)(3)$8.4 millionChicago, IL
4Spina Bifida Association of America501(c)(3)$2.9 millionArlington, VA
5Sickle Cell Disease Association of America501(c)(3)$2.6 millionBaltimore, MD
6Multiple Sclerosis Association of America (MSAA)501(c)(3)$8.8 millionCherry Hill, NJ
7Sjorgrens Syndrome Foundation (SSF)501(c)(3)$2.3 millionReston, VA
8Infusion Nurses Society (INS)501(c)(3)$2.9 millionNorwood, MA
9The Als Association - Massachusetts Chapter501(c)(3)$2.0 millionNorwood, MA
10National Multiple Sclerosis Society Greater New England Chapter501(c)(3)$11 millionWaltham, MA
11Hearing Loss Association of America (HLAA)501(c)(3)$2.8 millionBethesda, MD
12Civitan International501(c)(3)$2.8 millionBirmingham, AL
13Greater Boston Manufacturing Partnership Incorporated501(c)(3)$3.3 millionNewtonville, MA
14Alumnae Association of Mount Holyoke College501(c)(3)$2.6 millionSouth Hadley, MA
15Massachusetts Golf Association501(c)(3)$4.9 millionNorton, MA
16Association of Independents in Radio (AIR)501(c)(3)$1.8 millionDorchester, MA
17American Academy of Arts and Sciences501(c)(3)$16 millionCambridge, MA
18Williamstown Art Conservation Center (WACC)501(c)(3)$2.5 millionWilliamstown, MA
19Scandinavian Charitable Society of Greater Boston501(c)(3)$2.8 millionW Newton, MA
20New England Historic Genealogical Society501(c)(3)$11 millionBoston, MA
21Corporate Accountability501(c)(3)$6.4 millionBoston, MA
22American Urological Association Education and Research501(c)(3)$33 millionLinthicum Heights, MD
23American Association of Nurse Anesthetists Foundation (AANA)501(c)(3)$2.1 millionPark Ridge, IL
24NASS and Spine Foundation (NASS)501(c)(3)$12 millionBurr Ridge, IL
25Prospect Center501(c)(3)$3.2 millionQueensbury, NY

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