| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Northwell Health Foundation | To Establish A Cystic Fibrosis Center at Lenox Hill Hospital in New York That Will Enhance the Quality of Life of Cystic Fibrosis Patients. $400,000 of the Contributions Were Earmarked for Renovations To the Center and the Remainder Was for Operations. | 2023-03 | $650,000 |
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Fidelity Investments Charitable Gift Fund | 2022-06 | For Grant Recipient's Exempt Purposes | $304,000 |
| Fidelity Investments Charitable Gift Fund | 2022-06 | For Grant Recipient's Exempt Purposes | $304,000 |
| Research Fund for Cystic Fibrosis | 2023-12 | Education and Research | $76,636 |
| ...and 5 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Jill Dalton | Chief Financial Officer | $0 | 2023-03-31 |
| Gwen Engelhard | President | $0 | 2023-09-11 |
| John Z Jacoby | President Emeritus and Secreta | $0 | 2023-03-31 |
| Marnee McCarthy | Assistant Secretary | $0 | 2023-03-31 |
| Thomas G Leahy | Vice President | $0 | 2023-03-31 |
| ...and 1 more key personnel | |||
| Revenues | FYE 03/2023 |
|---|---|
| Total grants, contributions, etc. | $779,251 |
| Program services | $0 |
| Investment income and dividends | $37,017 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $212 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $1,225 |
| Total revenues | $817,705 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2023-03 | 2023-09-11 | 990 | View PDF |
| 2022-03 | 2022-11-03 | 990 | View PDF |
| 2020-03 | 2021-02-24 | 990 | View PDF |
| 2019-03 | 2020-02-12 | 990 | View PDF |
| 2018-03 | 2019-03-15 | 990 | View PDF |
| ...and 8 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Cure CF | 501(c)(3) | Louisville, KY | $244,751 |
| Cure SPG4 Foundation | 501(c)(3) | San Antonio, TX | $286,621 |
| Bardet Biedl Syndrome Foundation | 501(c)(3) | West Chester, PA | $372,565 |
| The Bev Hartig Huntingtons Disease Foundation | 501(c)(3) | Fishers, IN | $295,171 |
| Children's Heart Foundation Illinois Chapter | 501(c)(3) | Glenview, IL | $271,001 |
| Foundation to Eradicate Duchenne | 501(c)(3) | Alexandria, VA | $777,073 |
| International FOP Association | 501(c)(3) | North Kansas City, MO | $3,050,181 |
| New England Hemophilia Association | 501(c)(3) | Dedham, MA | $1,196,989 |
| The Genesis Foundation for Children | 501(c)(3) | Boston, MA | $1,035,084 |
| Cystic Fibrosis Research Institute | 501(c)(3) | Palo Alto, CA | $1,350,296 |
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