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EIN 45-5242623

Cadasil Association

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Plainsboro
State
New Jersey
Year formed
2012
Most recent tax filings
2022-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The mission of the cureCADASIL is to raise awareness of CADASIL, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed.
Total revenues
$256,716
2022
Total expenses
$28,900
2022
Total assets
$340,236
2022
Num. employees
0
2022

Program areas at Cadasil Association

CADASIL is an hereditary small vessel disease caused by mutations in the Notch3 gene. These mutations lead to progressive changes in the small brain arteries and reduced blood flow to the brain. We aim to share these CADASIL vessel-on-chip with the international CADASIL research community to promote CADASIL research. We aim to unite patients and the medical community toward the common goal of treatments and ultimately a cure for this rare genetic disease, by promoting communication, advocacy, research, and education.

Grants made by Cadasil Association

GranteeGrant descriptionAmount
University of Pennsylvania (Penn)Rare Disease Research Bike Ride$10,000

Who funds Cadasil Association

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Silicon Valley Community Foundation (SVCF)Health$200,000

Personnel at Cadasil Association

NameTitleCompensation
Debra RobinsonTreasurer$0
Bertram KasiskePresident$0
Pedro de LencastreSecretary$0
Jane GuntherResearch Ofc.$0

Financials for Cadasil Association

RevenuesFYE 12/2022
Total grants, contributions, etc.$256,732
Program services$0
Investment income and dividends$7
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-23
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$256,716

Form 990s for Cadasil Association

Fiscal year endingDate received by IRSFormPDF link
2022-122023-03-15990View PDF
2021-122022-11-30990EZView PDF
2021-122022-05-14990EZView PDF
Data update history
June 18, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 16, 2023
Updated personnel
Identified 1 new personnel
June 12, 2023
Used new vendors
Identified 1 new vendor, including
May 16, 2023
Updated personnel
Identified 3 new personnel
May 10, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchTax deductible donationsNo full-time employees
General information
Address
10 Schalks Crossing Rd 501a
Plainsboro, NJ 08536
Metro area
New York-Newark-Jersey City, NY-NJ-PA
Website URL
curecadasil.org/ 
Phone
(401) 684-2760
IRS details
EIN
45-5242623
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2012
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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