EIN 45-5308117

The Snow Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2012
Most recent tax filings
2024-12-01
Description
The Snow Foundation provides financial support for Wolfram Syndrome research and serves as a collective voice for patients. Its mission is to work towards a cure for Wolfram Syndrome and develop novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration. The organization focuses on three pillars: research, patients, and mobilization of the WS community. In 2022, The Snow Foundation continued efforts in research and funding by seeking out the best possible worldwide research with descriptive verbs.
Also known as...
The Jack and JT Snow Scientific Research Foundation
Total revenues
$607,564
2024
Total expenses
$237,983
2024
Total assets
$972,917
2024
Num. employees
0
2024

Program areas at The Snow Foundation

The Foundation supports and coordinates international collaborative research efforts. The Foundation is focused on fueling knowledge, speeding better treatments and symptom management therapies, and driving enhancements in The health care delivery for wolfram syndrome patients.the Foundation also encourages The entire wolfram syndrome community to come together and share common life experiences, education and mutual aid. By providing these critical resources and support services, The Foundation enables wolfram syndrome patients, their families and caregivers to powerfully advocate for what they need, when and how they need it.

Grants made by The Snow Foundation

GranteeGrant descriptionAmount
Washington University School of Medicine Health Admin ProgramGLP1 Research$0

Who funds The Snow Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
DAFgiving360Public, Societal Benefit$100,100
American Online Giving FoundationGeneral Support$20,239
Network for GoodUnrestricted$7,496
...and 4 more grants received

Financials for The Snow Foundation

RevenuesFYE 12/2024
Total grants, contributions, etc.$630,248
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-22,684
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$607,564

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Data update history
April 20, 2025
Posted financials
Added Form 990 for fiscal year 2024
April 20, 2025
Updated personnel
Identified 2 new personnel
March 27, 2025
Received grants
Identified 2 new grant, including a grant for $20,239 from American Online Giving Foundation
January 3, 2025
Received grants
Identified 1 new grant, including a grant for $2,500 from Theodore Theodore A Kienstra Foundation
December 5, 2024
Posted financials
Added Form 990 for fiscal year 2023
Nonprofit Types
Grantmaking organizationsDisease research fundraisersResearch centersCharities
Issues
Science and technologyDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employeesAccepts online donations
General information
Address
PO Box 50224
Clayton, MO 63105
Metro area
St. Louis, MO-IL
County
St. Louis County, MO
Website URL
thesnowfoundation.org/ 
Phone
(636) 448-4134
IRS details
EIN
45-5308117
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2012
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
U00: Science and Technology Research: General
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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