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EIN 84-4857909

The American Porphyrias Expert Collaborative

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Bethesda
State
Maryland
Year formed
2020
Most recent tax filings
2022-12-01
NTEE code, primary
H90: Medical Specialty Research
Description
Research and education collaborative on porphyrias and heme biosynthesis with grants, best practices development, and patient advocacy support.
Total revenues
$304,432
2022
Total expenses
$228,393
2022
Total assets
$226,583
2022
Num. employees
0
2022

Program areas at The American Porphyrias Expert Collaborative

The American Porphyrias Expert Collaborative (apex) advanced The area of research support by providing grants through The next generation (nextgen) initiative, which seeks to educate and train The next generation of porphyria experts.
Apex advanced The area of education by continuing a fiscal sponsorship agreement with The united Porphyrias association (upa) to support The establishment of upa as a patient advocacy organization to advance patient involvement in research, treatment, and diagnosis of The Porphyrias.

Grants made by The American Porphyrias Expert Collaborative

GranteeGrant descriptionAmount
Icahn School of Medicine at Mount SinaiSupport Heme Biosynthesis Research$25,000
Icahn School of Medicine at Mount SinaiSupport Heme Biosynthesis Research$25,000

Who funds The American Porphyrias Expert Collaborative

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$25,000
AmazonSmile FoundationGeneral Support$84

Personnel at The American Porphyrias Expert Collaborative

NameTitleCompensation
Kristen WheedenSecretary - Treasurer$0
John PhillipsVice President / Vice - President , Director$0
Robert DesnickPresident , Director$0

Financials for The American Porphyrias Expert Collaborative

RevenuesFYE 12/2022
Total grants, contributions, etc.$304,432
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$304,432

Form 990s for The American Porphyrias Expert Collaborative

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-15990View PDF
2022-122023-11-10990View PDF
2021-122022-05-16990EZView PDF
Data update history
January 18, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 15, 2024
Updated personnel
Identified 3 new personnel
December 28, 2023
Used new vendors
Identified 1 new vendor, including
November 25, 2023
Posted financials
Added Form 990EZ for fiscal year 2021
May 12, 2023
Updated personnel
Identified 8 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
MembershipsProvides grantsConducts researchTax deductible donationsNo full-time employeesFiscal sponsor
General information
Address
4800 Hampden Blvd Ste 200
Bethesda, MD 20817
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
Website URL
apexcollaborative.com/ 
Phone
(240) 488-6616
IRS details
EIN
84-4857909
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2020
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H90: Medical Specialty Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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