EIN 68-0087234

Scleroderma Research Foundation (SRF)

IRS 501(c) type
501(c)(3)
Num. employees
6
Year formed
1987
Most recent tax filings
2022-12-01
Description
The Scleroderma Research Foundation's mission is to find new and improved therapies as well as a cure for scleroderma by funding major research.
Total revenues
$5,892,738
2022
Total expenses
$4,658,602
2022
Total assets
$11,143,637
2022
Num. employees
6
2022

Program areas at SRF

The mission of the Scleroderma Research Foundation (SRF) is to find, fund, and facilitate the most promising, highest-quality research to cure scleroderma. We recruit the best and the brightest researchers to understand the causes, discover treatments, and ultimately eradicate this disease . At the SRF, research is at the center of all we do. Our Research Program is governed by the Board of Directors and supported by a volunteer Scientific Advisory Board comprised of some of the world's most highly regarded scientists who are leaders in their field of expertise. The Board of Directors and Scientific Advisors meet annually with researchers and clinicians from laboratories across the nation to select and fund the most promising scleroderma studies aimed at developing improved therapies to help patients live longer, fuller lives - and, ultimately, to find a cure for scleroderma.
SRF Education & Awareness Program: Many patients hear the word scleroderma for the first time when they are diagnosed.We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with this disease, the medical community, and the general public with the most up-to-date and relevant news and information about complications, treatments, and related research through our website, webinars, annual patient forum, and monthly eNewsletter. And we deliver stories of impact that connect and inspire patients, as well as address issues related to diversity, equity, and inclusion that patients may encounter as they navigate diagnosis, treatment, and living with the disease.
The SRF Research Program: Led by a Scientific Advisory Board comprised of some of the most highly regarded scientists in the nation, the SRFs research program actively seeks out and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as, experts in cutting-edge technologies to join the scleroderma research community. With an intense focus on identifying projects and investigators likely to move scleroderma research forward, the SRF funds a diverse portfolio of projects led by top-tier investigators.

Grants made by SRF

GranteeGrant descriptionAmount
Stanford University / The Board of Trustees of the Leland Stanford Junior UniversityResearch$719,797
Johns Hopkins University (JHU)Research$236,469
University of UtahResearch$233,012
...and 15 more grants made

Who funds Scleroderma Research Foundation (SRF)

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Kao Family FoundationOrganization's General Charitable Purposes$510,500
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$296,610
Wright and Evnin Family FoundationMedical Research for Scleroderma$190,000
...and 44 more grants received totalling $1,626,680

Personnel at SRF

NameTitleCompensation
Joanne GoldExecutive Director$193,724
Cori TraubDirector Philanthropy / Director of Philanthropy$108,558
Gloria BlechaDevelopment Manager$104,973
Hannah YoungCommunications Manager
Adelyn AuzaDatabase Manager
...and 5 more key personnel

Financials for SRF

RevenuesFYE 12/2022
Total grants, contributions, etc.$5,376,802
Program services$170,531
Investment income and dividends$116,754
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$212,122
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$16,529
Total revenues$5,892,738

Form 990s for SRF

Fiscal year endingDate received by IRSFormPDF link
2022-122023-09-21990View PDF
2021-122022-06-09990View PDF
2020-122021-06-30990View PDF
2019-122021-06-03990View PDF
2019-042020-10-23990View PDF
...and 9 more Form 990s
Data update history
November 15, 2023
Posted financials
Added Form 990 for fiscal year 2022
October 25, 2023
Received grants
Identified 25 new grant, including a grant for $75,000 from San Francisco Foundation (TSFF)
June 14, 2023
Posted financials
Added Form 990 for fiscal year 2021
May 7, 2023
Received grants
Identified 1 new grant, including a grant for $1,030 from Namaste Foundation
May 6, 2023
Used new vendors
Identified 3 new vendors, including , , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchFundraising eventsOperates internationallyCommunity engagement / volunteeringTax deductible donations
General information
Address
220 Montgomery St Ste 484
San Francisco, CA 94104
Metro area
San Francisco-Oakland-Berkeley, CA
County
San Francisco County, CA
Website URL
srfcure.org/ 
Phone
(415) 834-9444
IRS details
EIN
68-0087234
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1987
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H90: Medical Specialty Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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