EIN 46-4617970

Project Alive

IRS 501(c) type
501(c)(3)
Num. employees
2
State
Year formed
2014
Most recent tax filings
2023-12-01
Description
The organization's mission is to fund research to treat/cure hunter syndrome mps ii and raise awareness of the condition in the public and medical community.
Also known as...
Saving Case and Friends Project Alive; Kimberly Stephens
Total revenues
$301,636
2023
Total expenses
$439,138
2023
Total assets
$2,584,090
2023
Num. employees
2
2023

Program areas at Project Alive

Support the development of and patient access to treatments/cures for hunter sydrome mps ii and raise awareness of the condition in the public and medical community.

Grants made by Project Alive

GranteeGrant descriptionAmount
Nationwide Childrens HospitalMpsii Gene Therapy Program$150,000

Who funds Project Alive

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Shanahan Family Charitable FoundationGeneral Purpose$50,000
American Online Giving FoundationGeneral Support$16,244
The Community Foundation for Greater AtlantaMedical Research$15,000
...and 1 more grant received

Personnel at Project Alive

NameTitleCompensation
Matthew Ellinwood, PHDChief Scientific Officer of the National MPS Society
Kristin McKayPresident and Executive Director$74,750
Karen BeattyDirector of Operations$0
Joseph MuenzerDirector
Kyle UnderwoodVice Chairman of the Board, Journey Into Adulthood Committee Chair$0
...and 6 more key personnel

Financials for Project Alive

RevenuesFYE 12/2023
Total grants, contributions, etc.$83,680
Program services$184,462
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$33,494
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$301,636

Form 990s for Project Alive

Fiscal year endingDate received by IRSFormPDF link
2023-122024-08-08990View PDF
2022-122023-10-03990View PDF
2021-122022-11-15990View PDF
2020-122021-11-15990View PDF
2019-122020-08-28990View PDF
...and 4 more Form 990s
Data update history
October 23, 2024
Updated personnel
Identified 5 new personnel
September 22, 2024
Used new vendors
Identified 1 new vendor, including
September 22, 2024
Posted financials
Added Form 990 for fiscal year 2023
September 21, 2024
Updated personnel
Identified 1 new personnel
May 18, 2024
Received grants
Identified 2 new grant, including a grant for $16,244 from American Online Giving Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsTax deductible donationsAccepts online donations
General information
Address
7318 Holiday Dr
Spring Hill, FL 34606
Metro area
Tampa-St. Petersburg-Clearwater, FL
County
Hernando County, FL
Website URL
projectalive.org/ 
Phone
(865) 248-9092
IRS details
EIN
46-4617970
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2014
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0251964
FTB Entity ID
5740584
AB 488 data last updated ("as-of") date
2024-12-31
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