Ollie Hinkle Heart Foundation

Ohhf's community outreach program provides individualized support to ease the hardships experienced by Heart families. This is achieved through financial grants and care packages; connecting Heart families through events; building bonds for lifelong support; and creating a network through partnerships. In 2022, ohhf spent 76,779 on financial assistance grants and care packages. Heart family events continued with meals to a local hospital Heart center, topgolf Heart family event, Heart family movie night, and the annual Heart mom ornament exchange. In 2022, ohhf also granted 50,000 to a local non-profit that provides a home-away-from-home for many of ohhf's Heart families while in town for treatment.

Ohhf's technology and research program strives to improve outcomes in pediatric Heart care by collaborating with innovators on cutting edge advancements. In 2022, ohhf funded a grant to develop a multi-modal artificial intelligence algorithm that will plot an "individual growth and optimization tracker/incline trajectory" (i-got-it) for patient outcomes. The purpose of developing such an ai algorithm is to be able to define inputs that will set positive expectations for patients with congenital Heart disease and unmask how providers promote or unwittingly impede that progress by hidden negative verbal or body language or belief systems.

Ohhf's ollies' branch program offers compassionate, accessible mental health support to allow peace of mind for families and caregivers of children with or affected by pediatric Heart disease. Heart families (including Heart warriors, parents, grandparents, siblings, other caregivers, and even the healthcare providers) can access a diverse community of therapists that specialize in the trauma Heart families face and support through therapy sessions offered at no cost to the recipient. In 2022, ohhf's community grew to 180 licensed therapists that provided 1,761 therapy sessions funded by ohhf. Also in 2022, ohhf continued funding a prior-year commitment for a full-time and a part-time therapist on-staff at a local hospital.

Ohhf's take Heart initiative is a three-pronged approach focused cultivating an equitable standard of care that centers the voices of Heart families in collaboration with clinicians and health systems. Take Heart collective impact our wraparound program shifts the collective focus from reactive problem- solving to co-creating the future of pediatric Heart care, which includes public education initiatives prioritizing a suite of panels that center patient voices across the themes of technology and research, mental health, and education. Take Heart conference our annual virtual interactive educational conference unites Heart families with leading Heart clinicians and healthcare systems to share, collaborate, and lead innovation to gain courage, confidence, and hope addressing the needs of today. Funded by corporate sponsorships, conference attendance is free-of-charge. Cme credits are available to attendees at cost. The 2022 conference had over 500 viewers and covered panels on leveraging artificial intelligence in the cardiac icu; advances in cardiac interventions; game- changing stem cell trial for children with chd; infant and toddler development and wellbeing; siblings and family dynamics (mental health as a family); the role of sdoh and trauma-informed care in collaborative partnerships; bringing Heart dads into the conversation; and fertility and reproduction for adult Heart warriors. Take Heart consulting we collaborate with clients to untangle the complexities of their organizations that align with our mission: what works, why it works, and how it can be improved with sound approaches to drive family-centered action. Ohhf is committed to sharing our expertise and the funds gained from this work go directly to serving our community.