EIN 11-3283268

Hermansky Pudlak Syndrome Network

IRS 501(c) type
501(c)(3)
Num. employees
5
Year formed
1992
Most recent tax filings
2024-07-01
Description
Hermansky Pudlak Syndrome Network provides advocacy, fellowship, education, and hope to individuals and families affected by HPS. They fund and facilitate research, compile patient data, run conferences to collect and provide disease information, and produce resources for healthcare. They also provide information and support to affected families from their location in Oyster Bay Cove, NY.
Total revenues
$323,223
2024
Total expenses
$459,209
2024
Total assets
$283,257
2024
Num. employees
5
2024

Program areas at Hermansky Pudlak Syndrome Network

Compiles patient data to assist in research, runs conferences to collect and provide disease information and provides information and support to affected families.

Grants made by Hermansky Pudlak Syndrome Network

GranteeGrant descriptionAmount
American Thoracic Society (ATS)Reasearch$21,000

Who funds Hermansky Pudlak Syndrome Network

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
American Legion Child Welfare FoundationProvide A Safe Place With Activities for Kids With HPS While Parent Attend Educational Sessions.$17,350
The Blackbaud Giving FundGeneral Support$7,974
The Bahnik FoundationGeneral Purposes$5,000
...and 3 more grants received

Personnel at Hermansky Pudlak Syndrome Network

NameTitleCompensation
Donna AppellPresident$19,640

Financials for Hermansky Pudlak Syndrome Network

RevenuesFYE 07/2024
Total grants, contributions, etc.$323,067
Program services$0
Investment income and dividends$156
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$323,223

Form 990s for Hermansky Pudlak Syndrome Network

Fiscal year endingDate received by IRSFormPDF link
2024-072025-03-05990View PDF
2024-072025-02-15990View PDF
2024-072025-01-31990View PDF
2023-072024-06-05990View PDF
2022-072023-03-09990View PDF
...and 11 more Form 990s
Data update history
March 29, 2025
Posted financials
Added Form 990 for fiscal year 2024
January 4, 2025
Received grants
Identified 3 new grant, including a grant for $5,000 from The Bahnik Foundation
September 21, 2024
Received grants
Identified 1 new grant, including a grant for $7,974 from The Blackbaud Giving Fund
August 14, 2024
Posted financials
Added Form 990 for fiscal year 2023
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $8,651 from American Online Giving Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disorders
Characteristics
Conducts researchTax deductible donationsAccepts online donations
General information
Address
1 S Rd
Oyster Bay Cove, NY 11771
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
Nassau County, NY
Website URL
hpsnetwork.org/ 
Phone
(800) 789-9477
IRS details
EIN
11-3283268
Fiscal year end
July
Taxreturn type
Form 990
Year formed
1992
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Not Operate or Solicit for Charitable Purposes
Charity Registration status
Delinquent
FTB status revoked
Not revoked
AG Registration Number
CT0285730
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2025-04-16
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