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EIN 26-3531031

Familial Dysautonomia Now Foundation FD Now

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Buffalo Grove
State
Illinois
Year formed
2009
Most recent tax filings
2023-07-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
To discover new treatments and cures for patients with Familial Dysautonomia, a rare, fatal, genetic neurological disease present at birth.
Also known as...
Familial Dysautonomia Now Foundation; FD Now
Total revenues
$363,863
2023
Total expenses
$226,852
2023
Total assets
$1,031,053
2023
Num. employees
0
2023

Program areas at Familial Dysautonomia Now Foundation FD Now

To discover new treatments and cures for patients with Familial Dysautonomia, a rare, fatal, genetic neurological disease present at birth

Grants made by Familial Dysautonomia Now Foundation FD Now

GranteeGrant descriptionAmount
Fordham UniversityLab for FD Research$177,720

Who funds Familial Dysautonomia Now Foundation FD Now

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Foundation for Jewish Philanthropies (FJP)General Purposes$25,000
Jewish Communal FundIn Furtherance of Grantee's Tax-Exempt Purpose$19,746
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$9,850
...and 7 more grants received

Personnel at Familial Dysautonomia Now Foundation FD Now

NameTitleCompensation
Ann SlawPresident$0
Ken SlawVice President$0
Andrea GreenfieldTreasurer$0
Lynn Cabin MstPast Treasurer$0

Financials for Familial Dysautonomia Now Foundation FD Now

RevenuesFYE 07/2023
Total grants, contributions, etc.$364,345
Program services$0
Investment income and dividends$8,242
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-8,724
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$363,863

Form 990s for Familial Dysautonomia Now Foundation FD Now

Fiscal year endingDate received by IRSFormPDF link
2022-072023-01-30990View PDF
2021-072021-12-13990View PDF
2020-072021-04-21990View PDF
2019-072021-10-12990View PDF
2018-072019-08-15990View PDF
...and 8 more Form 990s

Organizations like Familial Dysautonomia Now Foundation FD Now

OrganizationLocationRevenue
Tyler's Hope for Dystonia CureAlachua, FL$376,541
Paint for A CurePhoenix, AZ$125,054
Alliance To Cure Cavernous MalformationsCharlottesville, VA$1,292,022
Crush MSNapa, CA$109,760
Als FundraiserRoseau, MN$164,608
Kindness Over Muscular DystrophyRidgewood, CT$386,798
The Woody FoundationCoral Gables, FL$222,193
Hundley FoundationHenderson, NV$315,017
Angel FundWakefield, MA$928,586
MS 4 MSArnold, MD$141,953
Data update history
January 1, 2024
Received grants
Identified 1 new grant, including a grant for $25,000 from Foundation for Jewish Philanthropies (FJP)
June 27, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 19, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 12, 2023
Received grants
Identified 2 new grant, including a grant for $25,000 from Foundation for Jewish Philanthropies (FJP)
May 9, 2023
Received grants
Identified 2 new grant, including a grant for $17,500 from The Slomo and Cindy Silvian Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsAuction fundraisersTax deductible donationsNo full-time employees
General information
Address
1170 Green Knolls Dr
Buffalo Grove, IL 60089
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
County
Lake County, IL
Website URL
fdnow.org/ 
Phone
(847) 913-0455
IRS details
EIN
26-3531031
Fiscal year end
July
Taxreturn type
Form 990
Year formed
2009
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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