Familial Adenomatous Polyposis Foundation

Highlights from our 2016 programs: patient services included: our informational website, hcctakesguts.org, served over 10,000 unique individuals. Our "expert care facility" list helped over 2,000 people find a provider. The "patient's guide to fap" was distributed to over 10,000 patients to be shared with their families. The patient's guide to lynch syndrome was distributed to over 5,000 patients to be shared with their parents. Serving as patient navigators by guiding patients to credible resources., we responded to online questions with audiences ranging from 100 to 5,000. Over 3,000 patients turned to our inspirational resources for comfort and support. We provided free education and networking opportunities for families when we worked with the university of chicago medicine, roswell park cancer institute, and city of hope comprehensive cancer center to three hereditary colon cancer family day in chicago. Medical professional services included: our seven-hour educational webinar series entitled "recognizing and treating rare Polyposis conditions" was attended by over 400 providers. We provided over 2,000 complementary brochures at the request of providers for distribution in their clinics. We supported the services of genetic counselors in Utah and Georgia by we attended and exhibited at the collaborative group of the americas on inherited colorectal cancer annual meeting. We were selected to provide input to two sets of clinical practice guidelines developed by the national comprehensive cancer guidelines: "genetic/familial high-risk assessment: colorectal- and "colon cancer screening." Served as advisors to the research efforts of the university of south carolina and brandeis university's genetic counseling program. Non-profit partners support included: we promoted the efforts of other advocacy organizations in the hereditary colon cancer space, including alive and kickin', lynch syndrome international, polypeople, ccare lynch, pten hamartomatous syndrome foundation, and colon cancer alliance.