Program areas at CureSHANK
CureSHANK will bring the scientific community together by organizing scientific symposium and other meetings. With our scientific stakeholders, we will develop a research roadmap to a cure for SHANK-related disorders. We will also serve as an honest broker to enable collaboration among SHANK researchers and coordination of their projects to improve the speed and efficiency of research.
CureSHANK will advocate for increased funding of SHANK research by other stakeholders and strategize with researchers on initiatives, such as seed grants, that could help attract research investment by other funders.
CureSHANK will fund targeted research studies, including scientific projects that elucidate the underlying disease mechanisms, that identify and validate targets for drug development, and that de-risk promising drug targets. CureSHANK will also fund certain promising clinical trials readiness initiatives. These activities are needed to increase the number of drug targets moving from academic research labs into successful industry-sponsored clinical trials.
Who funds CureSHANK
Grants from foundations and other nonprofits
Financials for CureSHANK
| Revenues | FYE 12/2024 | FYE 12/2023 | % Change |
|---|
| Total grants, contributions, etc. | $586,766 | $464,968 | 26.2% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $11,045 | $4 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $597,811 | $464,972 | 28.6% |
Organizations like CureSHANK
| Organization | Type | Location | Revenue |
|---|
| The Arvo Foundation for Eye Research | 501(c)(3) | Gaithersburg, MD | $1,826,745 |
| The Bluefield Project to Cure Frontotemporal Dementia | 501(c)(3) | San Francisco, CA | $1,916,941 |
| Wylder Nation Foundation | 501(c)(3) | Scottsdale, AZ | $236,521 |
| Pasteur Foundation | 501(c)(3) | New York, NY | $624,783 |
| Solve Me CFS Initiative | 501(c)(3) | Los Angeles, CA | $2,091,506 |
| Pediatric Nephrology Research Consortium | 501(c)(3) | Baltimore, OH | $563,721 |
| Nick Gilbert Neurofibromatosis Research Institute | 501(c)(3) | Detroit, MI | $150,000 |
| Pulmonary Wellness Foundation | 501(c)(3) | New York, NY | $452,529 |
| Propel A Cure | 501(c)(3) | Modesto, CA | $198,494 |
| Toxoplasmosis Research Institute | 501(c)(3) | Chicago, IL | $189,334 |
Data update history
June 20, 2026
Received grants
Identified 4 new grant, including a grant for $10,000 from Jewish Communal Fund April 7, 2026
Posted financials
Added Form 990 for fiscal year 2024
February 27, 2026
Updated personnel
Identified 3 new personnel
February 4, 2026
Used new vendors
Identified 2 new vendors, including , and
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Legally formed as corporationConducts researchOperates internationallyTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 11777 San Vicente Blvd 500
- Los Angeles, CA 90049
- Metro area
- Los Angeles-Long Beach-Anaheim, CA
- County
- Los Angeles County, CA
- Website URL
- cureshank.org/Â
- Phone
- (310) 409-8060
IRS details
- EIN
- 84-2240648
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2019
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H90: Medical Specialty Research
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0281327
- FTB Entity ID
- 4294636
- AB 488 data last updated ("as-of") date
- 2026-08-19
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